Feb 14, 2004 - 1:58 pm
Hi my name is Susie, three years ago my soon to be husband was diagonosed with Thrombocythemia. He went through the bone marrow tests, and the scare of possibly having cancer in 5 years, that's what the Dr. said anyways! He went on the Chemo Pills the strongest dose, boy was that awful for him, although it seemed that he was ok, as long as i made sure he ate many meals and good ones at that, but as time progressed he grew very tired ofcourse! at ended up on disability. His Dr. at the time, said that he was so different from other people with real cancer, because they were taking the awful doses of chemo and just going back to work after there treatments. That he shoulnt be so darn tired, well anyone who's talking strong drugs like that is bound to be tired, he'd actually fell asleep at the wheel of the patrol car once, and thankfully only hit gravel wich woke him up. God bless he was alright. As time has gone by he seemed to get older and older, body wise that is, and things just keep coming up wrong with him, but the blood platelets!!!!!!!!!!! is out biggest problem! there's to many, most of the time it's controled by this drug called agryln, wich is awful I think for his health and future health.But I keep researching, about Thrombocythemia, Thrombocythitosis, and the info. just keeps me going into circles. I can get lots of info on Low platelet counts but not To Many. and now it's out of control again, and not going down, the count isnt hudge like at first, but the oncoligist is very worried, and just keeps giving him more Agryln. If anyone can make sense of my letter, and need for more understanding, I'd be so greatful. Thanks so much, and God Bless all of you .