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Does anyone survive brain cancer?

baylas
Posts: 1
Joined: Jan 2002

My Mom was diagnosed with lung cancer last Sept and it had spread to her brain. She had surgery to remove the largest tumor and radiation on the smaller tumors, then chemo for the lung. The tumor in the lung was shrinking, so she is now getting radiation on the lung to shrink it further. But she just had an MRI which shows one of the tumors in her brain has doubled in size. Has anyone beat this? Please give me some good news.

kidjpo
Posts: 7
Joined: Nov 2001

My husband had lung cancer that spread to the brain. Had surgery to remove the brain tumor January 27, 1999. Then radiation to the brain and to the lung. Then he underwent Physical Therapy and began walking, driving again (had weakness in the right side, like a stroke victim) He fell and broke his right hip in December that year, so now walks with a walker.

kidjpo
Posts: 7
Joined: Nov 2001

Sorry, hit submit button before done. Anyway he had another small leision in the lung and on Jan. 4th had what they call radiofrequency ablation which means they went in and burned off the cancer cells. His lung function is only 26%, so this was the best surgery for him. Doesn't even need to have oxygen! He is doing fine, still has a drainage tube that is draining the lung, but expects it to come out next week when we go back to the Dr. Will need radiation to the lung again. But, hey, I'm expecting to have him around for awhile. So, yes one does survive brain cancer and he does have a quality of life. We go to church, out to dinner, usually Fla. in the winter, etc. So, expect the best. God Bless!

d3rryn
Posts: 1
Joined: Apr 2011

I was diagnosed with a germinoma which engulfed my piturity gland when i was 12 im 36 now im on all sorts of replacements I have panhypopiturityism I have diabetes insipidus

jpmonaco
Posts: 2
Joined: Aug 2012

I had surgery on March 31st to remove a 2cm GBM stage 4 tumor. On the same day, I had a disc in my neck fused. Double your pleasure, double your fun! The warning signs consisted of excruciating headaches, draggging my left leg slightly when I walked and dropping things with my left hand. Prior to all of this, I didn't even have a primary care doctor because I never got sick. I am 53 years old and I have exercised religiously for 39 years. I have also eaten pretty well although since my diagnosis, I have dramtatically changed my diet. Today, almost 5 months later, after 42 days of radiation and chemo and now, regimens of 5 days of chemo every 28 days, I go for my first MRI to see if anything shows up. The doctor was able to remove all of my tumor which was located just above my right ear. As far as my condition goes, I have only experienced slight fatigue from the chemo but I still go to the gym at 5:00 a.m. so I can only say the fatigue is slight. Overall, I feel great. My wife keeps me on a great regimen of green drinks, no sweets, foods that fight inflamation in the body and high in Omega 3's. You also need adequate exercise and strong mental well being. My faith in God is stronger than ever and I can't stress this enough. At this stage right now, I think my condition is nothing less than a miracle. I prayed like crazy and accepted the fact that if my time on this Earth is through, I'm completely at peace with that. If I still have something important to do and my time is not through, I'm not going to waste one minute of the time God has given to me. I am completely sincere in my heart and all I want to do is God's will. This disease was too much for me to handle so I decided to give it all to God. God will not give us more than we can bear without providing us a way out and an outcome far greater. This is what I'm believing and hanging onto so combine that with exercise and strong nutrition and I truly believe this is the cure; at least for today. Today is all any of us has anyway. We are all going to die and we don't know when. This cancer is just a subtle reminder to that fact.

loulou
Posts: 66
Joined: Sep 2000

I was diagnosed Jan. 5, 2000 with nscl, lypmnode involvment and brain lesions. I am feeling great today. So yes, you can survive!!!
loulou

RLR
Posts: 36
Joined: Sep 2009

Yes we can survive Brain Cancer. I too was told the tumor for GBM4 was inoperable. That was 2 1/2 years ago. I had surgery and have been doing fine ever since. I had 6 weeks of radiation and have been on Temdar chemo ever since surgery in Jan 2009. I can still do most things I did before with good quality of life. Find a doctor to do surgery if yours say it's inoperable. The 3rd one I ran across said he would do it and does them all the time. His name is Dr. Healy in Toledo Ohio. I could not be more pleased in what he had done. Don't give up HOPE.

