Aug 20, 2003 - 1:55 am
My sister (59 yrs. old) had emergency surgery about 4mos ago for a tumor on her intestines. She had a cholostomy and they thought they got it all. Original dx as GIST. Six weeks ago she had another emergency surgery. They found and took out another tumor around the original site and found another mass on the pelvic floor which they cannot remove because it is attatched to blood vessels. Now they say it is not gist, but undifferentiated sarcoma, high grade, stage IV. As soon as she is over an infection from the surgery she is to start chemo, hopefully next week. She is to receive ifosfamide (37% chance of shrinking the tumor) Usually they give ifosfamide and another chemo drug together and the chance is increased to 70%, but they don't think she can tolerate it.
I can't believe that this has happened so fast. If there is anybody out there with this diagnosis or cancer that grows this fast please respond as soon as possible. I have not been able to find any info on this anywhere.