Jul 23, 2004 - 11:12 pm
I'm a stage IV survivor, have been reading the message boards, and am grateful to everyone who has posted encouraging messages.
I wonder if anyone has experienced a recurrence in a Supraclavicular lymph node. After two years of everything going in the right direction--chemo to shrink mets in my liver and duodenum, surgery to remove ascending colon and duodenal lesion, more chemo, successful liver resection, six more months of chemo (systemic CPT-11 and FUDR thru hepatic artery pump)--my weight was back to normal, CEA was 0.7, bloodwork was perfect, then a PET scan a month after I finished chemo showed cancer (confirmed by needle biopsy) in my left supraclavicular lymph node. A full body CT scan did not show anything else, however. I've been back on chemo--more CPT-11 with Erbitux--once a week. I'm feeling sick and tired again, especially after having had a brief taste of feeling energetic and enjoying food--am again losing weight and, frankly, freaking out over this! I'm so sick of feeling sick and tired, and I want to believe that I will get through this. I had been so positive for so long, but I'm very discouraged now. It's not only the disease--I had been in the midst of rebuilding my life after my long-term marriage ended 6 months before I was diagnosed (husband wanted to "move on"), my kids were away at college, and I had to start a new career. Everything has been on hold, and I want to move on. A few months ago I felt ready to take on the world, but now I'm just trying to make it from day to day, though I do feel well enough to get out among friends on the weekends, which really keeps me going.
Does anyone have any experience with this kind of recurrence. This node grew to the size of a golf ball in just over a month! I'll have another scan at the end of August, but it's so difficult waiting. It would really help to hear from anyone who had a similar experience. Thanks.