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Miserable on chemo--just want to quit!

jackies
Posts: 30
Joined: Sep 2000

Hi everyone. It's Jackie. I haven't checked in for a while, but I really need some wisdom/empathy. I finished my 4 courses of Adriamycin/Cytoxan. Last week I got the 1st of 4 courses of Taxotere. I was told this would probably be easier on me. Wrong! The first 2 days were better, but then it hit! I have been in "total body pain" for the past 3 days. Literally everything hurts! I'm not just talking body aches. The pain is so intense, I've had to take Percocet round the clock! I've become very depressed and just want to quit chemo and have surgery. I honestly don't know how I'll make it thru 3 more treatments. And as miserable as I feel now, if I do manage to finish chemo, I don't see how I can possibly continue working. Between the pain and the fog from the Percocet, I'm not much good these days. And I can't help but worry, if the chemo is affecting me so severely, what other nasty effects is it having on my body? Can anyone give me any info about going on disability? I'm afraid I may have to resort to that, if I have any hopes of seeing this thru. Sorry to be such a stick-in-th-mud, but I have reached an all-time low. Jackie

tiger
Posts: 292
Joined: Oct 2000

Howdy ho!!Tiger here, I responded before i read this message posted to all, your response from me is titled,Jackies pain,oh my!! It was supposed to have a few commas, and not come through sounding like I meant oh poor Jackie wah wah pain. I am sympathizing, I just did not want you to take the wrong tone when reading it. Love and hugs.Tiger

murphy
Posts: 45
Joined: Sep 2000

Hi Jackie, I just read your post, I am sorry you are feeling so bad, but believe me it will pass. You mentioned Taxotere, well I had Taxol and it did the same to me and I too took percocet, I do know how you feel, but mine only lasted 3 days but was the same each of my 4 treatments, then I was able to resume as much of a normal life as chemo would allow. I do not seem to have any lasting effects from any of it, I have been out of treatment since Jan. I guess I can't give you any advice on going on disability, when I started chemo I quit my job because I wanted to concentrate on getting better, but I am back working now a different job, but that was my choice. I think the percocet tends to make you feel a bit depressed and it is addictive, I would ween myself after each treatment and would have a couple of sleepless nights. I really hope you start to feel better very soon, I know I would think the same thing, I just can't do this again but once the pain was gone I thought well that wasn't all that bad.....sort of like labor....ha ha. Take care and hang tough and remember this too shall pass. God Bless Murphy

tiger
Posts: 292
Joined: Oct 2000

Hey Jackie, Tiger here, how are you doing today? I am going on Wed for my Taxol,so I am gearing myself up for the pain. My onco first told me that most women tolerate this chemo very well and left it at that, well when my pain hit I could have killed him for not preparing me better, but then I realized that he did not want to put me in the frame of mind that this is bad stuff and maybe scare me off it. It does work,we just have to fight our way through it together. I am going to ask for a prescription for Paxcil, the antidepressant, I find myself thinking nasty thoughts when I first have taxol,usually about a week I am ready to kill myself, and sooooo tired, but the paxcil is apparently very good, relieves the depression and gives you a boost of energy too. Keep in touch and we can moan and whine to each other about the pain,at least we all know where you are coming from!! Just remember, Dont give up, this stuff really WORKS!!!! We have gone this far, so lets keep going, and it will be easier because we have each other. Love and a big hug. Tiger xoxo

loulou
Posts: 66
Joined: Sep 2000

Hi tiger, loulou here, the treatment I was on was taxol, and carboplatin, but I was wondering when you guys are talking about the pain you get from the taxol, are you talking about those high pitch really sharp pangs that zing you in your shins, or chest, arms, all over basically? Where walking across the floor was quite the task? If so, I remember those well! But, like you said IT WORKS..... It always hit me three days after my infusion, and lasted about four. Like you though, after a few months you get tired deep inside, I have never experienced such a tired before. When your tired REST! Ok..... later, loulou

attypay
Posts: 3
Joined: Mar 2001

I am on Paxil and have been for five years. I haven't started my chemo yet but my dr. said to keep on taking the paxil. I have to tell you it is a great drug, I couldn't cope with alot of things if I wasn't on it.

