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What to expect in the last stages

klbk
Posts: 2
Joined: Jun 2003

Hello. I do not know exactly where to begin this email or even if I am doing the right thing. My mother, who is 58, is in the final stages of primary liver cancer. On Wednesday 6/4/3, her physician indicated she has approximately 4-8 weeks to live. Last night, Saturday 6/7/3, she fell into a hepatatic (sp?) coma. Her physician and two friends of ours who are also physicians, indicated that she was not in any pain, so we could still keep her at home, but that she was probably very close to death. Accordingly, her priest came and adminstered last rites. In the middle of the night - at around 4:30 this morning, however, she awoke suddenly and asked for two Dannon yogurts and a large glass of Vernors. She had a third yogurt this morning around 9:00 a.m.

I guess my question, is, what is happening? None of the physicians seem to have an answer, and I am feeling really confused and scared. Last night I thought it was the end and stayed by her side for hours until I fell asleep. My Dad is also taking this very hard.

I have never posted a mesage before or been involved in any kind of chat room, so I am not sure how this works. But, if anyone could lend some guidance, I'd be very appreciative.

belle20904
Posts: 12
Joined: May 2002

Hi,

My Mom had liver cancer too. I know that this is a hard time for you and your family. When Mom was in the final stages of her disease she slept quite a bit -- maybe because of the disease, maybe because she was taking pain meds. Like your Mom, sometimes she felt like doing unexpected things like doing the dishes or sweeping the front porch. It was hard to know what each day would bring. I wish you and your Mom and family the best at this difficult time.

rjchiodi
Posts: 4
Joined: Jan 2004

KLBK: My heart goes out to you. I suspect that your mother has died by now, and you will have discovered for yourself what happens in the end stages of liver cancer.

My wife has liver cancer also, but hers is metastatic, which originated from a colon tumor discovered just a few months ago.

We are seeking a radiological procedure, yttrium-90 infusion, at John's Hopkins, and hope to hold her cancer at bay. We both have no expectations in this regard, but are enjoying our lives one day at a time.

The reality of life is that we grow old and die. You, me, and the next guy are included in this scenario. There is only one way to deal with death, and that is to go through it.

Love, compassion, and joyful sympathy for you and your family in these times.

Ron

jeril
Posts: 1
Joined: Jan 2004

Hello. I'm brand new to this website, and found your email just hanging out there. My husband has rectal cancer which metastisized to his liver and lungs. He was diagnosed at stage IV. That was three years ago. Since this past November, he;s been going downhill pretty fast. We have Hospice now, but none of the nurses really want to tell me what I can expect in these last days. He's sleeping alot, has lost an enormous amount of weight, sometimes he eats, sometimes not. I'm not sure if the sleeping is because of the meds, or the progression of the disease. I guess what I need to know is the plain and honest truth about what's going to happen. At least an idea. I'm his only caregiver, his parents have chosen to "remember him the way he was before he got so sick". Now I sound pretty nasty, don't I? Anyway, I feel all alone out here, and thought maybe you could help.

citygirl1107's picture
citygirl1107
Posts: 4
Joined: Nov 2013

Hi jeril, I'm going through a similar situation.  My husband has stage 4 liver cancer which spread from this glomus tumor in his ear.  Anyway, feeling so alone at a time like this is terrible.  I don't think you sound nasty at all.  Of all people his parents, you would think, would want to be with him to the end.  I'm sorry you're going through this.  I'm sorry I don't have any knowledge or wisdom to share with you but I do want you to know that my heart goes out to you, you are not alone as long as you have people you can reach here who can relate to you.  My husband hasn't reached the final moments yet but when that time comes I believe there will be kindness and support from people we meet here.  Any time you want to talk we're here.  Best wishes.

katz2402
Posts: 12
Joined: Dec 2013

Hi Citygirl. I know this journey is not easy. My 42 yr old wonderful, bother has been diagnosed with colon cancer and liver mets. doctors say that it is very advanced and that he has 8 months to live. I battle with the thought of losing him and it makes me wana cry when I am alone in my room. I dont know what to expect as the doctor does not want to give him any medication and he is pain even after drinking a couple sips of liquid. can u please share your experience with me so I know what to do to help him be more comfortable. Maybe you ahve gone through something that might be similar to what is happening with my brother and i can learn to be a better caregiver from you.... my prayers are with you sweetheart

