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Hubby w/ Stage IV. HELP
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Nov 26, 2003 - 10:15 am
I am new to this site and very happy that I found it. My husband was found with colon cancer after being taken to the hospital bleeding. They did the colonoscopy (I don't spell very well) and found the cancer. A couple days later did the surgery and took out about 12 inches of the colon. Cancer had spread to the liver and the surgeon said if he could remove 3/4 or less he would have but his is so bad that he didn't do anything to it. They removed 16 lymph nodes and cancer was in 7. They see a spot in his lung but are not sure if it is cancer or not. After a week in hospital recovering from surgery he went home and in two weeks we began chemo (oxiplatin and xloda ,4000 mg per day for 14 days) no radiation. our oncologist is VERY difficult to understand and doesn't talk much at all to us. I learn more from the internet than from him. The surgeon was very negative about the possible outcome and the oncologist says "we wait and pray and put it in Gods hands". Well that is all well and good but damn it I want to KNOW what I need to expect. This is a wonderful place to vent and i find myself going on and on. Hubby is doing ok on chemo. Very tired and frustrated and afraid that it is not working. We are on cycle 3 Dec 2. After that (around the 16th) Dr. wants to do a CAT and see if things are working. Hubby says no not till after Christmas!. Thanks for listening. Just wanted some support and guidance. God Bless and have a Wonderful Thanksgiving. We DO really have a lot to be Thankful for.. |
Joined: Mar 2003
Welcome to the semicolon discussion board, there are alot of very nice people here who will listen to your venting and they may be able to give you some insight. Have you thought about changing drs you need to have someone who you can understand and who understands you and your husband and his needs I to have stage IV and had about 12+ inches removed in June 2002, I had gone back to work in Dec 2002, but right now I'm laid off, he can't just stop in the middle of his treatment because they will only start it up all over again. Keep us all informed about everything that happens it will help you to help him.
Good luck and my prayers are with you.
Pattie
Joined: May 2002
Just read your posting, and it looks like you've got a lot to deal with. Yes, it's in God's hands, but you have some choices in this too. Try and surround yourself with people who can communicate with you. Be frank with them, insist that they explain it and ask them "what would they do."
If the doctors won't keep you informed, talk with the nurses. They may have some thoughts on it.
It sounds like they didn't attempt to remove the cancer, right? It sounds like it's at a pretty advanced stage. (I was at stage III).
Feel free to write again. Cancer affects everyone in the family, and your husband needs his rest. Play it by ear.
I wish the best for you all.
Bruce
Joined: Nov 2003
Thank you for