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Bone Cancer as a secondary cancer to Breast Cancer?

prayerangel
Posts: 150
Joined: Jul 2002

Was wondering if anyone got bone cancer after having breast cancer, how did they find it, was your blood work normal, how do they classify it and what were your options?

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melissab
Posts: 2
Joined: Feb 2001

I had a very good friend who had bone cancer secondary to breast. Her doctors said that it was from the radiation she had received years earlier. She discovered it by abnormal blood tests taken after she broke her collar bone. It had weakened as a result of that being where the cancer occurred.

bekah22
Posts: 1
Joined: Mar 2003

hi my grandfather just pasted away a few months ago b/c of bone cancer, i was very close to him and i would like to learn more about this cancer... i would really like to talk to some one!

Peach06
Posts: 2
Joined: May 2003

My husband just died in January due to bone cancer as a secondary cancer to Hodgkin's. After radical treatment of Hodgink's in the early 80's, the chemo had a devasting affect on his bone marrow. His symptoms began as fever, night sweats, chills and lumps under the skin. He was not correctly diagnosed until he had a bone marrow biopsy in mid-August. The bone marrow transformed radically into a full-fledged Lukemia that I was told was uncurable as it was caused by chemo. Hope this is not your case.

donnajazz
Posts: 2
Joined: May 2003

I now have breast cancer and just got my left breast removed. but my aunt also had breast cancer and it got into her bones and she did not make it she lived about 5 years total. But they said she didnt find it earlier enough.Hers also started with breast cancer. I have been terrified I am only 35 with two small children and Im scared everyday

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hummingbyrd
Posts: 965
Joined: Sep 2002

Hi, I'm from the breast cancer site, came nosing around over here because I have bone mets. My breast cancer was diagnosed June of 2000. I have been diagnosed with 2 bone mets, August of 2001 and Oct 2001. I found mine w/ a bone scan, asked for it because I was having mild pain, that just wasn't normal for me.
I have a website called Conquering Cancer Through Christ. It's at www.urcctc.com we have a message board so if anyone wants to come talk you're invited. God bless you all. hummingbyrd

ggbozz
Posts: 2
Joined: Aug 2009

thanks for your site,,just underwent stereotactic biopsy/3 new sites left breast===also found in thyroid and gallbladder..God has the Plan,,and I am positive and have a great support Buddy and group..

1maladywcancer
Posts: 6
Joined: May 2010

Yes, God has a plan for all of us. Some have to take the hard road. But with faith in Him we all will make it to a softer path. Hang in there my prays are with you.

HollyT
Posts: 6
Joined: Jan 2004

Yes I had Breast Cancer in 1997. I recently am diagnosed with 5 sited bone mets. I went in for my normal bone scan (yearly). Then they did a CT and MRI. Then a pet scan with bone bx. It is a good maintenance plan to have a bone scan yearly. Sometimes you may have to fight with your insurance company but it can be done. Holly

Lax1mom
Posts: 2
Joined: Mar 2004

HollyT--How are you doing now?? My sister was dx with Stage IV Breast cancer in 1998.. she is in chemo now for bone marrow involvement, age 50
Are you currently in treatment.. and what? God bless you!

Gabe47
Posts: 1
Joined: Mar 2004

I was told I had bone cancer at the same time they found out I had breast cancer..the tumer is under my left armpit..and they can not remove it.. I am stage IV

1maladywcancer
Posts: 6
Joined: May 2010

Did you hand and arm go numb?. I also was told They could not remove the ones under my arm pit. or would have to take the arm. NO way. I'm on pill form chemo. 50% swrink since I started in March went back for check up in June thats when they said the meds are working.
What are you taking to swrink them?

pegalina
Posts: 42
Joined: May 2013

Hi, my name is Peggy, I'm 48..when I was 42 was diagnosed with stage 3 breast cancer..went thru chemo, surgery(double mastectomy & complete hysterectomy) then radiation..my question is..I had 17 lymph nodes removed from my right armpit..now my right arm goes numb..hand is cold..my doctors have done the bloodwork..there is no elevation of the cancer marker..I'm not stupid..yes..maybe I over used the arm..but..I'm just sick & tired of doctors..what was your final diagnosis?

