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Anyone else had lymphoma in the eye area?

Teacher03
Posts: 10
Joined: Jan 2003

I'm newly diagnosed with extranodal non-Hodgkins lymphoma. Mine is on the conjunctiva of my right eye. My doctor doesn't plan to do any more surgery than he already has - a biopsy - and I will have radiation treatments to zap the cancer.

I've had a CT-scan, which showed no other signs of lymphoma anywhere else, and a bone marrow biopsy, which showed no lymphoma in the marrow. My next step is to meet with a radiation oncologist this Wednesday to discuss treatment. I'm hoping the doctor will also get my treatment scheduled at that time. I'm ready to have this "freeloader" zapped out of me!

I'd like to hear from anyone who has been treated for this type of lymphoma - particularly someone who's had it in the eye area.

Thanks,
Teacher03

VincentC
Posts: 5
Joined: Mar 2010

For what's it worth:

http://jco.ascopubs.org/content/early/2012/07/16/JCO.2011.41.4466.abstract

"Chlamydophila Psittaci Eradication With Doxycycline As First-Line Targeted Therapy for Ocular Adnexae Lymphoma: Final Results of an International Phase II Trial"

Best regards,

Vincent

IN_Denial
Posts: 1
Joined: Jun 2013

I have been following the discussion you generated 10 years ago about your lymphoma.  I hope you are doing well.

It has been helpful reading these posts as I have been struggling with my recent diagnosis. I hope to hear from others and get some words of encouragement.

I plan on having radiation and then chemo within the next few weeks and pray that the side effects of the treatments are not worse than my symptoms.

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