jane38
Posts: 137
Joined: Aug 2000

Jackie. I'm with you sweetie. Taxotere is a very powerful drug. It doesn't have the nausea associated with it that Cytoxan and Adriamycin do, but the pain is almost unbearable. I, too, was ready to hang it up and take my chances. But, my oncologist recommended that perhaps I was not tolerating the steroid very well and needed a Medrol Dose-Pak to come down off of it. My last two doses were great. The dose-pak helped tremendously. Perhaps that is something you can suggest to your doctor. When I came off the Decadron my whole body crashed and it hurt worse than anything I have ever experienced. But, with the Medrol dose-pak, the pain was not nearly so severe and easily tamed. Try it. Jane

maggie's picture
maggie
Posts: 77
Joined: Sep 2000

Hey Jackie! I am sorry to hear that you are feeling really bad. I too took a chemo drug that cause alot of pain. I took 4 rounds of the Red devil and then 4 rounds of Taxol. I have never experience pain like that before. I too was ready to give up, but I just kepted praying and asking God to help me with this awful pain. I usually got the pain on the 3rd day and it lasted about 3 or 4 days. Just keeping taking those pain-killers and don't give up.(don't let the cancer beat you) Take care and I will remember you in my prayers each day. Maggie

patsharkey's picture
patsharkey
Posts: 8
Joined: Oct 2000

Hi Jackie

I am sorry to hear you are feeling so low, and hope you are now feeling brighter. I have had two rounds of epirubicin and taxotere, and both times I felt suicidal. After 2 days I felt pain all through my back, and in my weak spots. I felt as if I wanted to die. I had not realised that the pain might be a side-effect of my drugs. I have not yet recovered from this bout, but last time I know I woke up one morning feeling better, and I was sure I wanted to live. Maybe when it gets better we should write a list of the good things we have to live for, and keep it in front of us for next time.

We have so much rain and floods here in England that I feel the weather is in mourning with me. But the rain will eventually stop, and life will get better. Please don't give up, and remember how much you are loved, by your family, your friends, and by God.

Love from PAT

cherdaetwyler
Posts: 165
Joined: Dec 2000

Hello,
I have been reading this series of messages today because I am sitting here *****ing about my 19 inches of stitches.
I had a bilateral rmasectomy on Dec. 8 and am recovering from that nicely. I begin series of Adriamycin/Cytoxan on January 9 if my
port is in, which hopefully it will be.

However I still heal very quickly (this is my first ever major surgery) and went from Percoset to regular Tylenol at bedtime on the
day after surgery. But these stitches feel as if they are cutting my chest in two parts. (actually they look like they are since the
flesh bulges up on both sides..

I am in an awkward position this weekend having fired the surgeon who did the masectomy and switching to a new one/
(my return visit after surgery was a real horror story)

I see the new surgeon on 12/28 when he is supposed to schedule my surgery for a port implant and hopefully remove the stitches.

The other surgeon refused to do the port and scheduled my next followup in a month.

I have had stitches embedded in skin after cuts healed so I know what I would be like in a month.
These are two rows of blanket stitch more than 2/3 way around my chest.

i jumped into the chemo discussion and quickly realized that with no experience in dealing with cheno, I have a great deal of
experience in dealing with two of the side effects you are talking about...body pain and depression.

I am a life time chronic depressive who rarely ever used medical intervention. At this time I am on zoloft and buspar,
but most of my life I have used journals and diaries, herbs and eating paterns to keep my brain chemicals under control.
I went to my full prescribed dosage of both medications when I received the diagnosis, but have backed off some to closer
what I consider my maintenance level.

Lists of good things help.

Writing down the bad (if you can type or hold a pen) when you feel bad
will help on those times when you can read it feeling somewhat bad and say
I felt worse before.

I hope to hear from some of you soon.
I will let you know how things are going.

Praying for you all
Cher

cherdaetwyler
Posts: 165
Joined: Dec 2000

Hi all,

Especially ellen, for your quick answer.
I onlu hope I am strong enough. I go for bone scan and liver ultrasound on Tues, 12-26.
Based on the path report from my surgery (got a copy just by asking the onco. dr.) there may
be extensive metastasis. Or there may be none, other than the eerie suggestion that my
adipose tissue in the underarm upperchest is laden with tumor wannabes.

Stitches are screaming to be out. I don't seebthe new surgeon until 12-28, but somehow that
sounds better than in a month. Any one out there who can tell me how long it takes for the fluid
swellings and muscle cramps to go away. those cute little triangular muscles in front of my shoulders
turn into big knots at least three or four times a day. Takes intensive meditation to make them ease.
I know they are only insulted that somebody took away their job (holding up my bitty bosom) but
their response seems mighty severe.

you are all im my prayers.
If you aren't on my friends list yet, it is only because I keep goofing up when I try to add.