4theloveofmysis's picture
4theloveofmysis
Posts: 248
Joined: Apr 2011

thank you for the hope. Can you tell me a little more about your story. My sister has GBM4 they said it was inoperable. So we are a little over half way through radiation with temador and avastin.

ffgirl69
Posts: 3
Joined: Nov 2011

My husband had a crainiotomy on July 11, 2008 and went through 6 weeks of raidiation and then 6 months of Temodar. After a year he went back for his routine MRI and it was back. That was March of this year and he has gone through 6 months of temodar and avastin, but it only took care of one tumor but the other one is still there.
He just had his 3 month check up with the MRI again and we are awaiting the results of this one, but after looking at the scan myself I can see more bright white and tumors. Bummed out

ffgirl69
Posts: 3
Joined: Nov 2011

My husband had a crainiotomy on July 11, 2008 and went through 6 weeks of raidiation and then 6 months of Temodar. After a year he went back for his routine MRI and it was back. That was March of this year and he has gone through 6 months of temodar and avastin, but it only took care of one tumor but the other one is still there.
He just had his 3 month check up with the MRI again and we are awaiting the results of this one, but after looking at the scan myself I can see more bright white and tumors. Bummed out

gopakumar
Posts: 1
Joined: Mar 2013

my brother diagnosed in jan 2011 , he is under treatment , sir please say where was your treatment which hospitel and the doctors name

 

thank you

tazmoe
Posts: 1
Joined: Apr 2002

I was diagnosed with brain cancer, I had a cancerous tumor called an ependymoma. It's not exactly the same thing, but it was brain surgury. I had to go through two brain surguries, and radiation. They got it all, so i'm very thankful. I have the rest of my life in front of me now, I am a surviver. I hope this helps you some.
God Bless,
Tazmoe

PAM61
Posts: 2
Joined: Mar 2003

Hi, My father was just found out he has brain cancer, 9 months ago, he had a small cancer tumor removed from his lung, he had been in terrible pain, in the back neck, etc they thought it was nerve damage, to make a long story shorter, he has 2 lison's and another on the neck near the spine. He is having radiation now for 10 days, then that's all they can do. We don't know what to expect, the Dr's say best case he will live for a year, has anyone gone through this ?? they can't operate, due to multiple spots, and they say they can only radiate the head for the 10 days.
He is 67yrs old.......pray for recovery...

luckycharm705
Posts: 2
Joined: Aug 2003

Hi,my name is Giner I am new to this network .Just browsing,hope you don't mine.I had the same thing you did.I am 33yrs.old now and I had my surgery when I was 12yrs.old.I am a suvivor too.Glad to read about someone who went through the same as I.If you would like to talk feel free.My e-mail is luckycharm705@aol.com

TO:TAZMOE,or others who have had same type of cancer.

sumanghosh90
Posts: 2
Joined: Jul 2012

Dear Sir,
my wife(31 yrs) has got Ependymoma Grade II and removed surgically..Doctor saying most of it is removed..
She has increased Intracranical Pressure and may need Shunt.
May i know your story and what is the approx lifespan that can be expected for Ependymoma Grade II ? Doctor is telling it is a slow growing tumour.
I will be happy if you give your mail ID.(my id is : sumanghosh90@gmai.com)
regards
suman ghosh

lisa777
Posts: 14
Joined: Apr 2002

I am a brain cancer survivor, so yes we do exsist. I had a very rare and complicated type and had less then a 5% chance to live. .

mwiltshire
Posts: 1
Joined: Jul 2002

Hi lisa777 I had a tumour removed from near brain stem about 13 months ago, said to be rare and slow growing.Had stereotactic radio therapy 2 months ago.I have right side weakness,but can walk and talk alright.Live in New Zealand am 69.
user name is mwiltshire
greetings from Michael

lauralee67
Posts: 2
Joined: Dec 2011

hi my name is Laura i do not have cancer but my husband does we live in Canada back in 2007 my husband was diagnosed with stage 3 tumour which he was told was rare as it was growing out from the brain stem he had surgery which removed about 90% then 6mnths of radiation and almost 2 yrs of temedol.he stopped the temedol and went back to work his last MRI which was in Dec 2011showed a two cm growth know were waiting for word from the surgeon.

morrxs
Posts: 6
Joined: Jan 2003

A great answer to that question can be found in Lance Armstrong's book "It's not about the bike"

Ruth13
Posts: 1
Joined: Mar 2003

My son now 5yrs. old had a medullablastoma tumor removed when he was 2yrs. old, it was very large and over the medulla and onto the right and left side. He had chemo. and radation. He does have some slite weakness on his right side,a bit of a blance problem and because of his age at the treatment he now has and will always have learning disabilties. I was told about the risks and everyone thought the outcome would be worse because of the size,place and his young age at treatment. But he is here and can walk, talk, play and laugh. He also is one of the most loving kids I know and gives the best hugs! I can not count the nights the nurses cryed with me and tryed to build me up because everyone was sure he would not make it to the morning, so even when it seems its worse,never give up, I can not say that everyone makes it, but my son sends you a big hug and tell you sometimes things get better!

beth22
Posts: 1
Joined: Mar 2005

my 2.5 year old grandaughter was diagnosed with a brain tumor back in january it has now been over two months and she is on her second chemo out of six they are very extensive she is not able to talk,see,situp or move any of her body parts. can you let me know if this is what your son went through or let me know how long it took for him to start getting back to normal.thanks beth

