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just diagnosed with leuk.

Spunkey08
Posts: 1
Joined: May 2003

hey, just got diagnosed with mild leukemia...need someone to talk to, thanks! ~Pam~

Jenn70
Posts: 1
Joined: Apr 2003

I was diagnosed on April 1 with CML. I have decided to take Gleevec for now. What type of leukemia do you have?
Jenn

dee145
Posts: 2
Joined: Mar 2009

I was diagnosed 2 weeks ago with cml. I started 400mg of Gleevec this past Sunday. Had to get something for nausea, couldnt work all week. I am very tired and my legs and joints really hurt. Any suggestions for that? I think I cried the first entire week and I still do but its getting better. Apparently my wbc counts has been elevated for years and family dr said nothing then I switched drs and she sent me to oncologist. He ran all the blood tests and then I got the news. I am still in shock and would love to hear form anyone for support. My e-mail address is dallen145@yahoo.com

janice.copsey
Posts: 4
Joined: Apr 2009

I noticed you were diagnosed in 2003 and prescribed Gleevec. Today, my 48 yr. old brother has just been diagnosed and prescribed Gleevec. He is feeling very hopeless against this disease.

How have you been feeling over the years and how are you today?

I would appreciate hearing from you or any survivor of CML at my personal email

janicecopsey@shaw.ca

Thanks a lot.

Jam
Posts: 6
Joined: May 2003

I was diagnosed with leukemia (CLL) on 1/15/03, still getting used to the idea. What kind do you have? This seems to be a very helpful site, think we all need someone to talk to.

krissy
Posts: 6
Joined: Mar 2002

I was diagnosed with Leukemia (ALL) on 1/18/02. I have been a leukemia survivor for about 14 months. I will answer any questions that you have.
Kristi

yess
Posts: 1
Joined: Jan 2010

Hi Kristi
Great to see you are doing well
Would like to know how are you going
and are you on any medication still
Regards Anne (ALL - diagnosed in June 2009)

momofone22
Posts: 3
Joined: Jan 2010

Hi Anne and All,
My son, who is 22, just got diagnosed with ALL the day after Christmas 2009. (He thought he had sprained his back.) We are still here in the hospital. His first round of chemo LINKER protocol did not diminish the lymphoblasts as much as the doctor would of liked, therefore Dr. initiated Hyper CVAD chemo treatment for the next three days. Does anyone have experience with this? Other than being tired and sleepy, my son is doing well.
Martha.

kasiecakes
Posts: 5
Joined: Feb 2010

Hi Kristi,

My name is kasie Smith and i am doing a paper on cancer survivors. I was wondering if you would be interested in taking an online survey for my paper. I understand if you do not want to or you feel it is private. I respect you and what you have gone through.

Thanks so much,
Kasie Smith

tiggertoo's picture
tiggertoo
Posts: 31
Joined: Mar 2003

HI! I was diagnosed with ALL 3/1/02. I would be happy to help you any way I can!! Many good things have come out of my journey with cancer. Feel free to email me on this site or look me up in the chat room, I am in most evenings, 8 - 11 pm eastern time.

carstep
Posts: 2
Joined: Apr 2003

don't know if you got other msg. - me, too

JaWnM's picture
JaWnM
Posts: 6
Joined: May 2003

Well I was diagnosed with Leukimia (ALL) back in Jan of 83 when I was 8 went through 4 years of Chemo and been in remission lets see, 17 years this Novemeber. I am now 27 and will be 28 this June. I'm always willing to help.

mominmn
Posts: 1
Joined: Jan 2010

Dear JaWnM: Please excuse my prying, but am very concerned about my son who is also an ALL survivor. He also completed a four year treatment plan and I am concerned of fertility/normal male growth-productive complications with the chemo and steroids. Assuming this may have been a concern of yours as well, can you direct me to a resource or otherwise provide information. Good to hear you are a long time survivor, you give the rest of us hope. Thanks

charlybrn's picture
charlybrn
Posts: 7
Joined: Feb 2010

Fertile Hope is a fantastic resource www.fertilehope.org

mr8cl
Posts: 9
Joined: May 2003

Hey Pam - sorry to hear of your Leukemia diagnosis. Can I help you in any way? I'm an AML survivor, back in remission now for 7 months.

