- Search CSN:
- Members: Login to search all areas
- Not a member? Click here to search public areas
Watching and Waiting
|
|
Dec 11, 2002 - 11:59 am
Hi I am new to this board. I am a 46 year old female who was diagnosed with low grade lymphomia in January 2002. I was scheduled for 6 months of Chemo but only completed 5 as my small intenstine ruptured from the site of a tumor and I had emergency surgery to correct this. My main problem is that during the last CT scan my oncologist stated there had been changes in my stomach (this is where the majority of the tumors were) but they don't know if this was due to the surgery or not. Has anyone else gone through this? |
Joined: Sep 2002
Hi Wendy, Not a whole lot goes on this board. I was 50 when diagnosed with low grade lymphoma. I haven't had any treatment as yet. It is all confined to the lower abdomen. I haven't gone through anything like you are describing. I had laproscopy surgery on the abd. to diagnose the CA. My oncologist says we are going to wait and watch. No growth for the last few years. Keep me informed on how you're doing. I would like to keep in touch with someone else close to my age with low grade lymp. Thanks, Sandee
Joined: Mar 2003
Hi,
I was 49 when I had my first lympnode removed. Then another 4 years later, another 1 year later. All were diagnosised as follicular hyperplasia. Then within a month of the last, on 11/24/2002 I was diagnosised non hodgkins lymphoma and am looking forward to my last treatment of chemo and Rituxin. I think they used the wait and see method on me for 5 years. It actually was a relief to finally be diagnosised and treated. I do think it's interesting to note that there are so many young people with lymphona. When I go to Roswell, it is mostly our age group.
Good luck to you with prayers your way,
Kathy
Joined: Mar 2003
Hi,
I just signed on today. I'm 52 year old male and was diagnosed with with follicular b cell lymphoma stage IV in September '02. Since then I have been through 2 cources of rituxin with a little shrinkage. I have tumors in my neck adomen groin and arm pits. I started on CVP which is chemo, vincristine, and predisone. So far I have had no ill effects from the chemo. Have not lost my hair and have not had any nausea. The secret there is to take anti nausea medicine. My blood counts have been normal through out my tratments. After two treatments I have about a 40% shrinkage in my tumors. They took me off the vicristine after two treatments as I lost all feelings in my finger tips.
The worst part of the treatment has been the five days of pred that they have me on. It gives me steriod rage. I could probably win the war by myself when I'm pred. I do not like it. I will be rescanned after one more treatment and then the course is to have two more treatments and be rescanned again.
I survived a couple of heart attacks when I was 46. I look at this disease as just another thing to putr on my to do list. My treatment days are my cancer days and I devote that day to feeling puny and sorry for myself if I choose. From there I go about my life as usual. I'm trying to control the disease nto the other way around.
My inspiration has been my neighbor. I live in a high rise in Chicago. Four years ago he was diagnosed with stage IV lung cancer. They give him 6 months to live. I still run into him today on the elevator.
I'm interested in learning more about the long term effects of this disease. I have not found an awful lot on it out there.
Joined: