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Pancreatic Cancer/Whipple procedure

nuff
Posts: 1
Joined: Jun 2001

My mother was diagnosed last month with pancreatic ca, and underwent the Whipple procedure to remove the tumor. All of the duodenum was removed, 2/3 of the stomach and 1/3 of the pancreas. The tumor was growing in such a way as to occlude the common bile duct causing jaundice. The tumor did not show on any CT scans, and the ERCP was not completed due to the tumor occluding the bile duct. The common bile duct was also punctured during the ERCP. Now, just over three weeks post op, she is facing a "failure to thrive" in that she is unable to eat much due to the 2 to 3 ounce pocket left of the stomach, and the lack of taste in any and all foods. What tastes good once does not the next time, and most foods have no taste at all.
Does anyone have any suggestions on improving the taste of foods, or alternative feeding methods? She does have a J-tube in place for tube feedings, but these were causing diarrhea and nausea and vomiting. The tube feedings were stopped about two weeks ago.
She is down from 146 lbs to 117 in less than two months since the illnes began showing symptoms. An abscess did form secondary to the puncturing of the common bile duct during the ERCP, which has been drained, and antibiotics given, Keflex 500mg QID for 10 days (one dose left).
I have tried various foods, wasted a lot of food items along the way, along with Carnation INstant Breakfast milkshakes, breakfast bars, etc...
With the low survival rate of pancreatic ca victims, any and all help is greatly appreciated.
Thanks

taylork
Posts: 11
Joined: Sep 2004

My husband just had the whipple procedure. 1/3 pancrease, along with the duo, gall,and some of the small intestines. None of the stomach. However, eating was problem also for us. He wanted popsicles, grapes, peaches anything with juice. Chicken noodle soup, Kraft macaroni and cheese. Don't give up it does get better. Rice pudding was the other thing he wanted. Wight loss 248 down to 25. When we came home from the hospital I was lucky to get 1tbsp of rice pudding in him at breakfast lunch and dinner. Gave him plenty of fluids. What a worry but thank God we are over that part. Foods still don't taste the same. We are told it will come back. God Bless you all.

gus111z
Posts: 11
Joined: Jan 2011

How do we get in touch with people who posted 5-10 years ago? Anyone?

Chefdaddy
Posts: 164
Joined: Dec 2009

Hi Nuff,
I'm a 58 year old man and I underwent the same surgery with the same tumor in 2001. I lost 125lbs. and ended up going to a larger hospital where they informed me that the idiot that did my surgery failed to make a hole for food to go through after reconnecting what was left of my stomach to the small intestine.
Have them make sure there is a hole where the surgeon re-connected the stomach to the small intestine for the food to leave the stomach. I've been told that the hole cane close up on it's own after the surgery.

I ended up going to a much larger hospital to see a surgeon that specialized in Whipple's. He said he was going to re-do the surgery but I collapsed in his office while I was there and they ran me to the ER and then admitted me. They ran several tests and scans and then told me that they couldn't do the surgery as it was very doubtful that I would survive it as I was in such bad condition.
He also said that the surgeon had done the Whipple the same way that Dr. Whipple had done them in 1939 and that they are not done that way due to so many problems afterwards.
I went home with little hope of living much longer.
About 2 weeks later I dropped to the ground in horrible pain as something had ripped in my intestines, apparently the ripping formed it's own hole and about a week later small bits of soft foods started going through and I started becoming stronger.

That was 9 years ago!

I did not receive chemo or radiation before or after the Whipple.

In December of 2009 I was diagnosed with Squamous Cell cancer in my lymph node in my neck and have undergone 13 surgical procedures, chemo and radiation. After the Whipple disaster by the idiot surgeon I was left with great difficulties having normal bowel movements and pain attacks that come on fast and have caused me to pass out from the pain. The other surgeons tell me it's because the idiot surgeon had cut nerves that he shouldn't have.

Now, due to being over-radiated due to a malfunctioning machine I have lost all nerve function in my bowels and they are trying to figure out what to do next as I haven't had a bowel movement in three weeks and am becoming toxic. I am returning to the hospital today for further procedures with a new GI doctor.

I hope this info helps your mother.

Mike

gus111z
Posts: 11
Joined: Jan 2011

Chefdaddy

I would seek a legal advice and if there is any ground sue the idiot. I cannot believe I've read that! Unreal!

You are a miracle! Best of luck in the future.

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