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taxatere after-effects?

Posts: 1
Joined: Jul 2001

More than 6 weeks after my last taxatere treatment, I still have fairly weird "side effects": fairly severe edema in my ankles & up into my calves, very painful muscles, sort of all over (only when I move) and, of course, toe and finger neuropathy -- which is the only symptom I have heard about. I also seem to bruise easily. My oncologist & my own research have found no reports of these kinds of problems -- which didn't even start til the last treatment -- as taxatere side effects. Heart and lungs have been checked just in case and are ok. All through treatment (mastectomy, 4 AC cycles, axcillary node dissection, 4 taxatere cylcles), I looked forward to feeling better by this time. (I've started radiation so I know there will be other effects.)But I'm getting worried that the return to rigorous physical activity that I'd looked forward to may NEVER happen. Has anyone had any symptoms like these...? Any info would be much appreciated.

Posts: 682
Joined: Feb 2001

>>But I'm getting worried that the return to rigorous physical activity that I'd looked forward to may NEVER happen.

I wouldn't say NEVER , but rigorous activity may take longer to achieve again than you had thought.

I was dx at 63 and finished treatment just after my 64th birthday - but I find that one good day equals two days of rest following the good day. And in September I will be 65.

Think you will have to be patient, but also OPTIMISTIC because you will feel better eventually, I think.


Posts: 1
Joined: Apr 2002

Hi, I'm new to the network so I'm not sure if anyone has replied to your concern. I completed Taxatere last February and also experienced swelling of the ankles and calves. My doctor put me on diaretics + potassium which reduced my swelling. I was on this protocol into June (primarily because I was going to Ireland for my daughter's wedding and didn't want to swell up out of the country with no way of getting a refill. But as soon as I returned, I was off these drugs. Hopefully, by now you have a solution. And, yes I think some of us get symptons that are rare so there isn't much data.

Good health and a rapid recovery.

Posts: 270
Joined: Jul 2001

Yes, yes, yes!! I thought I was headed for a wheel chair. It looks like we had the same treatment except I had a lumpectomy rather than a mastectomy. Not because of my symptoms but because of my history my Oncologist told me to have my thyroid checked and I had low thyroid. When I started the Synthroid the swollen ankles, painful joints and muscles, and fatigue went away. Reading about thyroid I discovered that those are symptoms of Hypothiroidism (low) along with depression, weight gain ... all of which I had and all of which improved with the medication. To clearify ... I had a thyroid issue in high school 25+ years ago. I had not taken medication since then because it balanced itself ...but the Oncologist must have know that the treatments could mess up the thyroid ... so you may ask you GP to check TSH just to rule that out. It sure made a difference in my life ... I was feeling just like you describe and now ... well I build a block retaining wall in my garden yesturday ... something I would never of imagined doing last summer. Hope you get some releif. Let us know what you find out. Jamie

Posts: 1
Joined: Apr 2002

Hi I just finished my radiation. Prior to that I had 6 mos of (excuse my spelling) adrmy..& cytoxin and taxotere on a 12 week once a week treatment schedule. I think I had all the side effects. I had bloody nose 24 hrs/7days a week for 12 weeks...I still have runny eyes. Ankles swollen, but going back on my water pills helped that. My toes and bottoms of my feet still sting (numb) and my fingers. My Mails turned brown with dark sports in them and some are detaching from bed of finger. My oncologist says that they can detach up to 6 mos fater treatment as they grow out.My hair had started to grow back before the end of my adrmyicin and & cytoxin cycle was over but fell out again when I started taxotere. It's bee almost two months and still not filling in. though I do have some very fine (baby)hair growing this week! I also have a spinal problem agrivated by Chemo I have spinal stenosis and a synovial syst on my fasets which prevented me from walking for most of my treatment and for a month after. My back Dr. gave me a shot of cortisone thank god and I can now walk....what a difference in healing. I can't walk too much because of back but I enjoy swimming. I joined a pool this winter (salt water) and try to go at least every other day. I also gained 60 MORE lbs on Chemo ....joined WW and have lost 22 lbs now. Feeling a whole lot better.
Keep your chin up and do as much as U can.

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