fernandez12568
Posts: 1
Joined: Nov 2009

I had imflamatory cancer had 32 radiations and 9 chemo treatments was in remission for 7 months then I had bad pain in the back of my neck they did all kinds of test couldnt find anythinh then they did a bone biopsy i had a mass on the bone of the back of my neck one in my lower back and 1 in pelvic area theu gave me 25 radiations and 6 aggresive chemos know im on a light chemo every 3 weeks for the rest of my life

Golden Eyes
Posts: 7
Joined: Jan 2010

Can someone tell me HOW they do a biopsy on the cervical spine? Isnt that risky.. because its so close to your spine? I just finished my first week of radiation..I have BC Mets to my cervical spine..(2 were found on my neck) Onc doesnt want to give me chemo.. because they are not sure what grade.. type of cancer..I was HER 2 postitve the first time I was dx..I am so afraid to do a bone biopsy on my spine.. What are the risks? I was told it is possible if they make one wrong move I could become paralyzed (spelled?) I do not want to take that chance. if anyone has had this done on their cervical spine.. Please any information would help

1maladywcancer
Posts: 6
Joined: May 2010

Get a 2nd Dr to check it out.
I did, Went to the cancer center in Zion Ill. saved my life. The lymph nodes under my arm have swrink 50% since march.Thank God I Changed Dr. and now on pill form of meds. go back in 3 months. The other Dr was only going to up the herceptin to a stronger Chemo. via IV. every 3 months for the resr of my life. Not me I'm so glad I check out another Dr.

CypressCynthia's picture
CypressCynthia
Posts: 3955
Joined: Oct 2009

I had breast cancer (large tumor, 4 nodes, ER+) in 1987. Diagnosed with bone mets last year. I started having bone scans and PET fusion scans in 2006 after rib fractures and pain. In 2009, bone scan called ribs bone metastasis. I had 2 ribs biopsied in April 2009 and both were + for breast cancer, ER+. I had radiation. Now on zometa and arimidex and am doing well. Tired sometimes but rib pain is improved.

chiefsflower1's picture
chiefsflower1
Posts: 7
Joined: Oct 2009

Found large lump in my right brest Oct. 2006. Fast growing, small cell, hormone rececpticve. Lump about the size of a silver dollar removed a week later, along with 22 lymphnodes. Radiation and then chemo. Given clear report. Early 2008 started having a burning feeling in middle of shoulder blades/ backbone. It felt just like pain that I had in breast. Pushed for bone scan, MRI and finally bone biopsey. Confirmed metastisied breast cancer, stage IV. Started chemo again as the cancer was in several places in backbone, right upper arm and spread through hips and ribs. Very painfull. After 3 months of chemo, tumor markers still climbing, in and out of hospital and constantly sick. Doctors determined this chemo not working and changed to another type. For the last 3 months still sick, and very tired. In hospital Thanksgiving week. Back in hospital Dec 28 2009 to Jan 03, 2010. Should have went before Christmas and stayed about a week longer than the third. The Good News is my tumor markers have been steadily coming down. My doctors lowered the doseage for Jan and I have not been been nearly as sick. I will have to take chemo for the rest of my life and the doctors say I will die from the cancer or a related side effect (like pneumonia); but alot of persons live along time with good treatment as long as the cancer doesn't spread to the organs (for this type cancer, brain, lungs or liver).

JillyB's picture
JillyB
Posts: 50
Joined: Feb 2010

HOLY COW!, CF, i don't even know what to say to all that you have to go thru! But can i aks you a question? Did the pain you had in your breast continue after surgery? I had a lumpectomy in Sept. of 2009, thank whoever that my large tumor, Stage III was so high that I didn't have to have a mastectomy, which i was very thanful for, being 35 and single. But anyway, about a month ago, I started haveing extrelysever pain on the side of hte breast asn alot of the time it would go donw the ribs. Is this at all how you felt? I have been debating whether or not to tellmy Onc., as I only have 4 wekly treatments lert adn then will do a PET scan again. And I don't like to comlplain to much to him, so he'll take me more seriously on the things that are more obvious and have turned out to be something. So I know the mantra, "Everyone is different", but when I saw your kind of pain, it really struck a chord. And well with the chemo brain going on strong, I forgot what the actual point or questinon was, so if you can make it out, I would appreciate any answer! lol..and you will be in my thoughts...