This from a woman who has taught people how to use this stupid machine for years.

joyous greetings for whatever you celebrate this season.
cher

sueholm's picture
sueholm
Posts: 221
Joined: Oct 2000

Cher, good to hear you are in fighting spirit! I too used to suffer from a lot of depression, but finally got to the root of it 12 years ago, and am now more balanced and happy than i have ever been. sounds ridiculous doesnt it, to be happy when grappling with breast cancer, but there it is, and I'm not fighting it! Just so grateful to be coping with it well. I am sorry you have had trouble with docs. I am very fortunate. surgery was done by lady doc, who had presence of mind to take sample from other suspicious area she saw, hence another op to come, but far better than it not being found.! I have two wondeful oncologists, who I know, are doing their best for me, so I have placed my confidence in them. they may screw up, because I know this cancer business is so tricky, but so be it, if they do. I hope you can find docs whom you trust, because, apparently, according to some research, confidence in docs correlates with survivability rates for breast cancer. you didnt say why doc refused to do port. I would be interested to know. I dont think you have said yet where you are, or i forget. I am in bc canada, where we are defintiely having a white christmas! take care, and let us know the results of your scans. beware! the moment they put you on that scan machine, every part of your body that you cant reach will itch! and drive you nuts! oh, let me tell you one thing i decided very early on with this, that has been a tremendous help. i decided that i was never, ever, going to let a simple needle bother me. decided that with the very first one, as i knew there would be many to come.I'm glad i did, now i find out how many there are! I sail through them. no time to sweat the small stuff! take care, keep in touch. love susan

cherdaetwyler
Posts: 165
Joined: Dec 2000

Hi everyone,

I know what you mean about confidence.

However the surgeon I fired was a "lady", but she seemsed to consider
me disposable once the surgery was over and the path report came back.

I haven't seen the new surgeon yet, so don't even know it male or female.
Just one who was willing to do as my chemo oncologist asked.

All of the chemo nurses that I have talked to say I made the right decision.
I am not afraid of needles, but do object to losing extra parts like arms if it
is unnecessary.

The reasons the lady doc gave for not doing the port were 2:
1 my body cleanliness did not meet her standards (however I never had a chance to tell her thatt
much of what she perceived as BO was a side effect of eating eastern NA's humble RAMP,
an onion family member so notorious that some of my firends refuse to sleep in the same room with
their husbands when hubby eats ramps. The other part was coming from inside the drains which
she neglected for 11 days before removing them. Every time I opened on to empty the flask,it was
disgusting.

2 I have good veins.

I'm glad I have good veins but when there is a way to keep them that way, and the doctor suggests we
use it, I jump on the suggestion.

My whole oncology team seems to be on top of things.

I really think the surgeon could not handle well having a patient who refused to be patient,
but was always in a hurry, knew too much about effects and side effects, and told her I would
want the pathology report prior to surgery.

My mouth is always too big.
thanks for your input.
most of the time my chems stay reasonable, but there are some times that they just go off.
I was only hospitalized one, I checked myself in after walking out into a snowstorm
in a state of hyper-anxiety. I will probably never need that again because I discovered
they could not do much that I couldn't do on my own.

love to all,
Cher

i

freddi
Posts: 3
Joined: Nov 2000

Dear Jackie, I , too, just finished the Taxotere arm, and like you I was told it would be easier...wrong! I didn't have the bone pain, MY TONGUE SLOUGHED OFF!!!!!!!!!!! Sounds neat, hunh? I think I would have prefered the bone pain, but I never had a single minute of it. I really don't think they have a clue as to what this stuff really does to us, but who are we to argue? What was your cell grade? Not stage... cell grade...nosy me.

sueholm's picture
sueholm
Posts: 221
Joined: Oct 2000

freddi, just saw your request to jackei for her cell grade. mine is grade 2 on ellis scale 1-3. i'm curious why yu particularly interested in that in this context. susan

nancys
Posts: 336
Joined: Aug 2000

Oh Jackie, I am so sorry to hear you are in such pain. You posted on the 5th and today is the 10th and I so hope you are better. I know from talking with you before that you are a very strong person so this pain must be very bad. I questioned my Onco about Taxol (my last 4 rounds will be Taxol) and he would not tell me it would be bad. I have just had my second round of A/C and it takes me about 8 days to feel human again. Tomorrow is day #8. You recomended Zofran to me but I don't think it helps much. I have used Ativan and Zofran. They give me Anzemet with the chemo but I am afraid if I use it all the time, it will not work for me when I really need it badly. Let me know how you are doing. All I can do is pray for you and I will say many prayers for you all day. Your Friend, Nancy

