May 12, 2004 - 3:48 pm
I've seen many postings asking for info about SCC. I've been researching the subject for about 3 years now (since my original diagnosis). I have created a personal web page linked to the American Cancer Society home page that contains a lot of helpful web links on this subject at:
In late 1999, I noticed a spot on my tongue that wouldn't heal. I went to the dentist and he sent me to an oral surgeon who confirmed a diagnosis of SCC of the left tongue. He initially told me he was "99%" sure it wasn't cancer but the biopsy results proved him wrong.
It is believed that this cancer developed as a result of chronic dental trauma (a chipped back molar that repeatedly lacerated my tongue).
In Feb 01, I had a partial glossectomy of the left side of my tongue. Since margins were clear, no additional treatment was received. I was followed closely by my ENT doctor and received good checkups for 2 1/2 years. The last checkup by him was on 7/3/03; two weeks later some problems arose.
In mid-July 03, I woke up one morning with a severe nosebleed and the next morning found a lump in the left side of my neck. After a fews weeks' of various testing (Xrays, CT Scan, MRI, biopsy), this was confirmed to be a reoccurrance of SCC. It is thought the primary source was the original site on the tongue.
I had a radical left neck dissection and my tonsils removed in Aug 03; along with almost 80 lymph nodes in my neck. That was followed by 30 IMRT radiation treatments which ended in Dec 03. I am recovering from the effects of surgery and radiation and overall, I am doing very well.
I am being followed closely by an ENT doctor, radiation oncologist, and dentist. My most recent PET scan on 2/16/04 indicates no evidence of cancerous tumors or hotspots from my head down to my mid-thigh. My chest Xray of 4/27/04 was normal.
I continue to practice "guarded optimism" and go with God!