HappyChappy's picture
HappyChappy
Posts: 2
Joined: Nov 2003

Yes mate I have my 3rd malignant brain tumor I have had 2 removed and a large section of my brain that slowly died but luckly my left hand side learnt to take over. If you want to ask any questions just message me I will be happy to answer any questions no matter how graphic or touching you think they may be as it is my life and has been since I was 10 which is 18 yrs ago

stevieboy22003
Posts: 1
Joined: Dec 2003

hi i had a tumour which covered 1/4 of my brain removed 2 years ago i then went through months of radiotherapy,,i am ok now though it has left me with epilepsy

oahquay
Posts: 1
Joined: Feb 2004

What about if the docs can't remove all of the tumor and it's malignant? My wife had most of a malignant tumor removed and they're giving her only 5 years. I just found out yesterday and I'm scared.

DCovington
Posts: 6
Joined: Feb 2004

Yes, Ihave survived over 5 years. I went through Radiation, and Chemo. But I think the best thing is to look Up and ask the Lord for Help

Carolyn48
Posts: 7
Joined: Jan 2004

My husband underwent 15 days of whole brain radiation and is now undergoing chemo for his lung. Has anyone experienced severe forehead burn, nausea and extreme fatigue and how long does the forehead redness last? Thanks.

jeani13's picture
jeani13
Posts: 9
Joined: Mar 2011

It goes away eventually, my husband had 25 WBR Treatments and his head felt like you could fry an egg on it. It was burning up for months.

jay1973
Posts: 8
Joined: Nov 2005

I am a brain tumor survivor. You should never lose hope. I was diagnosed when I was 17. I'm 32 now, and am cancer free and feeling great.

cushla69's picture
cushla69
Posts: 45
Joined: Dec 2010

what type of tumor and cancer did you have and where was it located in the head. mine is between the frontal and temporal lobe, deep down in crease. I have anaplastic astrocytoma (dont know if i spelled it right). they say mine is inoperable. say ill have it rest of my life

sumanghosh90
Posts: 2
Joined: Jul 2012

Dear sir,
what kind of tumour you had? please let me know your story.
my wife is 31 and hav ependymoma grade II - slow growing tumour..operated recently - 9th July'12. What is the survival expectancy? Please send your mail id also.(my id: sumanghosh90@gmail.com)
regards
suman
sumanghosh90@gmail.com

Rory1987's picture
Rory1987
Posts: 122
Joined: Nov 2009

of course you can. I've read a lot of survivor stories of brain cancer patients who are alive until now since their diagnosis 20+ years ago, i've even read one who is already a 40+ year survivor of brain cancer.

cushla69's picture
cushla69
Posts: 45
Joined: Dec 2010

good news to hear, but its still scary. i just hold on to my faith

mgreggsmith
Posts: 22
Joined: Mar 2011

Anyone reading this post has survived brain cancer.

In the end Nature will have its way with all of us. Until then I think it is helpful to relax, take care of yourself, accept one's condition with grace and try to be a model of love. In the end that is all there is.

G.

cushla69's picture
cushla69
Posts: 45
Joined: Dec 2010

you are right and to keep Faith

j_waffles
Posts: 22
Joined: Jun 2010

I have full confidence I'm going to live until I'm at least 90 :)

My dad was diagnosed at 38 with a very malignant tumor. He's 53 now, and very healthy.

Though in addition to treatment, I'd suggest looking into some alternative therapies and diet changes. It's worked for us.

oceanmermaid
Posts: 2
Joined: Sep 2011

Hello, and congrats that your dad is cancer free! Could you please give me more information on how your dad survived his malignant tumor? What alternative therapies worked and what did his diet consist of? My dad was just diagnosed in June of this year with malignant glioblastoma multiforme stage IV. He went through 6 weeks of radiation and chemotherapy, but the tumor only grew bigger instead of shrinking. He is 66 years old, and I would love to know how I can cure him? If you could please help me out, I would really appreciate it? I do not have any kids, and my dad is my life. He is going downhill so quickly, and I am not sure what to do.

Thanks,
Oceanmermaid

rajan kunwar
Posts: 1
Joined: Aug 2011

my girlfriend is brain tumor patient.i dont want to loose her.dr. have said that she will live only for 2yrs from now.i'm from nepal we dont have experienced dr. for the cure of brain tumor here. pls refer me some good dr. who can cure her.

