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high grade, stage 4 sarcoma



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antsueann

				          
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            Joined: Aug 2003

          
        					
				
		
									

        			    August 20, 2003 - 12:55am			  			

			
			
My sister (59 yrs. old)  had emergency surgery about 4mos ago for a tumor on her intestines. She had a cholostomy and they thought they got it all. Original dx as GIST.  Six weeks ago she had another emergency surgery.  They found and took out another tumor around the original site and found another mass on the pelvic floor which they cannot remove because it is attatched to blood vessels.  Now they say it is not gist, but undifferentiated sarcoma, high grade, stage IV. As soon as she is over an infection from the surgery she is to start chemo, hopefully next week.  She is to receive ifosfamide (37% chance of shrinking the tumor) Usually they give ifosfamide and another chemo drug together and the chance is increased to 70%, but they don't think she can tolerate it.  


I can't believe that this has happened so fast.  If there is anybody out there with this diagnosis or cancer that grows this fast please respond as soon as possible. I have not been able to find any info on this anywhere. 


‹ hi grade spindle cell adenosarcoma: MYXOID LIPOSARCOMA ›

						
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stevelamont

				      
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August 30, 2003 - 5:13am

			
Re: high grade, stage 4 sarcoma
			
Hi,


My wife is recovering from extensive soft tissue sarcoma. She had 15 or more tumours and was also offered Ifosfamide and Doxorubicin in combination as a last resort. She had to stop the Ifos after one round and continued with Dox for 5 more rounds. This was easy compared with combination. She also did supplements to help with nourishment and side effects e.g. flax oil, hydrazine sulfate,co-q-10 to protect heart. 


She is now clear for last 6 mths.


I can give you lots more information if you want.


Steve Lamont

steve.lamont@pyinna.co.uk



			
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nash

				      
	        Posts: 40

	      
	      
	        Joined: Dec 2003

	      
	    				
		
			
December 2, 2003 - 9:02am

			
Re: high grade, stage 4 sarcoma
			
please send me more information , my husband is in similar position, other than sarcom has been in excellent health, all his life, any advice support would be of great help



			
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Koosa44

				      
	        Posts: 3

	      
	      
	        Joined: Feb 2004

	      
	    				
		
			
February 23, 2004 - 3:09pm

			
Re: high grade, stage 4 sarcoma
			
My brother has been diagnosed with aggressive spindle cell sarcoma.  He survived an aortic aenurysm on Dec 6 after having excruciating pain in back, diagnosed by a catscan.  After 3 weeks the pain was back.  Dr. diagnosed a hematoma where the surgery was. 2 weeks later he has another catscan...and now they see something near his kidney.  3 weeks before it is a pinhole and now a lima bean. Biopsy show a malignancy and there is also a spot on his back.  Going for 2nd opinion and bone biopsy...he is admitted to hospital with severe pain to stomach.  Now there is something in intestines and the one by the kidney is a peach pit.  Diagnoses:  Spindel cell and only way to stop is chemo.  3 full days of chemo with Adriamycin (Doxorubicin), Cytoxan, Vincristine.

We will do a blood test next week.  Then a catscan to see if this is stopping it.  Looking for a prognosis here.  Any info you can give me would be appreciated.  We are working around the clock on info...which there doesn't seem to be alot of.  Any other drugs maybe??  Thanks!



			
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mrmcd

				      
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July 8, 2009 - 8:18am

			
Please give me more
			
Please give me more information.  I have tumors in my abodomen, liver, spleen rib, etc.  I am waiting to see what type of soft tissue sarcoma and then go to M.D. Anderson.

Thanks

mrmcd4206@sbcglobal.net



			
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cassilly

				      
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February 25, 2004 - 6:15pm

			
Re: high grade, stage 4 sarcoma
			
I was dx'd 14 yrs ago with the same staging. There are now several sarcoma centers around the country, including MD Anderson, Sloan Kettering, Johns Hopkins. The drugs selected, depends on the

pathology. I took those drugs, among others, and it was an intense regimen, lots of side effects. Sarcomas grow at different rates, I had tumor recur in that short of a time period. I would recommend  gathering info regarding treatment options and utilize the major centers to get a 2nd opinion. Her MD can help you. There are sarcoma alliances and the NCI has sarcoma info as well. You can get some on the internet. Hope this is helpful. 



			
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sublignagirl

				      
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September 20, 2008 - 7:27am

			
brother has it as well
			
My brother was diagnosed in May with undifferentiated high grade pleomorphic liposarcoma....


I am looking for other surviving patients...anybody out there????



			
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cosby01

				      
	        Posts: 13

	      
	      
	        Joined: Feb 2004

	      
	    				
		
			
February 27, 2004 - 11:26am

			
Re: high grade, stage 4 sarcoma
			
i had a stage three sarcoma and it happend so fast they had to amputate my leg to save my life  i have to be checked out every three months or so to make sure that  it has not spread to the lungs my orthopedic surgen thinks that they got it all but as you well know it can pop up anytime i hope the best for you and hope that everything will work out for your sister and god be with you



			
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melissasweeney

				      
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	        Joined: Oct 2009

	      
	    				
		
			
October 15, 2009 - 12:17pm

			
checking in
			
Hello,


I was just wondering how you are doing?  My sister is in the same boat but choose to keep her leg.  Since it has spread to her lungs and now her liver.  She was told to seek a specialist in Spindle Cell Sarcoma.  



			
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jonnheather

				      
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	        Joined: Oct 2010

	      
	    				
		
			
October 29, 2010 - 5:15pm

			
how are you today.  My mom
			
how are you today.  My mom had her leg amputated and not it is in the lungs.

Just checking to see what if it reoccured in you.



			
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kellyradeke's picture
						
kellyradeke

				      
	        Posts: 5

	      
	      
	        Joined: Jul 2004

	      
	    				
		
			
July 16, 2004 - 1:35am

			
Re: high grade, stage 4 sarcoma
			
I am 36 yrs old and a mother of 3. I have a pleomorphic liposarcoma (high grade) I am between a 3 and a 4. I have not started treatment as of yet due to my just finding out about it 2 weeks ago. This thing is fast growing and very rare.I live in Alaska and they are sending me to seattle to see a specialist because they have not seen this enough to know how to treat it correctly. ITs pretty darn scarey....and I have yet to find someone who has what I have ....let me know if you find info relating to our similar situation?? 



			
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