Nov 22, 2003 - 12:01 pm
So I received my oxaliplatin and fistful of Xeloda on Monday. I was prescribed 6600mg of Xeloda daily. I took one dose on Monday (3300mg), two on Tuesday (6600mg) and I woke up in the wee hours of Wednesday morning in horrible pain and nauseous. I went to the ER knowing something was awry. The oncologist on call told me I was taking WAY too much Xeloda and I was experiencing toxicity. Anyways, I basically spent Wednesday and Thursday in pain, nauseous and vomiting (I know, I know, sounds like a good time and why weren't you all invited). So, they cut me back to 3300mg a day. Now, I have no idea what happened. There was already confusion about my meds on Monday because the doctor didn't fill out my prescription so he simply gave a verbal order to the pharmacy at the hospital, blah, blah, blah. My nurse gave me the impression that the protocol demands 6600mg and that I simply couldn't tolerate it. The oncologist on call made it sound like I was prescribed the wrong amount and that no one could tolerate that much Xeloda. And, of course, my oncologist is nowhere to be found. Can anyone give me any feedback... Does 6600mg sound normal? Is the reaction to Xeloda normally this violent? Me and 5FU were the best of friends, so I'm surprised that Xeloda is kicking my (insert explitive here). I'm also quite upset because the only thing going in my favor is that I'm young and supposed to be able to tolerate heavy duty chemo. Need help! I love my Xeloda and it seems to hate me. Thanks.