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Vulvectomy

VFisk
Posts: 3
Joined: Apr 2003

I am new here. I had a LEEP done in '93 and didn't think anything of it. My Dr. was not concerned so why should I be. I had a vulvectomy on 03/27/02, the right side. It was squamous cell, skin cancer. I just had another surgery on 02/07/03 for the same thing, this time laser and 2 tumors on the left and 2 tumors on the right. There is alot gone now and I am having a hard time coping. Sorry for the horrible spelling. I know I am not alone, but would like some inspiration.

WendyD
Posts: 7
Joined: Mar 2003

First of all, YOU ARE NOT ALONE> That is what I found to be one of the worst things aobut this cancer.
I have had VIN III on and off for a while now, actually had a big biopsy taken yesterday,a nd waiting on the path report. Email anytime for support!

VFisk
Posts: 3
Joined: Apr 2003

Thanks for the reply WendyD.

dbalexis04
Posts: 1
Joined: Jan 2004

Hi WendyD! I am new to the site and am in need of some support. I was diagnosed with vulvar cancer in Sept. 03, had a radical vulvectomy on 11-20-03 and then spent 30 days in the hospital due to complications. I went into this with the Dr telling me about 4-hours for surgery and ended up with 11 + hours of surgery due to the extent of the cancer. I had changed OB/GYNs this year due to insurance, after seeing the same Dr for 15 years. He told me I had hemmeroids and I trusted him. God was I wrong. As soon as I got on the table for my new Dr she asked me how long I had had the sores, when I replied with "you mean those hemeroids?" She replied "honey these are not hemeroids." I have been thru hell and back since and been off work for 2 months now and not sure when I will be able to go back. My biggest fear after looking in a mirror at my bottom I am scared to death that no man will ever want me again once they see how awful I look. I want to know if there is any such thin as normal life after any type of female cancer and whether I will see that normalcy again. Right now I am just trying to take one day at a time, but some days are really rough. I am blessed with a wonderful circle of friends who support me and tell me everything is going to be O.K., but they have not walked in my shoes or had any type of cancer and sometimes I feel they are just placating me. I would dearly love to have someone who has been there, done that to talk with. Some nites the tears just roll and tonite is one of those.

angel813's picture
angel813
Posts: 6
Joined: Jan 2002

Hi...I want to tell you not to worry about men wanting you. If they don't ..for that reason...you don't want them. I had my left labia removed and part of my clitoris in 1973 from rhabdomyosarcoma at the age of 16. I have been married 3 times since then and have had 5 kids, 3 grand kids now.I was already sexually active at 16 and just did not tell them...I hid myself. That was pretty tricky at times. When I became an adult I would explain to my partner what had happened and I had no problems. Has anyone told you that you can have plastic surgery to rebuild? If you have any way of getting funds ...it may make you feel better. Peace..Angel

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