Sep 08, 2003 - 9:50 am
My name is Felicia. I am a 37yo married (today is 13th anniversary!) mother of 2 (7&10yo). While having an MRI last July of my c-spine, a nodule on my thyroid was accidently found. I went for an ultrasound and confirmed it solid, then for a radioactive test and found it to be "Cold", finally for a FNA and it came back benign. My ENT told me to wait six months and then we will recheck it. I said no, if it doesn't belong there, take it out. In November 2002 I went in for surgery to remove the right lobe and isthmus. They sent it up to pathology during surgery and it was found to be benign, so they sewed me up. They sent my nodule (or slides) to University of Penn for further review and three weeks later (yes, 3 weeks!) my ENT told me I have follicular varient of papillary cancer. He then said I needed to have the other half removed.
Since my mother was diagnosed with breast cancer in early 2002, I knew how important 2nd opinions were, so I went for three 2nd opinions. The most important one was Memorial Sloan Kettering in NYC. I met with a thyroid specialist who said the my nodule was 1.7cm and generally they only remove 1/2 lobe when a nodule is 1.5cm or less. He said he would not remove the other lobe as the .2cm size is not worth the risk of further surgery. He said just to have scans of the lobe and watch it 2 times a year. My pathology report stats my cancer was circumscribed, no vascular invasion and clear margins
I had an endo who felt the same way but just switched to a new one, closer to my home and he feels differently.
My new endo said I do need to have the other lobe removed, but it will be done without surgery - meaning he wants to give me a lobectomy with I131. From what I thought, I would need I LARGE dose of it to kill off an entire lobe and wouldn't that be dangerous to me?
I was fine with the thought of leaving the other lobe in, but am now thinking maybe I should have the other half removed.