CypressCynthia's picture
CypressCynthia
Posts: 3955
Joined: Oct 2009

I had breast cancer 23 years ago. I was in remission for 22 years when we discovered that I had bone metastasis. I had been having rib pain and my bone scan was read as "bone metastasis". My oncologist and I had a hard time believing it after so many years, but my markers were elevated. On April 1st last year, I had 2 ribs biopsied and both came back positive for breast cancer, estrogen receptor + (same cancer that I had in 1987). I am now on zometa and arimidex and doing well. Markers are way down, nearly normal. I have been working fulltime throughout it all.

sallyrae
Posts: 2
Joined: Aug 2009

Hi, I had breast cancer when I was 49 but just had lumpectomy and radiation on my left side. Then 5 years ago, when I was 62 I got breast cancer again and had it in both breasts. Went through double mascetomy and then reconstruction. I have been having bone pain in my elbow, I guess when you have had cancer twice it is always hanging over your head. I wonder what the symptons are for bone cancer and I am hoping it isn't a death sentence. I go to the doctor this morning to check it out. I must say I am petrified of hearing that word "cancer" again.

47round2
Posts: 1
Joined: Aug 2010

I just read your post and feel we are in the same / similar situation. If I may ask, you said the marker were elevated - was this determined via bloodwork or some other test. I ask because my BC was 10 years ago, also estrogen receptor positive. Had lumpectomy, 11 neg lymphnodes dissected, chemo and radiation. 2 1/2 years of Tamoxifen, had probs with the effects of it - and been cancer free up until this year. Well, as far as we know... I have noted pain in my R hip / abdominal area for several years along w/ what seemed like RLS / sciaticia in R leg which I complained constantly about to all docs. Was told was normal menopausal pain, related to the meds, etc... Now, this year, exactly 10 years later - pain was so intense my husband took me to the ER, we thought it was a kidney infection, that type of pain. At days end, after exam, ultrasound, and CT, they referred me for bone scan and advised me to contact my onc. Much to my surprise! It has now been 3 months, bone scan showed white on iliac crest which they are "70% sure is bone mets" and ct assisted biopsy of hipbone came back bone only. Had mammo today, was clean. Chest ct was clear, no lung issues. Now we r waiting for another bone biopsy, wanting to go at different angle. Onc sez as far as blood work goes, only 1 of 4 markers were slightly irregular but not to enuf worry about. I am so confused and simply bewildered at this. I am curious if you - or anyone out here - has had such a hard time trying to determine what the pain is, if it is cancer, is it spreading through me during this 3 month waiting period? ..... Any input will be appreciated. I know now why they used to lock our great-grandmothers up in the attic when they went thru "the change"... this is worse!

penelope jones
Posts: 4
Joined: Aug 2010

Cypress Cynthia...You go Girl...! ! I love just around the corner from you..almost West Anaheim....

1maladywcancer
Posts: 6
Joined: May 2010

I had breast cancer in 2001, with 8 lymph nodes postive. surgery. chemo raid. the whole nine yards
2007 thinking I'm really doing good no cancer , I had a lump on my neck that was there before I had breast cancer. all the Dr.s said don't worry about that. after I was cleared from all cancer out 5 years. Had the lump removed. It was cancer. Had herceptin
,then I broke my lefe arm ,same side the brest cancer was on in 2007 bone cancer. had cont with Herceptin. until 2010. I told my Dr's I was done. I was losing the use of my left arm and hand. I had told them that since 2007. they just kept giving me the herceptin. When I said I was done. The chemo Dr. said well we will give you a more powerful med. I said No. I'm done with you all.
and I went to the cancer center in Zion Ill.
They found 3 large size lymp nodes that was pushing on the nerve to my arm and hand. Cancer
again. That was in March 2010. They put me on tykerb and xeloda pill form chemo drug. I went back in June 2010 and the cancer had swrink 50% I will cont. taking the meds and go back in 3 months for follow up. I'm really glad I went to another Dr. Will I get the use of my arm back don't know. But Its looking up as for the cancer. Feeling good about that.

