Jun 13, 2003 - 9:55 am
Strange that in my first searches on this site I found a Heather and a Bob with similar issues to mine. My dad, Bob, has just finished his treatments for cancer at the base of the tongue. (It took a long time to discover this was the primary) He had a lymph node removed on the right side which showed squamous cell AND sarcoidosis within the node. I hear this is very rare and makes me nervous about possible undetected recurrances.
Anyway, his main complains right now are excessive mucous (he said it is worse than during treatment) and a pain/tingling/numbness down his right arm into the pinkie and ring finger. I was wondering if anyone else has ever had this. They thought it might be neurosis from the Cisplatin, but ruled it out.
Just general info for others, my dad's doctor strongly recommended a feeding tube be inserted before he even started treatments so that he wouldn't be so weak should he need to actually use it. He is so glad he did it. He has never had any problems with it, but is of course anxious to start eating regular food again.
Before each radiation session, he recieved a shot (Ethyol- I think) which made him sick to point of throwing up a few times, but again his doctor strongly recommended it. I feel lucky he was able to have it since many insurance companies won't cover it and it's very expensive. All the research I've done is indicating it decreases the damage to the kidneys and often helps with saliva production following treatments.
The doctors and staff at St. Luke's have been tremendous. I don't how my family would have survived this without them. His doctor even got teary eyed one day when he was really down! Talk about empathy!
I'm really just wanting to hear about recovery time and progress. I know it's different for everyone, but he is getting more and more depressed every day. Everyone has tried to convince him how great he's done (he even worked at three days every week) but I guess he is sick of being sick and is terrified of it coming back. (He was diagnosed with prostate cancer in 2000, had surgery for removal with clear margins)
Any words of encouragement would be appreciated!!