Aug 08, 2001 - 3:04 pm
Hi! I just found this site today and I'm glued to it reading everyones stories, most of which are a copy of my own. I had HD in 1982 and had a stageing operation, spleen removed as well as a 12 week fetus, I was then treated with 3 months of chemo followed by 3 mo. radiation to my neck/chest/abdomen followed by 5 more months of chemo. The side effects have started rearing their ugly heads now. A few years after treatment I found out that I would not be able to have children, the chemo &/ radiation had distroyed my overies, I went into menapause at 23 and started HRT, a few years later I had a hysterectomy due to complications. The hypothyroidism followed. The chronic fatigue has followed me all these 18 years. I had many good years, then in 1999 I started fainting, ended up with a pacemaker due to damage from radiation, one year later I began to have trouble breathing, an echo of the heart showed severe leaking from my valves. I had open heart surgery to repair my mitral and tricuspid valves. I continue to have palpataions which they are unsure about. Now, just last week during my yearly checkup with the oncologist he found my liver function blood tests to be high, so I'm nervously awaiting what he will do next. I ask him if this tunnel ends and his reply was, "we learn more and more everyday about the effects of the treatments given, we can only address each problem as they arise", great comfort, huh?! Hopefully my being a survivor this long will help survivors in the future not have to deal with all these problems. I look forward to following everyone and I'll post again when I know more about the liver.