1maladywc
Posts: 9
Joined: May 2010

I had breast cancer in 2001 doing ok until 2007 broke my left arm found bone cancer taking herceptin. then started to lose the use of my left arm and hand. changed Dr. they found 3 large cancers under my left arm pushing on the nerves. March of 2010 . started on pill form of chemo. June 2010 they had swrink by 50%. go back in in 3 months. hope they tell me all is gone. All my blood work done did not show this. hope this helps. know your Dr's and body.

penelope jones
Posts: 4
Joined: Aug 2010

Diagnosed with Breast Cancer in May of 2004...did well until my tumor markers continued to climb for a whol year with nothing showing on the Pet Scans (every three months). Finally in March of 2010 I broke my right shoulder while excerting my arm trying to button my levis's (they obviously had shrunk!),..... The pain was excruciating to say the least. I actually heard it pop... With all the authorizations involved with HMO's I finally had a shoulder biopsy in May and it was Breast Cancer Mets. Had no pain at all prior to fracture. Found to have it in a rib in the back and sternum also. have been radiated and taking Faslodex injections and Zometa infusion.... No side affects with either one and only difficulty swallowing with the chest radiation. I had ten of them. I am 74 and just taking one day at the time....So far my TM came down 30 points, I hope they will continue to go down. If not, I will be moving on to Herceptin and praying a lot....However, I am grateful that I do not have much pain. Took the fracture almost 6 months to heal...and movement is still somewhat limited...Prayer Angel...How are you doing...?

smartinez200
Posts: 3
Joined: Oct 2010

7 years after being diagnosed with breast cancer, going through chemo and drug treatments, it matastasized to my bones. I am now taking a monthly shot and infusion to strengthen my bones. I am on morphine and ibuprophen, some days I have pain spasms on my ribs and have a rough time but others days I feel better and just a little sore. It's mostly on my ribs. They discovered it after a bone scan and pet scan when I thought I pulled a muscle in my upper back, neck area. It turned out to be a large tumor which I went through radiation treatment for and it is much better, doesn't hurt much, only once in awhile and I wear a soft neck brace on those days when I am sitting and working. My doctor is recommending more radiation treatment, this time for the ribs but I want to wait until after the holidays if I can, radiation treatment gets me very tired. Hope some of this info was beneficial. God Bless...

camul's picture
camul
Posts: 2038
Joined: Dec 2010

Yes, in aug 2010 my left ribs were killing me (no pun intended), stopped at urgent care thought I had pleursy. They took an xray, said it showed pneumonia in the lower lobe, sent me to the hospital to have a ct scan. ER dr and radiolgist said no to pneumonia but that I had a 3mm nodule on my right lung. Told me with my history to see my oncologist to follow up but it was no rush. Said I had just pulled a muscle, nothing to worry about.
Went to Seattle 2 weeks later and walked up the stairs by Pike's Market, and my legs and hips ached so bad that I tried sitting. The pain continued for the 3 days I was there.
Came home on Monday and went to work Tuesday, by Thursday, I had pain in my right abdomen. Called the Onco and was seen Friday morning. He ran bloodwork and told me he thought that the bc had metastized to my rt lung, and the pain in my abdomen could be with my bladder (had resection for tumors in 2009, but they were atypical, but not cancer, yet).
Had a pt scan on Wednesday, was scheduled for the followup with onco the following Wednesday, but got the results of the pt scan online. It showed hotspots in my bones throughout my body. The scanned from the base of the skull to mid thigh. Almost every bone in my body was involved. I had rads on my hips and pelvic which helped greatly with mobility, but I still can feel the tumors (bone pain) in my ribs, sternum, neck, thighs and tailbone. Have difficulty doing stairs, lifting (it is heavy in my shoulders, clavical and arm joints).
I am currently on Chemo, Zometa, Neupogen, Tamoxifen, Thyroid Meds (tumors in my thyroid in 2009, removed--atypical but not full blown cancer, yet!), pain meds, anti nausea and sometimes Zanex!
Believe it or not, I am still functional! It has been 6 months since the mets were diagnosed, and they didn't think I would still be here, much less walking, cooking, cleaning and basically still finding so much enjoyment in my life! I have some really down days, but they are just that days or hours not my whole life!

