Feb 29, 2004 - 5:38 pm
I've been reading your messages. I pray you all find the faith and hope that will bring you wellness and peace of mind. I am 39. Last year I was diagnosed with a brain tumor. The tumor was resected in July 2003(95%) and the pathology reported that I had an anaplastic astrocytoma level III in 20% of the tumor. I began 6 weeks of radiation. I lost the hair on the front left side of my head; some is growing back. The MRI following radiation showed either scar tissue from the radiation or new tumor tissue grew in an area below the surgical site but within the radiation range. As a result, I began 12 months of chemo (Temodar). I'm now completing my fourth round and the Temodar is working based on my last MRI. I take Dilantin (530mg) to control my seizures and my neuro-oncologist has prescribed Rocaltrol (.5mg) and Celebrex (200mg) as studies show these medicines help inhibit tumor growth. I'm also taking Kytrol (8mg) to control nausea and Miralax to help with constipation. Dilantin makes me tired, as did the radiation and now the chemo. My appetite is not what it was; I've lost over 35 pounds (I had it to lose, though this isn't how I wanted to do it.) Temodar's side effects vary with me. Sometimes I'm exhausted, sometimes nauseated or sick and other times I feel fine. Emotionally, there are more good days than bad. I believe that I will be well again but somedays I miss my hair, I miss "normal." Anyway, I just wondered if anyone else had the same diagnosis or experiences to share?
God bless you.