RoxyBasilJack
Posts: 1
Joined: Aug 2011

A lot of the survival has to do with how you feel going into it. I have had surgery and radiation treatment at the Odette Cancer Centre in Toronto, Never have I met a more caring loving bunch of people. I am getting my energy back and getting over the side effects of the radiation. The next stage is another MRI, followed by a second MRI then I meet with my 'team' to discuss the next stage. All you have to do is look around and i am sure you will be able to find someone you can work with.They key is being a part of a 'healing team' at a well equipped Cancer Centre. I am convinced that Cancer is not the 'big scary' thing that it was to my/our parents. I had my tumor for 19 years before it started acting up. Just keep as positive as you possibly can and have fun where can (I had fun trying on wigs, I look good as a blonde, i sing to my primary nurse on her birthday, and send my technologists presents) i meditate daily, i find it helps. As soon as my balance issues resolve themselves, I will go back to my daily Yoga practice. In the meantime, i have a cousin who brings me shopping bags filled with books, tons of videos i have never had time to see and a novel somewhere inside of me that wants to come out.
I have the time to do and explore all of the things I have always wanted to.

JasmineX
Posts: 1
Joined: Dec 2011

To anyone, please help. My boyfriend found out that he's had a brain tumor for over 7 months, and just recently it's been getting active. The Doctor say he has a 47% chance of survival if he were to do surgery. Even if he wanted to do the surgery, he's currently in the Phillipinnes, where the doctors arent as qualified. His only option is to go to Toronto, and do it, but his Mom is standing in the way. I don't understand why, but she doesn't want him to go to Toronto. She's willing to let her son slowly die. Which pisses me off. I don't know what to do, I can't picture life without him...

micgrace
Posts: 131
Joined: May 2011

So many variables. What type, where it is, what genetic abnormalities in the cancer, what response to radiation, removal and chemo, age of person, general health, what size, what depth, where else. plus plenty more. Sorry to say there is no simple answer.

However considerable number of people do survive a brain cancer so good luck.

jeffballew
Posts: 9
Joined: Apr 2010

Thats a hard question. you have to define Survive. is lasting 5 years survival? then yes, some do. But others last 20+ years and others only 2 years, knowing what kind and the getting the right team of doctors is very important. They know more about the particular types and there is enough research on any one type to give you hope. No one is a statisctic until they actually pass on. my initial diagnosis was a GRade II Astrocytoma in June of 06'. Then in May of 2010 i was told I now have a Grade IV GBM, the big daddy as it were.. I've heard of folks 12-20 years out after hearing that diagnosis, so my goal is 50-60 years. Just stay around long enough for a cure, there are lots of treatments, but no CURES! but treatments are the path to a cure, remember that. There are a ton of clinical trials on Vaccines and immunotherapies, so the goal is to stay strong and positive and be around long enough to see the cure when it comes. Remember when HIV/AIDS was a death sentence?

I_Promise's picture
I_Promise
Posts: 208
Joined: Aug 2011

Jeff,

Let us know about your journey and treatment plan. I too believe that when my sister lives long enough there is going to be a cure. Have you heard of places where they do both a vaccine and oncolytic virus? (stacking the deck)

Julia

alutiiqmom's picture
alutiiqmom
Posts: 256
Joined: Jun 2011

Hi:

I like that treatment is a pathways to a cure. Amen! I do believe the facility that one choose's plays a big part in care and survival. I wish you the best Jeff and also Julia.

Edna

Scottgri
Posts: 44
Joined: Mar 2012

I had a GBM removed in April of 2011, and a clean PET scan in July of 2012. So, yes, I'm proving you can beat brain cancer!!!

marlee425
Posts: 12
Joined: Apr 2012

Are there any survivors from melanoma metastases to the brain? Would love to hear a positive!!!

pariqamar
Posts: 1
Joined: Feb 2013

I am from Pakistan. My Honye is suffering from Brain tumor Stage 2. She is just 20 years old. Docs said that tumor is spread in the brain and have very rare chance of survival. Pleas help me in this regard that stage 2 brain tumor patient have how many chances of survival. We are going to take her to UK for treatment. I am so worried. Please help me in this regard. My Email Id is atqamar_cfa@live.com. You can send me mail on this ID. I dont want to loos her at any cost. Please help me.

Qamar

jalu
Posts: 58
Joined: Jan 2013

Surviving "Terminal" Cancer by Ben A. Williams, PhD.

He was diagnosed with terminal brain cancer in the mid-1990's.  He beat it and he is alive and well today with clean MRI's.  Lot's of information on how to supplement standard treatment to not only make it more effective, but to also minimize the side effects of treatment.  His supplements also fight cancer on a level that radiation and chemo do not.  Ways to ENHANCE treatment with chemo and radiation and lot's more.

Good Luck to you!

caroline scott
Posts: 3
Joined: Mar 2013

Thanks for imparting this incsive information about brain cancer. It's really good to join forum as this as we can really gain more info. I also got thi interesting topic that has something to do with brain health. Redundant Alcohol Consumption with Negative Impact on the Brain

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