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message for "redwoman" (lois)

ludasue
Posts: 98
Joined: Apr 2002

Hi Lois. I just read your message about the port you still have in. I'm just wondering, did your onc say you needed to leave it in? I got mine out between finishing chemo and starting radiation. The theory from my onc was, if you ever need again, we'll put another one in, but we are not going to leave it in assuming you will need it. It's been almost 4 years now, and thankfully I haven't needed it replaced. I would be sick of carrying that thing around all the time. I am sorry that your doc's are making you. Tell them what you told us...you hate it and you want it out!!! Good luck! angie

redwoman
Posts: 9
Joined: Apr 2002

My onc said better safe than sorry. She has always made me feel like the cancer was coming back any day now. I guess I showed her!
When I was first diagnosed, I went along with everything the Dr said, because I did'nt know any better. Now, I have let them know that the port is coming out!! I am four months pregnant right now, so it won't be until after the baby comes, but I want this thing out!!
Thanks for writting and I wish you the best of luck as well!!
Lois

ludasue
Posts: 98
Joined: Apr 2002

Hi Lois! It is so odd how different doc's in the same field can be. My onc said no way was I keeping that port, and one of the reasons was he didn't want me having to come in to have it flushed b/c he said it would be to emotionally taxing for me to do that. I remember asking 'what if' and he said 'we'll cross that bridge when we get there'. Oh well, good luck to you and your new bundle on the way!!! Take care, angie

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