Greetings to all surviving Caregivers.
We lost our mom to end stage liver cancer.
We kept 15 tumors at bay for 18 months and no one bothered to monitor the spine after radiation of 1 bone tumor. It ran rampid and it was down hill from there. I am so sad about having to have a silent goodbye. Our father refused to let us discuss death with mom. She would sneek and call me to talk and or nap while on the phone. He was so angry if she napped all day. She was dying. My sister and I discussed all of this with her doctors and our clergy, still no one interviened.
The day hospice enterred their home, I handed 3 notebooks to the nurse which contained quick messages from GRAMMY to my children. ie. Wedding Day, 1st baby, graduation, etc....(not in that order : ) The nurse told me that it was too late.
This should have been done months ago. "SORRY"
Mom died 10 days later. Has anyone else out there have the same final months experience. It was like a sudden death. We were not allowed to say goodbye. Weeks would go by without seeing her because he kept her from us, and or we would not know what to say since we were not allowed to discuss her dying.
I am in hopes that everyone out there's pain is numbing a bit. In hopes to hear from someone.