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Non-Hodgkins Lymphoma

kaylennon
Posts: 1
Joined: May 2001

My 23 year old daughters has been diagnosed with Non-Hodgkins Lymphoma, small cell, non-cleaved, stage III-B. She is currently in Round II of chemotherapy and is having a very difficult time with the nausea, etc. The chemo is very intensive and she starts a new phase every 21 days. She needs 8 rounds and there are 2 phases of each round; IA, IB, IIA, IIB, ec.

If someone out there has also had this form of Lymphoma, please contact me. I would really like to hook up with someone else that has undergone this disease or treatment and even the caretaker of an individual.

Being the caretaker is sometimes even more difficult than being the patient, I think.

Thank you.
- Kay

lesmeza
Posts: 1
Joined: Apr 2001

Hi, my name is Ariane and had non-hodgekins lymphoma stage 3 in 1998. I had radiation everyday and chemo (chop) every 3 weeks. I had all kinds of reactions, extreme fatigue, kidney like infections, bowel problems, infections in my mouth, under my breast, on the side of toe and my skin was hanging, I couldn't eat, I was nauseated, I also had a blood cloth in my right upper leg. I did kept myself neatly every day, I used yogurts to eat and relieve my bowels, I had hemoroids, I just used supositories and ointment A&D. The infections, the doctor gave me ointments, I took at least 12 medecines until finally I stopped some stereoids and felt better without it. To eat better, the doctor gave me MAGE, a milky liquid, it worked right away, I was not hungry but would eat anything in front of me. I became anemic, therefore they gave me shots in my tommy. With all this I tried to hold a phone to say hello to people and I got a walker and paced the floor most of the day, that helped me a lot. I got some nice little bonnet to go out grocery shopping and scarves. Well, as you know it was hell everyday and the loneliness of not knowing what would happen to me, not going out much. I started walking outside and sat in the nearby park 2 hrs at a time. I tried to do things and just look forward to when I would stop the Chemo. I did, and I was out swimming 3 weeks later, then work again. I am now 68 yrs. old, I go hiking, recently I went to Yosemite, CA and went up the Verna fall. I traveled to the Rockies and now I am going to Ireland. So, you see, your daughter will be OK. We must try to be active and eat good healthy foods and have goals. My lymphoma was as big as a grapefruit on my lower spine. The pain was awful when we didn't know it was cancer. I had gone 2 times to emergency and they would not treat a "backache", I had driven there more or less 15 miles to the hospital at night and stood against a wall for 3 hrs waiting for a doctor. That was El Camino Hospital in Sunnyvale, CA. My recommendation is that you are young and you need to not despair, be as active as you can and in spite of your medecine have a tiny bit of red wine sometime, I am French and let me tell you that it helped my mental state to do the things I use to do. A big hug to your daughter...Ariane

KC1
Posts: 1
Joined: Mar 2003

Hi Kay My wife was diagnosed with non hodgkins in sept 2002. She was told she needed a miracle to survive it was that bad.She has undergone 6 chemo treatments and all looks good.She is a very strong individual who never looked back when she was told. Her response to her doctor was let's get started I have to get rid of this thing,I have to go back to work and help raise a grandaughter. I know not everyone can do this but I believe it was that attitude that got her to this point today.She will be checked the last week of this month and her Doctor's say they haven't seen anyone respone so well to this type of treatment which is for reoccurring cancer patient's.She feels she will be cancer free and her Doctor's are also very expectant of a good report.I know it is hard to have to sit back and wait to see what is happening and never knowing really how well the chemo is working,also the hair loss the sickness and all that follows.But words of encouragement and support, patients and love will prevail over all else.

klogan
Posts: 1
Joined: Mar 2003

Dear Friend;
As I read your letters I can only think back (as you will some day, I know) about my veture with lymphoma. The year was 1980 and was diagnosed on my 38th birthday. They found a tonsil to be malignate and used 35 radiation treaments to shrink the tumor. I couldn't receive chemo at time because of some liver damaged caused by an over excessive use of antibiotics prescribed by my GP. Of course, the cancer spread to other parts of my body in the form of no-hodgkins lymphoma. I transferred to a hospital closer to home and was given a 50-50 chance. Back then that was heaven to me. I remembe the same chemo that you spoke about, CHOP, and remember the times of nausua and mouth infections, pain, loss of my hair(now I am natually bald and think nothing of it) and the mental anguish that one goes through. If only I would have had a friend at that time that understand my feelings......I took 6 months of treatment and here I am today. There were many days that I did not think that I would be here today sharing this with you. I can't tell you how to feel or what to think but I can tell you that there is light at the end of this dark tunnel. Hang in there, have faith and if you can find one once of strength use it to your advantage....
I look at things differently now since that expierence and reach out to those now going through it...let me know if I can help.
God Bless You!
Kenn

stillpam
Posts: 2
Joined: Oct 2005

Kay:

I am not a cancer survivor, but a caregiver. My husband was diagnosed at age 48. His cancer is also stage III, with the small cleaved cell follicular Non-Hodgkins lymphoma diagnosis. I am hoping that your daughter is doing better. This message board is quite old, however. If you'd like to share -- please e-mail me.

Thank you.

blonndi
Posts: 3
Joined: Oct 2005

My Ex-husband is also dealing with NHL. We are 4 months post stem cell transplant. Im the caregiver, helps the kids and him deal better. Hope your husband is doing better. Its a long road and I wouldnt wish it on anyone. Prayers to you and yours.

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