CSN Login
Members Online: 15

neuroblastoma

Aquagirl18
Posts: 45
Joined: Apr 2003

Hi everyone I am new here. I am 23 years old and a survivor of neuroblastoma. I don't know very much about the type of cancer I had except that is a rare childhood type of cancer. I will appricate anyone's reply to this message and I offer my support as well.
Aquagirl18

joev
Posts: 1
Joined: Apr 2003

hi auquagirl i just was dx last wed apr.16 that i have a olfactory neuroblastoma tumor.my surgery is sched. for may 5 and im very much afraid
when did you have yous and what was it?

dancer21
Posts: 18
Joined: May 2003

hello joev,
Ive just read you were due to have surgery last month. How did it go? I had major surgery to remove a large adrenal tumour, that turned out to be ganglioneuroblastoma. Still having tests to see what treatment I need. I hope you have/are recovering well. I would like to hear how your getting on, perhaps compare notes! All the best
dancer21

AJ70
Posts: 1
Joined: Jul 2003

Hi!
I'm a neuroblastoma survivor myself. When I was about 3 or 4 years old, I had a monster trying to invade my kidney. I had surgery & chemo to kill it. Since then, I haven't had any relapse of that horrible monster. I don't know much about the chances of a "relapse", but I pray I won't develop any other type of cancer again. Unfortunately, I had a reaction to the chemo drugs. I'm 32 now & I've been having problems with "memory lapses". I was wondering if you had that problem too? I also was in "special education" classes when I was younger & in highschool too because during my treatments, I was delayed in learning the necessary subjects. Also, how are you feeling too? I guess that's about it & please e-mail me when you can. God Bless! Angela "Matthew 7:7"

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network