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Inflammatory Breast Cancer Stage 3

Ecarol
Posts: 1
Joined: Apr 2003

My sister just found out she has ibc stage 3 and had her first chemo and she needs someone to talk to, how do I find this out for her, thanks, a caring sister

mc2001
Posts: 344
Joined: May 2003

Hi,
I recommend the chat room on this web site. THere are a lot of great people in the chat room and I am sure there is someone that would like to help. God bless.

tutu
Posts: 2
Joined: Jun 2003

hey its now 7-1-03 Tuesday 10:57am west coast time, how do I get into the chatroom? been trying and trying and simply cannot...tis believed that I have IBC and need to chat please?

maggiepogo's picture
maggiepogo
Posts: 5
Joined: Apr 2003

I was diagnosed with IBC in October, 2002. I went through 4 months of chemo and just had surgery in April. I will be having more chemo in a couple of weeks. I am on the chat of this site and will be glad to talk to your sister. There are a lot of great people on that site that can answeer any questions that you have. As far as my chemo I did a clinical trial of Epirubincin, Gemzar and Taxotere. Made me very tired and my white count dropped and I was anemic. Although, I did not like going to chemo I made friends that will probably be life long. The doctor and chemo nurses were wonderful and really cared about our needs. God Bless You. My user name on the chat is Maggiepogo.

matthatter1127
Posts: 3
Joined: Mar 2004

I read that all inflammatory breast cancer comes in as a Stage 3 because there is always lymph node involvement by the time they find it. I was diagnosed in January and have had two chemo treatments. Had a PET scan and am still waiting for complete results, but know it is in lymph nodes under my arm.

johnS
Posts: 4
Joined: Mar 2004

my wife has had inflammatory breat cancer for two years now I would be only to pleased to talk with you please email me via this site. I sometimes go on the chat room under the name of johnS Please do not hestitate to email me with your email address and I will reply. Regards John

kathrynm
Posts: 1
Joined: Mar 2004

There are 2 sites specifically directed to those with inflammatory breast cancer and their caregivers. They are ibcresearch.org and ibcsupport.org. Both of these have active email lists and searchable archives. I was diagnosed with IBC in 2001 at age 54 and these lists and their members were like a lifeline to me. Please take a look at them.

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