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STILL FEELS LIKE THERE'S A GOLF BALL IN MY THROAT!

rrman
Posts: 12
Joined: Apr 2002

My cancer began on my right tonsil. It spread to one lymph node on the right side of my neck. I finished treatment 5 weeks ago; 6 chemos and 39 radiations in the neck area. I also have a peg tube for feeding. Before radiation, every morning, I was given a shot of Ethyol (sp?) which is supposed to protect the salivary glands from radiation. It's a relatively new part of the treatment. It made me as sick as chemo did. My question is has anyone had experience with this method of treatment which was radiation/chemo/Ethyol all at the same time? Also, it's been about 3 weeks since I've been in recovery "officially" and I'm no longer on pain meds for my throat but it still feels like there's a "ball" stuck in my throat. I've been told it's the healing process and that it's just tight. I have no appetite and it's uncomfortable to swallow. So, I use the feeding tube exclusively. Any suggestions or experiences would be more than welcome. Thanks in advance.

phattpig's picture
phattpig
Posts: 29
Joined: Apr 2002

Hi and welcome to the club. I too had the radiation, chemo treatments going at the same time. I had 40 radiation treatments, and 10 weeks of chemo. During the last third of my radiation, I was started on the ethyol treatments to keep my glands from drying up. This was the only time I really got sick. I finally convinced my doctors that the ethyol was making me sick, when they stopped the ethyol, I stopped getting sick.

As far as the "golf ball" in your throat, it will get better. I still wake up feeling that way, although I have a tracheostomy tube. I finished my radiation treatments on July 13, 2000. I just finished my second round of chemo last week, April 18, 2002. The only advise I can give you is to not give up. there are a lot of us here to give you moral support. Please email me if I can help.

amy_evan2005
Posts: 42
Joined: Nov 2009

My husband is currently going through same thing. He just found out his esophagus is completely blocked. Any advice would be appreciated.

Thanks,
Amy & Evan

BeenThereDoneThat
Posts: 29
Joined: Jul 2009

I too had a 'benign esophageal stricture' from the radiation...... a fancy word for 'food gets stuck'!

I have had 2 'stretch' procedures to open it up. It is a simple, fast procdedure. No pain, and much gain. I would check on this. Worked for me. It's been almost 3 years since my last one, and I can eat anything (as long as I have water, and chew like mom taught me!)

Good luck

George

Hondo's picture
Hondo
Posts: 6494
Joined: Apr 2009

That’s why it is always good to do what Mama said, I have not had to do the stretch thing just yet but getting close to needing it. It is getting hard to swallow a small pill these days.

amy_evan2005
Posts: 42
Joined: Nov 2009

Hello gentlemen,
They aren't sure if they can get it open enough to stretch without doing surgery first to make an opening for the scope & balloon. Have either of you or anyone else had to have surgery to open enough to get in?
Thanks again,
Amy & Evan

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