Dianaedes
Posts: 5
Joined: Feb 2004

Hello,
I am new to this but lately felt the need to see if others out there feel just as confused as I do. My father was diagnosed with Liver and Lung cancer last September. Up until about 2 months ago, he was active, alittle less energetic, but still wanting to live. Now he doesn't eat, he has lost 8 to 10 pounds a week, and sleeps all the time. We have hospice now that comes once a week, and the nurse says that it has mestatesized to his brain. Can anyone give me some light on what I may be seeing in the next few weeks, or does he even have a few weeks left. I know only god knows the exact time he will take my dad, but i am hoping someone can give me alittle info. Thank you all....and God Bless anyone going through this. Diana

mjones2108
Posts: 2
Joined: Jun 2012

I have reached stage iv-a in my liver cancer as it has metastisized to my lymphs, that is as of a little over 2 mos. ago. I have multiple tumors in my liver that are unresectable, they are too large, and they are also invading my portal vein causing a tumor thrombus. I found out this information approximately 8 mos. ago and was not expected to live this long, especially without treatment. Since I have decided on my own to not take the chemo, nexavar, which is the current standard, some doctors disagree, and yet some agree with my decision. Also, I am trying not to take pain medications unless absolutely necessary, though I have them available. I can assure you that without pain control, sometimes it is very painful, but the pain medications cause constipation which increases my abdominal pain, even with stool softeners. I have intense pain in my right shoulder and the right side of my neck, as well as my abdomen. I have tried some alternative therapies to try and alleviate some of my symptoms, but I don't feel that I am winning this war. I am slowing going downhill. The pain attacks ended after a few days at first, now they last longer and come more often. Due to the tumor thrombus, it is possible that I may die suddenly due to esophogeal bleeding from portal hypertension caused by the blockage in the portal vein. I may also die suddenly if a tumor ruptures, if the thrombus ruptures, or if the capsule of the liver ruptures from internal pressure. These first methods of death would be due to loss of blood and are preferable to the others as I would probably just get tired and go to sleep. If it is esophogeal varices, I could spit-up blood. The other causes of sudden death is if part of the clot breaks loose and goes to my heart, my brain, or my lung. These could cause a heart attack, a stroke, or an embolism. If I am hospitalized at the time one of these things occurs, it is possible that I may be kept alive a while longer, but it is doubtful that I would survive even in a hospital setting. These first sudden deaths are only seen in patients with the tumor thrombus (well, except for the capsule of the liver rupturing). The other method, due to liver failure, is much slower, and less pretty. So far, I have not been affected by the hepatic encephalopathy I have heard about. I wonder if that may be more of a symptom of the treatment with chemo as the chemo is hard on the liver. Anyway, when the liver fails in its functioning, it no longer cleans impurities out of the blood. This causes a brain fog, an inability to think clearly, confusion, and possibly, coma. So far I have no apparent signs of liver failure, which include jaundice (yellow skin, yellow eyes, pale stools, etc.), ascites (a build-up of fluids in the abdomen causing the abdomen to swell to very large proportions. The longer I survive without dying from the thrombus, the more likely it will be for me to go into full liver failure. My current prognosis is about 3 mos., but there is no way to tell for sure. It is, however, fatal in most cases and I am almost certain it will be in mine. The tumors in my liver are causing me to feel excessively full due to pressure on my other internal organs, and I am only able to eat small meals currently. Larger meals cause me a great deal of pain. The only symptom of liver failure I may have is generalized pain, the doctor calls it arthralgia/myalgia, joint and tissue pain. This is caused by the build-up of toxins in my blood. It is the normal function of the liver to cleanse these toxins from the body for eimination. Since the tumor is still growing, I am losing weight, I have lost approximately 65 lbs. I have been trying to eat healthy foods such as organic fruits and vegtables in order to keep myself as healthy as possible. I expect if I advance to the final stages in the next few months I will be in a lot more pain, my stomach will swell and my mind will no longer be clear. There is nothing modern medicine can offer but a short extension of my life, while being subjected to the side-effects of chemo. I will allow more pain medicines when I need them, but so far I have been able to stand it most of the time. When I can't, I take small amounts so I don't build-up a tolerance to the pain meds. That way it will work when I truly need it. Some people think I'm brave, some people think I'm stupid. However, I choose to go out on my own terms. I don't want to be a guinea pig or be recovering from surgical procedures the last few days of my life. Some days I feel better and can actually go out and do things, though these days are becoming fewer and farther between. I choose to die of cancer, not chemo or complications from surgery. That is my decision, and I will live or die with it. Sometimes I cry-out in pain, sometime I just cry. Yes, it really hurts bad, sometimes I am doubled-over and cannot get comfortable. But, I am still functioning and I will do this as long as I can. I lost my wife of twenty-six years to ALS almost two years ago. I didn't even know while I was taking care of her that this cancer was probably already growing inside me. The doctors I went to didn't find anything, one even referred me to a psychologist. I guess he was wrong. I wish anyone affected by this terrible disease the strength to deal with all the facets of it. God bless you. m.jones

