Jun 27, 2004 - 6:46 pm
I often read the site but don't often post. my husband, Matthew, is 34 and had rectal cancer. he has a total mesorectal excision surgery on june 16. surgery itself went well but first couple of days afterwards were hell under they figured out that he was in massive, uncontrollable pain b/c his abdominal muscles were too strong to let the temp ileostomy work properly - put a tube in and out came liters and liters of bile and stuff. some more ups and downs and he came home 6 days post-surgery with the temp ileostomy and JP drainage tube/bulb (still draining too much to remove it). I thought things would get better once he got home but they've gotten worse. he got bed sores and a very sore lower back in the hospital and it's still really bad so he can't sleep on his back for long - obviously can't sleep on stomach - and can't sleep on sides b/c abdomen hurts. and eating always hurts. and he's lost 20 pounds (185 to 165) in the last two weeks. so he's not getting hardly any sleep, little food, etc. etc. meanwhile, we have a daughter who is 2 3/4 years old and is having a really hard time with her papa not being able to do much of anything. next visit with surgeon is on tuesday. i am totally wrung out and depressed despite getting the fantastic news on friday that matthew has a total response to chemoradiation - no cancer found at all though they put him at stage III (went through rectal wall and 2 nodes suspicious) in early March. feel terrible that I'm not just elated at the great news and nothing else. and Matthew is horrified at the thought of starting chemo again soon given how hideous he feels now. sorry for rambling on for so long but it all feels a jumble and I am exhausted and stressed and returning to work tomorrow and I know all of you will understand (and not many others would).