I was recently diagnosed with choroidal eye melanoma. I had no warning except for the 2 weeks before I went to the eye doctor. I went, thinking I needed glasses. I'm on the computer all day at work and my vision in my right eye was getting blurry. I also started having headaches above my right eye. When I went to my optometrist he said I had a detached retina and he sent me to an opthamologist who then referred me to a retina specialist, because he saw a tumore growing out of my choroidal layer of my eye. I was then sent to a specialist in San Francisco. My only options were removal of the eye or Proton Beam radiation. I go on monday for a week of treatments. As you can see this has totally turned my world upside down. I've experienced Sadness, Anger and Optimism. It's been hard to work or enjoy activities with my children. I'm young and before this, had never heard of this cancer before. All my tests came back and the cancer hasn't spread anywhere else, yet. I had to wait for three weeks from test before radiation and this worried me. What if? I'll have to go to the doctor and oncologist for the rest of my life. First at 6 weeks, then 3-4 months and then every six months for five years and then yearly thereafter. What I'm having a problem with is waiting for the test results. I feel for the most part so positive. Waiting for the test results has brought me to my knees. Everything in life that used to be important to me isn't anymore.
Does anyone else have this cancer? If so maybe would could talk. There isn't a support group in my town and my treatments are a 9 1/2 hour car ride away. The longest trip in more ways than one.
I'd love to here from anyone else that understands. Thanks :)