agpnancy
Posts: 6
Joined: Jun 2012

Hi. I wanted to thank you for sharing your story. My husband was diagnosed with Sage 4 liver cancer a little over a month ago. He won't talk much about what's going on in his mind, so your story has given me a lot of insight into trying to comprehend this.

He had advanced liver disease (cirhossis and Hep C) prior to being diagnosed with the cancer, which has taken over the entire right lobe of his liver, but has refused any treatment for the past few years. His ascites is really bad, he's having TAPs every couple of weeks to drain fluid from his abdomen, but it's building up more quickly all the time. His mental state is deteriorating very fast - he totally spaces out more often and for longer intervals daily it seems. He was put on Nexavar after the diagnosis, but they stopped that this week, because it was doing more harm than good. The doctors don't want to commit to a timeline for his life expectancy, especially since the liver function is failing as much from the cirhossis as the cancer. At the rate he's declining both physically and mentally, I don't expect more than a couple of months, at the most. He's also taking a lot of pain meds, which I know aren't helping with his mental state, but I want him to be as comfortable as possible.

My thoughts and prayers are with you through your struggle, and I applaud your bravery in trying to deal with this.

Keep in touch and let me know how you're doing.

Nancy

slg
Posts: 200
Joined: Jan 2010

I can only suggest you take advantage of every single minute and day that you have. Say all the things you want and make sure you know what his wishes are.
I speak from experience. My husband also had Hep C, Cirhossis and Cancer and was on Nexavar, had TACE and Y-90 and an RFA procedure before they told us there was nothing left for him.
That's when they called in Hospice... He started Hospice on Dec 23rd and was gone on January 14th..
I shope this helps and that's it's not too gloomy for you. I was lucky enough to have someone helping me with what to expect and gave me suggestions to help me after he was gone.
Best wishes.
Sue

agpnancy
Posts: 6
Joined: Jun 2012

Thanks, Sue

We started with hospice care today, and I'm very grateful and relieved to have all their help. I'm having a lot of trouble dealing with how fast he's deteriorating. At the beginning of last week, he was able to hold a conversation with occasional bouts of confusion. The past three days, he's only had a few moments of clarity. I know this is a blessing for him, since he's pretty much unaware of the pain, etc., but I'm having trouble being "ready" to start letting go just yet.

I do have a lot of support from hospice, friends, and family, and being able to vent my feelings in these groups is saving my sanity right now (I think.)

I'm so sorry for what you've been through, but appreciate the support. He's up wandering around again now, so I better go.

Thanks,
Nancy

slg
Posts: 200
Joined: Jan 2010

I so know what you are going through.. I do feel for you. I had mixed feelings in the end. Part of me wanted him to go peacefully and part of me wanted him not to leave me. I was torn. But he was not the man I knew or could remember so as hard as it was it was a blessing. We can only hope they go peacefully, without pain and not alone. I am gratefull that I accomplished all and them some. And I hope you can too. My thoughts and support are with you. Keep in touch.

Kaitk15
Posts: 2
Joined: Jun 2012

Just like you wanted to thank someone else, I wanted to thank you. It's hard when they don't talk about it. My dad also had chirrosis and now cancer. You sound very strong, and it's very motivating to me to be as strong. My dad was refused the chemo pill bc we don't have the money so he's medicationless as he declines. Your story on nexavar gives me hope that maybe my dad wouldn't have benefitted from it anyway. Thanks for sharing.

abackhou
Posts: 77
Joined: Jan 2012

My very best wishes to you and I hope all goes well for you. You certainly have a good grasp of whats happening to you and what may eventuate. I too have secondary liver/lung cancer from the colon primary Stage IVB, DX Apr 2009. Now having problems with Ascites.
God bless you.

Andrew

Mbmissy27
Posts: 1
Joined: Jan 2013

Hi my name is Melissa, my  dad has liver cancer and was diagnosed about two and a half years ago with no complications to date up until two weeks ago,  he has been getting chemo emobilization treatments that seemed to be delaying progressing then My fears were confirmed...my dad is filling up with fluid in his abdomen and they have to start doing paracentisis to drain the fluid. His cancer got worse but he is still eligible for another chemo eMobilization treatment, so there scheduling another one of those too real soon! I'm foggy now because of the shock of actually seeing visually his cancer on the outside! I see you  said you are getting ascites now as is my dad and my question to you is how have things changed since it started? He is about to get his first tap and I'm nervous now! How long can someone continue when the fluid starts accumilating? I'm sorry for you as well, I know there are no easy words to say! I hope you are doing well and would be willing to share with me some insight! 

 

Sincerely, a VERY concerned daughter! Thankyou 

shinmin1500
Posts: 11
Joined: Jul 2012

Dear Melissa,

I am so sorry to hear about your dad.  My husband had done once two months ago for pracentisis procedure but after his new chemo he does not need to do it anymore.  I asked my doctor how oftern he needed to do it and she said every person is different.  My Primary doctor suggested me not to eat too much salt (sodium) and drink more water.

My husband has been improved his health.  Eat more, sleep well and he gains weights.  I hope your dad is doing well after the procedure.  My thoughts and prayers are with you and your family.  Be strong and positive.

Regards,

Shinmin1500

 

kayelynn
Posts: 1
Joined: Aug 2012

Just wanted to thank you for sharing your life living with liver cancer. My brother was recently diagnosed and has several of the symptoms you have mentioned that confirm that he is in the final stages. He is jaundiced and has begun to have swelling in his feet ankles and lower legs. I don't know if this means that his liver is shutting down or if is something else. He is living in a skilled nursing facility where they are administering medications for pain. He has begun to complain about pain in his shoulder and stomach. This post has really helped me understand alot more about what he may be experiencing in the next couple of months. He has chosen not to have chemo. I'm so sorry to hear about your wife dying of ALS. I had a very dear friend die from that horrible disease in May, 2009. I don't know if you are a Christ follower or not, but I do know that my brother has accepted Christ as his personal savior and will be with Him in heaven when he dies. It comforts me to know that we will see one another again in heaven. I hope that you will find that kind of peace. I will pray for you.

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offutt9
Posts: 90
Joined: Jan 2004

Hi! I too was given only 3 months or less to live 9 years ago....my liver had several lesions,,,some very large...I had RFA done...Radio frequency ablation...done laproscopely (can't spell) no hospital stay and it shrunk the tumors..Please read my story called Miracle In Work....Don't give up...I'll be praying for you whatever you decide...But think about talking to your doctor about RFA,,,In Gods Love Barbara

bt1943
Posts: 6
Joined: May 2012

What type cancer was yours?  Is this treatment similiar to the SIR Spheres?  My

41 year old son has liver cancer which originated in the brain.  He has had 5 SIR

Sphere treatments and is scheduled for the 6th one on the 15th.  He has lost a lot

of weight and all his muscle mass.  Still eating some, but I can see him getting weaker.

