Jul 07, 2002 - 11:20 pm
I have been lurking here for awhile now- appreciating all of you and your knowledge and support! Thank you to everyone who writes in- those who share and those with the important questions. It all helps us out here.
I am currently half way through my chemo treatment. Next will be radiation (and then tomoxifen)which I hope to start third week of August if we dont get held up again..we already lost a week because of neuprenia problems. I had to start getting neupogen shots so that this cycle the numbers wouldnt drop even more dangerously low. I dont know what "normal" is like really- as far as how I feel from treatments. The first cycle was when I came down with a horrendous sinus infection- with temps around 100.5- 101 - so that was fairly serious. Then this last while I have continued to have low white blood cell counts- hence the shots. This past week though has been a MAJOR improvement- mostly because my head isnt hurting so badly (chemo brain...ugh!) and my stomach hasnt been hurting so badly. SO- I started thinking...maybe I could manage to "run" again- right before the diagnosis, I was running at least three miles a day and even planning to maybe do the Chicago Marathon (or more realistically- at least the HALF-Marathon!!) with my daughter. I was even getting sponsors so I could do the Avon BC 3 day from Kenosha to Chicago in the name of a friend! I was really trying to watch my health issues and nutrition,etc. Some of my family finds it so ironic that I should have this happen when I have been so careful to try to live clean and healthy. I had a nice routine and that was trashed when I had to start with the surgeries. (I had three in about the same number of weeks- lumpectomy/biopsy-partial mastectomy/lymph nodes/install venous cath)Then the chemo and ugh factors and sickness associated with that. Oh..and they had also found my thryoid was whacked out again- I am hypothryoid- so that had to be adjusted- which made me even more run down and tired, I think. But now I am thinking MAYBE just maybe I could try to do a little exercise each day. The last three days I have managed to get in two miles or so- walking and running on treadmill- or more on the recumbent bike. I cant go outdoors because of the ozone warnings but that isnt problem because I have equipment at home plus I joined a health center a few years ago because of other health problems- I am supposed to do cardio and weightlifting regularly because of those. ANYWAY...my question- yes there is a question in here- is whether anyone else has or is doing a regular program of any kind and how do you/they manage this around their treatments? I just know that I need to do this- my skin feels so different and my muscles aren't so firm. Every thing I read indicates that nutrition and exercise are very important, but I am frankly amazed and optimistic that I can even think about this!
Any thoughts would be appreciated.
Also would appreciate hearing from anyone that has a porta cath- I have been told this will stay in for two years- anyone else been told same? Mine is installed under my collarbone on opposite side to my BC site.
And since I have already rambled so long...wanted also to talk about hair loss. It was awful when it happened- not like I thought it would be from what I had read. My head hurt a lot and it was too creepy- I would touch my head and you could feel the hair...like...MOVE... ewwww! But it isnt so bad now and I have adjusted- most of the time I dont bother around the house with anything- and my kids have been cool. I just think that while I was right to cut it from above shoulders to "pixie" length- I needed to go the extra step and have it buzzed to one inch all over- and I recommend that to anyone contemplating loss. I got a beautiful wig and another hair thing that can go under a cap- but mostly I use scarves- just normal ones- small squares I guess. It doesnt bother me- and it is cooler. Oh- and I didnt lose ALL the hair- just most of it. Dr said maybe the rest wouldnt fall out but I dont care any more whether it does or not. If it doesnt tho- I should get it cut to same length.
Night sweats? I get cold all day - then at night I have to lie outside the covers most of the time and I wake up a lot.
Well hope those are some discussion points :)
I have spent so much time thinking of the scary things and the process and treatment that it is nice to think about something more frivolous. I would love to reclaim some of my more regular life again.
Hugs to you all