24242
Posts: 1417
Joined: Mar 2001

I was wondering if you were treated after your stage 1 bc diagnosis and if so what treatments did you have? I am stage 3 breast cancer survivor who had 11 out of 21 pos nodes and doctors just don't believe I could have another kind of cancer let alone in my bones. I just found my third lump two were found in my arm a year ago one biopsied and benign other thought to be fat cyst and now just found another on opposite side of cancer just under mastectomy scar. Funny how I have found every single lump and scans prove they are there yet none of my main doctors have ever felt any of them. I had only one doctor out of six who actually felt the lump. I find them because there is a pain in the area and usually a lump attached to pain.
It is hard to believe most often a bone has to break before diagnosis occurs.
YOu have done amazingly well and the strength. I am helping a women who sounds much like you and she too goes onto do most things.
You are definitely a bright light in all of it and shine shine shine...
Tara

camul's picture
camul
Posts: 2038
Joined: Dec 2010

Yes, I was treated with cytoxin and arubimiacin (sp?). Then followed by tamoxifin for about 6-9 months, had so many side effects that determined that it was such a low grade cancer that I should be fine.

Unfortunately from the time that I finished the treatment, I had so pain in my joints and bones, then started in 2009 with the tumors. It is amazing now because all of the areas that I was having the pain, which they would do the bone scans on, are the areas now where the tumors are. Which is the hips, ribs, neck and sternum, but now my left thigh is being a bugger.

I have a new pt scan and mri in 4 weeks and that will show if there are new tumors or the same ones. I am scared to have new scans, sounds silly but there has not been one that has come back negative in so long....

24242
Posts: 1417
Joined: Mar 2001

I always think to myself I can only hope that lumps are benign but it is my duty to myself to catch things as early as I can and get them checked out. Yet I get the feeling doctors just think I am anxious something I am not but smarter than my when diagnosed the first time around.
I had a lump dx'd as fibrous with no diagnostic checking at all. 6 months later when I cannot work any more I am dx'd stage 3. The last thing I want are more doctor visits but until they can tell me what the lumps are I need to keep trying. I don't spend my life worrying about and don't check unless I have a pain that doesn't seem to go away. Have had lumps attached to the pains.
I too was the side effect queen suffering everything one can suffer but still managed to regain quality to my life after fighting to find out the reasons for the pain instead of ignoring the side effects.
I feel very forunate and not scared of the tests just get tired of trying to get doctors to understand the pain that occurs.
Thanks again
Tara
Here's HOPING for a few negative tests!!!!!!!!!!!!

Lynn Smith
Posts: 1265
Joined: Mar 2011

I thought I would come over here from the BC Board because of bone mets.My oncologist said I won't get them. I've had bc but maybe it is the type I have.Still I worry about bone cancer and why I am here.I know my friend/classmate just passed away after it went to her bones.She was a 13 year survivor.She did fight for 1 year with the bone cancer but lost her battle.She never got strong enough for her twin to give her bone marrow. Some do live much longer with bone mets as I see from this Board.How wonderful.Still you don't want bone cancer. Very very scary. You read also about those having bc for over 22 years and back in the bones. Just when you think like is treating you good,Cancer catches you off guard.

HollyT-You mentioned you get a bone scan every year.What is that test??? MRI, ultrasound etc.I am interested but totally not wanting radiation tests.I wondered if the bone scans are radiation. I had alot of radiation xrays my first year after bc dx and done with them.I probably will get my FUB for my kidneys(low dose radiation) but want to kick back with the high dose radiation tests.

I will be going to my doctor the first time I get bone pain.That is if it lasts more than a few days.A few weeks.

Lynn Smith

Lynn Smith
Posts: 1265
Joined: Mar 2011

WOW I am reading so much about some of you being dx with bone cancer afte a injury or break. The cancer must have been there in the first place.I worry about this because i've had a couple problems with my bones but it heals.Just hurts when I get the injury and then gets better.I am not quite 2 years into my bc dx but bone mets I worry about even though my doctor said I will be fine.

Lynn Smith

pegalina
Posts: 42
Joined: May 2013

Hi, I'm Peggy 48 yrs old, was diagnosed with stage 3 breast cancer @ 42..had chemo, double mastectomy & complete hysterectomy & radiation..my question to you is..could they detect bone cancer from the bloodwork..I have blood drawn twice a yr..they look to c where the cancer marker is..I was told that if/when the cancer comes back..it will be in the bone..just curious if someone responded or god forbid you had to go thru it..please answer..it would mean so much..my husband turned 50 in april of this yr..passed away in june suddenly of a heart attack..its just me & my boys..no grandparents are alive..hoping u will respond

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