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Anyone using Xeloda??

laguna555's picture
laguna555
Posts: 6
Joined: Apr 2002

I began four rounds of chemotherapy June 13,01; Two drugs administered. Adriamycin (aka: Doxorubicin Red) and Cytoxan (clear) Every 21 days.I had a modified radical mastectomy on the right side.Sept 12,01.

I began a second round of chemotherapy the drug Taxol was administered.

October 15, 2001 four times.to Dec 18,01.

I was prescibed Tamoxifen which I began taking daily on December 28th, 2001.

On Monday Jan.7th 2002 I had a prescreening prior to radiation treatments the area near the incision was red and bumpy. It was a reoccurance of cancer.

After discussions with the Radiation oncologist and the surgeon we proceeded with 36 rounds of radiation. Less than 3 weeks after the radiation, the "rash" popped up again just below the radiation line and down the side of my stomach. A rather large area that is sore. I have also not healed from the radiation, it's very red and sore.

I was taken off the Tamoxifen and started Arimidex.

Today I'm starting a new oral chemo called Xeloda.

Anyone have any info or experience with this drug please inform.

Also all comments welcomed.

jeancmici
Posts: 682
Joined: Feb 2001

Hi,

I have not taken xeloda but it is considered good for metastatic cancer.

I can recount for you an experience with a co-worker of mine - now I'm retired - but she is still working. She had a mastectomy which returned in the same area as your did - and they operated again. she said she has only skin covering her ribs now. Before the recurrence in the samearea she had had adriamycin and cytoxin because taxol wasn't around yet.

After the mastectomy and no radiation - Ithink_ she was put on tamoxifen and is still well and still taking tamoxifen for the past 16 years!!

You can read about xeloda by going to
www.google.com and asking "information about xeloda" or just "Xeloda."

Sending some conforting hugs as you start on another journey toward success in beating the rotten beast.

By the way, I loved your comment about the long ongoing 'party' in your positive conclusion to your webpage!

Jean

laguna555's picture
laguna555
Posts: 6
Joined: Apr 2002

Thanks for the comments, it's appreciated. I have done a little reading, but I'd like to hear some feedback from anyone using the drug. I had a bad time with Taxol... didn't like that and have remaining side effects.
I do like to smile and have fun so I don't dwell on the negatives. I think I get that from my profession too, problem solving daily. I tend to react logicallt, not emotionally.
Thanks for the hug too!

pamtriggs's picture
pamtriggs
Posts: 408
Joined: Sep 2000

Hi there
I have not been on Xeloda but have just finished Taxotere after Adriamycin. They are going to use Xeloda next as I have gotton only partial remission from the Taxotere & will need some more treatment in about 6 months. Apparantly it is a daily pill that causes little or no effect on the gut (unlike Adriamycin & Taxol) but is known to cause blisters on the hands & feet. Rosa Moore took Xeloda (among everything else) & that was the main side effect she had. It caused difficulty walking & using her hands but she said it was worth it if it worked (it didn't in her case). Sorry I can't help more but Google.com is a good site to look up these things.
Love & hugs
Pam

laguna555's picture
laguna555
Posts: 6
Joined: Apr 2002

Thanks for the comments, it's appreciated. I have done a little reading, but I'd like to hear some feedback from anyone using the drug. I had a bad time with Taxol... didn't like that and have remaining side effects.
I do like to smile and have fun so I don't dwell on the negatives. I think I get that from my profession too, problem solving daily. I tend to react logically, not emotionally.
Thanks for the hug too!

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