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Islet cell tumor / neuroendricine tumor

isletcell's picture
isletcell
Posts: 70
Joined: Mar 2004

Hi! I am a 33 year old female who was diagnosed with an islet cell tumor of the pancreas a few months after I had my baby last year. In september i underwent a whipple operation and i an feeling great again. The other day i went in for a CT scan as a part of my 6 month check up and they found that some of the lymph nodes around the liver are swollen. I cant see the surgeon for a week and I have a PET scan on tuesday. Does anyone know what this might mean??? Is this normal after surgery?? Could it be microscopic disease?? Any info would be helpfull.

isletcell's picture
isletcell
Posts: 70
Joined: Mar 2004

I went to the doc and everything is fine. This living in limbo really stinks. I wonder if there is any realation to heart attacks and getting your tests done?? That was stressfull.
Jen

BillyOmustang
Posts: 1
Joined: Jun 2011

I am 63 years old, I have Islet Cell Tummors of Pancreas & Liver. I am being treated non sugically at the Moffitt Cancer Center Tampa Florida. I am in Clinical Trials. Good luck to you!

mr steve
Posts: 286
Joined: Sep 2009

Billy,

My wife is also being treated for the same, but hers has spread to the pelvic region. We are in clin trails too. Afinetor, avastin, and sandostatin LAR. what is your treatment?

Steve

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