mjdp2's picture
mjdp2
Posts: 142
Joined: Nov 2000

Dear Jackie,
I was diagnosed in June 1998 just when it was suggested that 4 cources of A/C followed by 4 Taxol treatments (Taxotere is a related drug) would be beneficial. I too was told by my doctor that the Taxol would not make me as sick as the A/C. During my first Taxol infusion my hands and feet swelled up. The intense pain started 3 days later the the swelling did not go down for 10 days. I could not even put on sandals. I felt I was walking on a bed of nails with each step. After consulting with a college friend who is now a medical doctor and ran clinical trials of A/C with Taxol, I decided to not continue with any more Taxol as I did not want to spend the rest of my life unable to walk. My oncologist said it would be OK to stop. The major benefit of the chemo had already come thru the A/C. The pain/tingling (neuropathy) took over 18 months to subside. Even now I have some tingling in my hands and feet. I feel that the severity of side effects of this drug are not fully disclosed. I am so happy to find other cancer patients who have shared the same experience though unpleasant. My oncologist made me feel like a medical oddity but through sharing and talking with other women, I think these severe side effects are more common than disclosed. Don't feel that you have to continue the chemo. It is your body and you are in control. You are in my prayers.
Margaret in Calif.

catherine
Posts: 18
Joined: Oct 2000

Hello Jackies:

My name is Catherine, a 33-year-old breast cancer patient.I am new here, I come from Taiwan. I would like to encourage you to be brave to accomplish the Chemo theraphy.

When I was 28, I got the breast cancer, the tumor is very big so I had to take the surgery to remove my whole left breast and accept 8 courses of the Chemo in "CMF". It's such a big shock to a young lady! At first, I can't accept this truth and at that time, my boyfriend deserted me(though we've loved each other for 9 years.)

Though I was given Chemo theraphy, unfortunately, the cancer cell spread to my spine, skull & upper brain after 2 years. Then, I cannot but have to accept the brain operation. After that, my doctor combined "Adriamycin" & "Taxol" to treat my recurrence, plus brain radiation theraphy & "Pamidronate" to strength my bone. Now, I'm healthier & more beautiful then 5 years ago.

I think cancer patient should use our "mental power" to save our own live. I always think:"If you think you can survive, then you will." "If you think you can overcome the discomforts from Chemo, then you can." I totally understand your discomforts from Chemo theraphy for I experienced that twice! No matter how painful it is, we have to fight for ourself. I believe you can conquer these uncomfortable symptoms.

Many people wondered why I can live so well after the brain operation? It has been 2 more years! I think "faith" & "confidence" are what I rely on in my life. Trust yourself and tell yourself every morning "I can survive!!" God will hear you and bless you in everyday, every minute.

Please try your best to finish the Chemo, it will do you good! someday, you can say:I am very healthy now, breast cancer? Oh! come on, it's just a piece of cake!

May God bless you and give you the tremendous power!

Catherine Chen

tiger
Posts: 292
Joined: Oct 2000

Well, I was logging on to ask you all to talk me into my last dose of chemo, but after reading Catherines reply to this, I suddenly feel stronger. This last dose has been harder no matter how much I try to fool myself into thinking that it has not, but only one more Taxol, I should be able to tolerate that, I have been through so much already, whats one more dose of chemo right? I think the hardest part of the whole deal is trying not to think about the future,and what could possibly happen, after I have the taxol, my mind works overtime and I start thinking that it has spread,but I know in my heart I will be fine. I cannot believe it will be Christmas again soon, this time last year I was having appointments with Drs who all told me not to worry, its nothing, then bam!! drop the bomb on Christmas Eve day. Alot has gone on since then and I know we will all be even stronger because of our journey, and even stronger still because we have each other for support. It is amazing how quickly someone responds on here if one of us are in need. I thank God everyday for you guys, without you I dont know if I would have persevered this long, maintaining a positive attitide is difficult,but I try my best for my family,especially for my husband because he relies on me alot for strength and guidance. This time next year I will be telling you how I am doing my hair for my Christmas party, (i hope) I hope it comes in with just a little wave and dark brown. before I lost it it was dark brown,red,black, light brown and blonde for about five minutes once, I used to get bored and dye my hair all the time, but I was looking through some photos from when my youngest was six months old, and of course i thought i was ugly and fat and my hair was awful, but after going through this past year ,I see myself as pretty,finally, and just hope i can get back to that again. After what we are going through though, appearences just dont mean a whole lot like they used to . Well, I wish you all the best and lets keep the positive thoughts flowing.
Fight the good fight. Love and hugs from Tiger xoxox

pamtriggs's picture
pamtriggs
Posts: 408
Joined: Sep 2000

Dear Tiger

One more river to cross & then you reap the rewards. You have given do much to others on this site we all are glad of the opportunity to encourage you when you need us.

We all pray for you to find the strength we know is in you to bear it this last time.