Will ask his Dr. about RFA.  God's blessings to you.  BT

 

momfriend
Posts: 3
Joined: Aug 2012

Thank you For all your info. My son-in-law was diagnosed in Feb. He is taking the Nexavar and the liver tumors are "stable" The disease has spread to lymph and other organs.
Have you heard about the trial being offered at Sloan? We head there in a couple of weeks.
I wish you all the best. I think you are very brave and hope you will consider the Nexavar.
God Bless you and please stay in touch. momfriend

march00
Posts: 20
Joined: Sep 2011

Hi, do u happen to know the name of the trials at Sloan
Thanks
Nick

nmarchic@twcny.rr.com

momfriend
Posts: 3
Joined: Aug 2012

Thank you For all your info. My son-in-law was diagnosed in Feb. He is taking the Nexavar and the liver tumors are "stable" The disease has spread to lymph and other organs.
Have you heard about the trial being offered at Sloan? We head there in a couple of weeks.
I wish you all the best. I think you are very brave and hope you will consider the Nexavar.
God Bless you and please stay in touch. momfriend.

midnight22
Posts: 17
Joined: Dec 2012

I wanted to see how you were making out. I am sorry for what is happening to you. My mom has advance primary liver cancer and I wanted to know if there is something they are doing for you that they arent doing for her. Hope all is well with you.

PEngel
Posts: 1
Joined: Mar 2013

Thank you for what you wrote. My Mom is going through the things that you wrote about, and it helps me to understand how she feels so that I can support her through it all. She is 91 and has inoperable liver cancer. I want to make her as loved and comfortable as possible as she confronts the coming stages.

Angiepham
Posts: 2
Joined: Jun 2013

Hi M.Jones, my mother is going through the same process as you, but her case is Liver cancer spreaded to the lungs. But the final letter from the doctor is less than 3months to live.  She's extremely n pain and tired and scared. She has ascites. She goes to the hospital 2-3x a week for paracentesis.  She has not turned jaundice yet, but she is swelling up.  Her digestion is poor. she takes morphine tablets as needed.  Her pain fluctuates from good to bad within hours.  She's hoping to die in her sleep.  

My mother is not a smoker or drinker. She is 62 and been battling cancer for 5 yrs. 

cancer treatment center of America (tulsa,ok) helped her for 1 yr, they are very good. 

I wish you better days!! 

 

Angie Pham

jdonald
Posts: 1
Joined: Jun 2013

You are so brave let me start with that.  The thigs you write about have given me so many answers. We found out on april 1st that my husband has liver cancer and they can't do anything. It has spread to his adernal gland too. He tried the chemo thing but not only was it not working but made him so sick. Last week we almost lost him as he started to vomit blood, the hospital sent him home with hospice. He is still here but is week and tired. He is confused alot. So I started to look for answer as to what to expect and stumbled on this web sight. What you wrote has helped me see what may or may not happen. To help me understand what our lives will be in these last days. So again thank you for being brave enough to talk about this. May God be with you and yours.

thesunlady's picture
thesunlady
Posts: 1
Joined: Jul 2011

I was diagnoised in 2006 with liver cancer. I did the same thing as ur mom. Drs. were amazed with no explanation & had already told family I would not make it 24 hrs. but I woke up the next morning ready to eat! They said I need Liver transplant to survive, went for testing & prayed so hard for The Lord to let me know if it was right decission he let me no it was not after they made 3 bad mistakes I then spent alot of time in & out of hosptals, hospice & back to hospital. I had a chance to go to Dallas Methodist liver oncology unit for transplant! Upon arrival I had 3 tumors on liver they started me on chemo (Naxavar)& did 2 chemo implants into my liver!! I got so sick after 6 mos. chemo MRI showed 9 lrg tumors only 10% of liver working said to get things in order might make it 30 days. My neighbor (2weeks later) ran into a lady who had cured herself of terminal lung cancer (alernatively)& she asked her if she could help me. The answer was YES & she did help me!! Learn what I had to do & those 9 tumors turned to 1- 2cm tumor in a month!! Needless to say I am still here with my liver & healthy as can be I also am 58!! DON'T GIVE UP HOPE!! MDs do not know everything!!

