Apr 19, 2003 - 2:02 pm
I was hoping to hear from some other survivors of pilocytic astrocytomas. My niece was diagnosed at 9 and underwent surgery to have the tumor removed; it was low grade and considered benign. She did not need chemo. or radiation afterward, the doctors believe that it was completely removed (99%). She was in a coma for a month after surgery and when she awoke was unable to speak, eat, walk, daily basic functions were gone. It has been 1 1/2 yrs. since her surgery and she is recovering well, walking, eating on her own,talking, etc.. Her balance is so so her memory is what they refer to as "swiss cheese effect" because there are alot of holes in her memory. What I want to know is if anyone has survived from this tumor and how there recovery went. We are told recovery takes years. We hope and prayer every day that she will have a full recovery and that this tumor never shows up again. I pray for all of you who have gone down this road; it is truly a heartbreaking and life altering experience. God bless and watch over you and your loved ones.