Nov 25, 2002 - 10:48 pm
Hi. I'm 21 years old and was diagnosed with a rare bone cancer called spindle call sarcoma in November of 2001. I went through 5 months of chemo then they had to reconstruct my leg when the tumor was removed. The tumor was in my upper tibia and most of the bone had to come out. It was replaced with a titanium rod along with a total knee replacement. I am now curently going through follow up chemo because the tumor was only 40% destroyed when it was removed so it has a higher chance of coming back. On the positive side i had the surgery in late May of 2002 and I'm already walking again! I am looking for anyone who has been through something similar for some feed back on how they are doing and what too expect. Also some hints on controlling nausea would help because I still can't find anything that works except stuff that knocks me out.