Dannielle
Posts: 11
Joined: Sep 2012

How did you do it? My dad has one tumor and a blocked portal vein and they are not giving much hope...

midnight22
Posts: 17
Joined: Dec 2012

Hi Danielle,

How is your dad making out. My mom has primary liver cancer that is also in her portal vein.

Dannielle
Posts: 11
Joined: Sep 2012

How did you do it? My dad has one tumor and a blocked portal vein and they are not giving much hope...

ronin100
Posts: 1
Joined: Oct 2012

I have just been told that I have HCC - liver tumor with cancer on top of HCV and cirrhosis. The tumor is primary and hasn't spread yet.

I've been give 8 months to live (maybe) or with transhepatic arterial chemoembolization using doxorubicin on the glass beads, up to 16 months. It doesn't sound good for me. I'm not eligible for any other treatment and don't know of any alternative protocols that would help me.

It's like everyone has their hand open to take m money and no proof of single cure. I have been relying on God and Jesus in prayer but I feel like the countdown has begun in earnest.

Doe anyone have any information to share like the sunlady in the pool avatar - that I can use to assist in taking to kill this dreaded tumor?

I've had HCV for 42 years and held it at bay with milk thistle and high lignan flax shell. My liver battery is good except that my platelets are low at 69 instead of around 150 (where I think they're supposed to be.

God bless you all and please if you have something to share with me, my email is porschegt@gmail.com

Chuck

Angiepham
Posts: 2
Joined: Jun 2013

my mothers platelet count is 15, for 1 yr, she is now waiting to die. Call cancer treatment center of America. 

 

Pvc910
Posts: 1
Joined: Dec 2012

To the Sunlady: My mother was just diagnosed with liver cancer and your post has given me hope. I am very interested in learning what you did and who you saw. Please email me at pvc910@aol.com and thank you for your post.

rsc
Posts: 1
Joined: Jan 2013

this is to thesunlady i hope you  respond to this My wife is 45 stage IV-a and i am interested in the treatments you mentioned please email me rscole2@sbcglobal.net thanks

Val27
Posts: 19
Joined: Dec 2012

I would like to know what you did to help cure your disease.  My mother was dx with HCC mets to bone 11-12.  She will start Nexavar this monday.  She is also taking flex seed oil and milk thistle.  She had radiation to help her back pain, now suffering from severe heartburn, nausea.  Not eating, has been receiving fluids about 3 times weekly to help hydrate her.  Here is my email address, vmdavis@live.com.  Any information you could give me, I would be greatly thankful for. 

nanajacksonx3
Posts: 8
Joined: Jan 2013

2013-01-19Thanks to all who take the time to post. My husband was diagnosed May, 2012 with Stage IV liver ca w metastasis to lymph nodes. He is on Nexavar and has had 4 chemo embolization tmts of Adriamycin and seems to be doing well. We would like an update and information on your choice of treatment. Hope each of you continue doing well. God bless each of you. Joy

I would lime to say I/we have learnrd to celebrate life each and every minute. Tell those you love how important they are to you and most of all make sure you have a relationship with Christ and He will sustain you.

KurtM
Posts: 1
Joined: Feb 2013

Hello. Thanks for your post. I am treating my stage 4 liver cancer with pancreatic enzymes and diet. Have about 10 to 20% of liver left. I am not certain if this procedure is working, been on it for about 5 months. This is the regimine from Dr Kelly who wrote "one answer to cancer".

 

Please share with me what has worked for you. I have  11 cm tumors on my liver, but doing quite well.

56 Year old Male, diagnoed in June 2012.

Thank you Sun Lady.

Kurt

Juno22's picture
Juno22
Posts: 39
Joined: Feb 2013

Sunlady, you give such hope and maybe I missed it but you didn't share what alternative treatment worked for you.   Please let the rest of us know.   

sohail1578
Posts: 1
Joined: Apr 2013

Hi,

 

My sister is only 40 years old and just diagnosed with Angiosarcoma with stage IV.  Accoridng to doctors it has spread to spleen also.  From next she will be on chemo therapy and doctors are hopeful the she will response good to the chemo since she had no other prior illness and the fact that she is still young.  I am also looking for some alternate therapies also, if you couold please tell me what kind of thereapies did you do to make your tumor shrunk.  Thank you very much for your help in advance.  Gold bless you.

compassion2013
Posts: 1
Joined: Apr 2013

My mom was recently diagnosed with liver cancer (Jan 2013) HCC and had had a surgery where two thirds of her liver were removed. She found out 3 days ago that the whole process started again. She has multiple tumours up to 3 cm in her part of the liver. In addition she has hepatitus C and liver cirrocis. Her alpha feta protein is about 700 (7 is the norm) and her blood tests are off the charts. She lives in Eastern Europe where medical care is awful and cancer patients are treated like they are not people any more.

Do you have any tips, feedback, recommendations....

Thanks

flkhong
Posts: 8
Joined: Apr 2013

Dear Sun Lady,

My husband was diagnosed with liver cancer yesterday, and I am lost and I do not know what to do. Could you please share with me what are the treatments you did? Please help. My e-mail address is flkhong@mac.com

 

Hope to hear from you. Thank you

 

Best Regards,Lian

Enrique
Posts: 1
Joined: May 2013

My father was diagnosed last March with liver cancer as a result of his cirrhosis.  I see you comments about your fight agains liver cancer and your testimony that you were able to overcome this disease.  Please share your experience so that I can help my father, my email address is renriqueamaya@gmail.com.

I look forward to hear back from you.

Regards,

Enrique.

 

Amber3524
Posts: 1
Joined: May 2013

Hi Sun lady,

 

I was wondering if you could please share your secret. My dad has stage 4 liver cancer and I would like him to try ANYTHING that helps while he still has the strength. PLEASE HELP. He is 62 and will start radiation at the end of this month. He has a small appetite but tries to eat, he like to walk around the track but moves extremely slow at doing everything from a lack of energy. He is trying to sleep a lot but me and my mom keep him busy with reading and moving around. PLease help.....

t123
Posts: 25
Joined: Feb 2013

Please let me know what treatments you took that shrunk the tumirs in your liver? Taxoil did not work. They are now treating me with Adriamycin and Ifosfamide. The doctors have given me 6 months to 1 year to live. Any information would help. Cathy

Jennyt69
Posts: 1
Joined: Aug 2013

My mother was diagnosed wi stage 4 liver cancer.  Doctor tells us she can try Nexavar which will only extend her life, if she can tolerate the side affects.  

i'll be staying with her at home but don't know what to expect.  Does anyone know of any literature that can help?

i love reading personal experiences and adire how brave everyone braves am scared and I think if I knew what was coming in the next few months I would be able to help my mother more.

any suggestions on data I can read? Mi think with information and the personal experiences posted here, I can better understand.  At least I hope so.

thank you

Carejay
Posts: 1
Joined: Sep 2013

Hi Jenny,  me and my sister are experiencing the same thing with our dad. Our dad is 63 we found out around aug10th/13 that he had cancer is his Rt. lung which they say spread to 2 tiny spots in his head and a lrg mass in his liver. Because my dad also had a kidney transplant 12 yrs ago and takes rejection drugs it lowers his immune system which made his cancer spread that much quicker. He did 4/5 radiation treatments and was supposed to try chemo afterwards but the liver cancer is just to far to continue. We found out about 3 weeks ago he is going very fast, he sleeps almost the entire day, he is jaundice and so are the white of his eyes, for an unknown reason he ended up with thrush really badly making sores all the way down his tongue giving a burning swollen feeling. Recently he was given a swishing medicine to heal his tongue however he is very fisty on taking it. He is on heavy doses of dilauded which keep him pretty much comfortable. He is able to crack an occassional joke with us and have small amounts of liquid foods rarely a solid. We are just getting hooked up with Hospice aparently they are very helpful to have around in our time of need. I wish you prayers of strength and a hug. If you ever just want someone to talk to my email is jcdurden@hotmail.com. Carrie 