CathyNY
Posts: 8
Joined: Mar 2003

Hi all! I was diagnosed with AML 5/20/00, went into remission that same month and have been ever since. Thanks to my bone-marrow donor from Wisconsin, who I have travelled to see twice since Oct, I am fine! I go for check-ups every 4 months now. Transplant was 3/6/01. I'll talk to anyone who wishes to!

Cathy, NY

tayjokids
Posts: 3
Joined: Nov 2009

hi cathy i was just wondering your cytogenetics my husbands is the m2 that is amazing they say if you stay in remisson for 5 yrs you are cured so you are cured god bless you any words of advice for my self and my husband he was dx the beginning of oct and is still in the hospital how many rounds of chemo did you get?

kasiecakes
Posts: 5
Joined: Feb 2010

hi,

My name is kasie Smith and i am doing a paper on cancer survivors. I was wondering if you would be interested in taking an online survey for my paper. I understand if you do not want to or you feel it is private. I respect you and what you have gone through.

Thanks so much,
Kasie Smith

dszabo's picture
dszabo
Posts: 16
Joined: Jul 2002

Hi pam, my name is danielle and i was diagnosed w/ ALL on 11/2/01, at the age of 21. im now 23 and still goin through the maintence but im doin great! if u ever wanna talk u can email me at dszabo2000@msn.com or talk 2 me online....my s/n is dszabo2000. ur in my prayers.

kasiecakes
Posts: 5
Joined: Feb 2010

Hi Danielle,

My name is kasie Smith and i am doing a paper on cancer survivors. I was wondering if you would be interested in taking an online survey for my paper. I understand if you do not want to or you feel it is private. I respect you and what you have gone through.

Thanks so much,
Kasie Smith

Mscortney
Posts: 10
Joined: May 2003

Hi Pam.
I was diagnosed with ALL 1983 and have now been in remission for 19 years. I would like to help if I can. Good luck.

kasiecakes
Posts: 5
Joined: Feb 2010

Hi,

My name is kasie Smith and i am doing a paper on cancer survivors. I was wondering if you would be interested in taking an online survey for my paper. I understand if you do not want to or you feel it is private. I respect you and what you have gone through.

Thanks so much,
Kasie Smith

60Patrick's picture
60Patrick
Posts: 6
Joined: Jul 2007

What type of leukemia do you have? I've had CLL for about4 years. Get in touch if you like.

kasiecakes
Posts: 5
Joined: Feb 2010

Hi Patrick,
My name is kasie Smith and i am doing a paper on cancer survivors. I was wondering if you would be interested in taking an online survey for my paper. I understand if you do not want to or you feel it is private. I respect you and what you have gone through.

Thanks so much,
Kasie Smith

abbiabbi
Posts: 2
Joined: Jun 2009

I was dx on May 04 2009 -- My blood test shows a very rare form this is all my Dr. said so I went for a bone marrow Biobsy on May 27 -- will find out in the morning June 03 the result-
I tend to deal with this with as much humor and grace I can -- The Doctor who did my biopsy was really nice he explained it and then asked have you ever had a bone marrow biopsy and I simply replied have you ever done one before (I am a nurse) to say the least they loved and so did the Dr. He laughed and said yeah-- I never did go to sleep during the procedure so they did it anyway I did nap in between the digging and the sticking -- a question -- What did your Dr say or tell you would help with the joint pain---sandra

jayceeinbedford
Posts: 5
Joined: May 2009

I had my third bone marrow biopsy about 3 weeks ago. My doctor prescribed Norco 10/325 when I left the hospital, so i took that for the pain. I have never been in so much pain as the last biopsy. It hurt so bad, I had no drugs with me and had to wait through traffic and lunch in the DFW area. I thought I would never get to my drugs. I still have some pain and numbness feelings once in ahwile. It's really weird.

I hope you got your results and don't have to go through another one. I would rather have another natural childbirth than a biopsy. And, that's saying something, hehe.

I am using humor as a defense too. It really does help.

Good luck,
janet

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