Hi Phil, and others,
decided to start a new thread, easier to get to and the topic had changed:
I suppose even though there are so many of us out there, the problem is that everyone is different and the advances in treatment don't make things easier. But as you say, if we stick together then the chances of get decent follow up is much greater. Here in the Netherlands there has been a lot of criticism from people who have had cancer about follow up treatment. Its just a matter of hoping, and waiting, until those that can do something about it higher up, actually go and do just that.