May 17, 2004 - 5:03 pm
I am a 58 year-old male diagnosed with adenocarcinoma of the appendix. The doctors have removed a large portion of the colon, the entire appendix, and part of my bladder as well as multiple lymph nodes. The tumor has metastasized both to the lymph nodes and to the right pelvic sidewall, and is considered to be inoperable. Because of the location of the remaining tumors, radiation also is not currently being considered as an option.
Does anyone have any information regarding new treatments and/or clinical trials for this type of cancer? I have been told both by oncologists and colo-rectal surgeons that this type is only about one case in about 10,000 cases, so there probably isn't much information or trials available. They try to treat it as a type of colon cancer, but really don't have much experience or information as to what works or doesn't work. They seem to think as a trial-and-error situation, and really don't have much data to provide.
Can anyone help on this?