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hodgkin's disease childhood cancer survivors
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Apr 17, 2003 - 1:56 pm
Dear all, I wonder if there are any childhood cancer survivors of hodgkins disease. I would like to write to you, as I am a survivor myself, and am new to this. Thanks |
Joined: Feb 2013
Hi! I have just recently startedon this site and it was nice to read of someone else going through the exact same thing that I am right now! I had radiation thereapy for HD in 1983 and I am suppose to be having surgery to replace my aortic valve with a mechanical one and replacement of 2 arteries. Did you have this done? They aren't giving me great odd of "getting off the table". Any insights you can tell me would be greatly appreciated. Thank you!
Joined: Jun 2011
I had my aortic valve replaced last August by catheter, like an angioplasty. Earlier they did an angiogram to determine that my arteries were sufficiently clear to allow for that procedure. Transcatheter was my only option, as they didn't think my sternum- because of the radiation treatment- would knit together again after open heart surgery. I had a team of doctors at the University of Washington Medical Center in Seattle. The first two I met with gave me all the bad news of complications and risks, perhaps leaving me feeling like I wouldn't get off the table. But the third doctor was older and more experienced and he declared there was better than a three in four chance that I'd come through just fine. "I'm going with that!" I said. And my procedure was a miracle. It's been hard to get my old strength back since then, but my pumper's working like a champ. I have energy!
So, Nella, maybe you just haven't yet found the person who will give you the good news, that odds are best everything will go just fine.