Feb 22, 2004 - 4:07 pm
I had my esophagus yanked in Jul01 and the stomach sewn to connect to my throat. Now, nearly 3 years later my pains in my upper right chest seem to be getting worse. I am in actual pain about 85% of the time and extreme discomfort the rest of the time. Nothing seems to relieve it for long. It wakes me up 6-7 times a nite but I am always exhausted and sometimes on the weekends sleep most of the day. The doctors have blood tested me, CTd me, EKGd me, stress-tested me, and said they can find nothing wrong with me. So that part is great news to me, but there must be something causing my pain. Also, it will sometimes migrate around to my back, or down into my stomach area. I used to be a runner but now can't get past a 3k run. I still keep trying my exercises because I have found that I will have pain regardless of exercise or not so might as well try to stay in shape.
Now, this next comment sounds harsher in print than meant, and is not intended as a knock on Doctors. But, although they did a great job of curing me, it seems that post-cancer care or knowledge does not have a high priority. It seems I go to the doctors and explain my problems and they order a test or two and all of a sudden the appointment is over and I still have no answers. If I don't force the issue to try and find out about tests conducted I would never hear anything again.
I guess this sounds like whining and wimping, but would appreciate a comment from other people who are about 3 years out of their surgery to see if this is the way it is supposed/going to be; or, if there are some solutions other doctors are providing with success.
I basically take no medicines at all except for an occasional motrin 800 when the pain is real bad and more and more lately I have had to take a chug of Maalox II once or twice a day.