Nov 14, 2003 - 10:12 am
Hi everyone! So I finally got a second opinion. Overall, I did like the doctor - he is a specialist in young adult's with cancer. He will try to get me onto a clinical trial, but if they are all closed he's going to start me on Xeloda and oxaliplatin on Monday. Oh, and the PET scan indicated that I do have mets. in my lungs but there wasn't any hot spots in my pelvic region or my liver, so that was encouraging. Since my veins are non-existant, he suggested a pique line, but I refused because I had one before when I was doing 5FU a la fanny pack and I hated it. No easy bathing, no swimming, no tank tops... NO WAY! He then went on to say that perhaps a better alternative would be the Porto-Cath. Does anyone have any experience with the Porto-Cath? I'm pretty much sold on it but my mother is concerned about risks and maintainance. The only thing that I didn't like about the encounter was how sad the doctor looked. I HATE THAT. When the professionals begin to look dejected and start talking like I'm already dead and buried, well, it really eats away at my morale. The opiniating doctor also asked if I could "psychologically handle more treatment". Argh. I do not need their sympathy or pseudo-psychology, I need their medical expertise. I can handle my own "psychological state" thank you very much. They also treat me like a baby. When I was first diagnosed they actually asked me if I knew where my anus was? I'm 21, not 2. Anyways, I told my doctor that I realized my situation was serious, and while my goal for treatment was to extend my life for as long as possible while preserving a decent quality of life, I'm also open to the possibility of a miracle. Basically I told him I'm ready to fight and, if he wants to treat me, he better be on my side - I guess I'm getting pretty aggressive in my old age. Sorry for the long message, but in brief, I'm wondering if anyone has feed-back on 1) Porto-Cath 2) Xeloda or oxaliplatin and 3) how to deal with weepy doctors. Thanks.