Mar 19, 2004 - 4:37 pm
My entire families life has changed very rapidly lately. My grandmother developed flu like symptoms in Jan. we finally got her to agree to go to the Dr in mid Feb. We were rushed to the emergency room to what seems is now a roller coaster ride (A VERY BAD ONE). They ran tests and the next day came in and said that she had a tumor and a large one, it seemed to be contained in the uterine cavity, but the CT scan revealed spots on her lungs as well. She underwent a radical hysterectomy two days later. The tumor was larger than a 8 lbs baby. They also removed her appendix and gallbladder. They did the pathology and came back and told us that it is high grade endometrial stromal sarcoma. She had the hysterectomy one month ago tommorrow. We are getting the Dr.'s at Moffitt Cancer Center to take a look at the case but the original oncologist pretty much said there was nothing they could do that this type of sarcoma does not respond to chemo or radiation therapies. I am just praying that someone out there can read this and give us some hope right now. We have never been told a stage but we do know that it has metastisized because in the pathology report it said that it is intensely attacking the angiolyphatic system. They are calling it Undifferentiated High Grade Endometrial Stromal Sarcoma. Maybe they should rename it the Devil.. Please help if you can!