SashaCohen's picture
SashaCohen
Posts: 1
Joined: Sep 2013

My fiance was diagnosed with colon cancer after he was refused a colonoscopy 8 times because doctors say he was too young. I thought I had at least a good 5 more years with him. So he did the chemo and radiation but it seemed the cancer moved to his liver and was there for a while because while away working in the caribbean based on the nature of his job, he travelled to Europe and thats when the swelling of his ankles, knees and legs started. This started about 3 days of a 16 day trip and by the time he got home he was at least 40 lbs less not including the swellings. He went to the hospital for check up and they say his liver was inflammed. I am now in tears as I decided this is not enough. He is now in the hospital with a swollen stomach, yellow eyes, rapid weight loss, vomitting, day dreams (confusion), pain in upper stomach and right shoulder lower blade. He is in so much pain and the nurses/docs says he has only a few weeks to live. I dont know how to come to reality that I will never be able to walk down the isle with the man I am so deeply in love with. I cant sleep, I am depressed, I just want a few more years with him. I know eventually we all have to go but I am just trying to be strong for him.

 

Any word of comfort is greatly appreciated and or good news that he may recover for a little longer.

Sasha

Mckinlyazoid's picture
Mckinlyazoid
Posts: 1
Joined: Nov 2013

I feel for you. My husband has been battling fibromellar carcinoma since he was disgnosed in 2006. We got married less than 2 months ago and recently he started exhibiting signs of the last stage of liver cancer. Swollen belly, jaundice, disorientation, discomfort, etc. it happened extremely quickly seeing that we returned from our honeymoon just 4 weeks ago. I'm angry, hurt, depressed everything I'm sure you're feeling as well. But the best advice I received and try so hard to continue to do when I walk into the hospital is make every minute and second I have with him mean everything.  I try not to cry in front of him but sometimes I can't help it but just live in the moment. Cherish it. Enjoy it. And think positively. Ask the nurses as much questions as possible too. They tnd to be more compassionate and will keep you updated on what you need to know or do.

USCGAUX
Posts: 1
Joined: Jul 2013

MY  FATHER IN  LAW  WAS DIAGNOSED WITH STAGE  4  LIVER CANCER.

THEY  DID A  PROCEDURE TO  BLOCK THE BLOOD  FLOW  TO THAT SIDE  OF THE LIVER SO THE  OTHER  SIDE COULD  GROW

THAT  IT DI . HE  PASSED  HIS STRESS  TEST  AND  WAS  PREPARED TO BE  OPERATED  ON TO CUT  IT  OUT , AND THEY DID A  CT SCAN 1 MORE

TIME AND FOUND TWO NEW SPOTS ON THE GOOD SIDE OF THE LIVER SO SCRATCH THE  OPERATIONFOR NOW,  HE  HAS STARTED A REGIMEN OF 2 MONTHS OF CHEMO 

ONCE EVERY 2 WEEKS, THEN WE  HOPE AND  PRAY THEY CAN OPERATE. I DONT  KNOW WHAT TO EXPECT ANYMORE BECAUSE PEOPLE SAY STAGE  4  IN THE  LIVER , OH  MAN.

BUT THE DOCTOR SEEMS CONFIDENT. WE  HOPE AND  PRAY.  ANY  COMMENTS? PLEASE.

Kingbird
Posts: 1
Joined: Sep 2013

I'm contaminated with hepa b and I feel the symptoms of weakness, headache, muscle aches... I don't know what to be in the last stages...

 

I just want to make sure before I go to heaven that all is well with my family as I depart.Smile

t123
Posts: 25
Joined: Feb 2013

MY BLESSING TO YOU. I understand that you want your family to be taken care if. I too was told that I only had with in a year. I WILL PRAY FOR YOU

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