Love & hugs

Pam

jane38
Posts: 137
Joined: Aug 2000

Catherine, what a beautiful person you are. Welcome to our network. Your words struck home with me and reinforced my belief that as women we are strong and united we can conquer anything and everything. Jane

nancys
Posts: 336
Joined: Aug 2000

Catherine, What a powerfull message!! You are just the kind of person we need to encourage us from time to time. Stay on the site and lets hear from you again. Your Friend, Nancys

cekramer
Posts: 33
Joined: Oct 2000

Hi all,

This is my first message to the group. I am 34 and undergoing my first Taxol treatment. It has not been easier than the AC, as the docs all said it would be. I'm hoping it gets better since I have three more rounds to go.
I'm lucky in that I only had one positive lymph node following a lumpectomy. But my grade was a 3 so I am scared of a recurrence. My family and friends have all been supportive and so I thank God for that too.
Last week, my surgeon gave my name to a 31 year old who was just diagnosed, so that I could talk to her re. her options and treatment. It helps to have others to talk to.
I hope everyone's doing ok this week.
CK

jane38
Posts: 137
Joined: Aug 2000

Hello CK. Jane here. I am 62, diagnosed with stage 3A infiltrating ductal cell carcinoma of the left breast in March 1999. Try not to worry too much. I survived the treatments and in spite of all the misery they cause it is well worth it to hear "YOU ARE CANCER-FREE, GO OUT AND LIVE YOUR LIFE." I received a modified radical mastectomy and lymph node dissection with five of ten lymph nodes positive. I had two separate sites of cancer in my breast. I also had Paget's disease of the nipple. I underwent chemo with Cytoxan, Adriamycin and 5-FU for four cycles and then four cycles of Taxotere, a relative of Taxol. The Adriamycin made me sicker than a dog and I really had my doubts that I would complete my treatment with it. The last two treatments I had to force myself, but I did it. Taxotere, on the other hand, did not make me nauseated, but it hurt like a son of a gun. After the second treatment, I told my onco I could not tolerate the bone pain and discomfort this drug was producing, so she then prescribed Medrol Dose-Paks for the following two cycles. This helped tremendously. Following chemo I had six weeks of five days a week of radiation therapy with a boost to the scar. Radiation was a breeze compared to the chemo. I had an elective mastectomy on the right with concurrent bilateral free TRAM flap reconstruction in February of this year. A very difficult operation, but I am glad I had it and would do it again in a heartbeat. In October I had revision of the right breast reconstruction and nipple-areolar reconstruction on the left. I still have the nipple-areolar reconstruction on the right to go which will probably be in February or March. I have had a lot of health problems since my bout with cancer which I attribute to the chemo; however, it could just be age-related. As I refuse to believe I am getting in that "old" group I find blaming it on chemo and radiation is appropriate. I have had a problem with hypothyroidism which I have finally gotten under control, hypertension which is controlled and GERD (difficulty with digesting my food, just getting it to my stomach) which is now controlled. I have had a lot of bone problems which x-rays and MRIs have shown to be DJD which is degenerative (again that old thing) joint disease and arthritis. Still working on fixing that. All-in-all, I consider myself very fortunate. I have survived breast cancer. But then, I am WOMAN. I can do anything. My life has changed, for the better I think. I don't spend so much time thinking about me. I volunteer with the ACS as a speaker, I work their health fairs and I drive patients to and from their appointments. These things give me so much pleasure and enjoyment and contentment. I believe that this is why I have been spared and is my destiny, to reach out to other people and to be helpful. I have learned how to forgive (a biggee for me) and how to ask for and accept help, another biggee. I have made many new friends throughout this ordeal, most of them are right here on this site. We are a group of ladies who have conquered or are in the process of conquering this nasty beast of a disease. We will help you in any and every way possible. Please visit us often and don't be afraid to say or ask anything. Again, WELCOME! Jane

pamtriggs's picture
pamtriggs
Posts: 408
Joined: Sep 2000

Dear Jane

Read your reply to CK. Just a thought about your bone pain. If it is arthritis have you tried any form of Glucosamine Sulfate. This is a natural supplement well known for helping with this - especialy in hip & knee area. I have taken it for years. All my MRI show no cancer in the head of my femur but did show a healing osteoarthritis so it must be working. Just a thought. Keep up the good work and say a prayer for Pat Sharkey who is very down at the moment.Love & hugs
Pam

jane38
Posts: 137
Joined: Aug 2000

I have not tried the glucosamine or the chondroitin. Guess I really need to do it. I'm really tired of pain meds. And Pat is in my thoughts and my prayers. We really do have to do something about this beast. Jane

jackies
Posts: 30
Joined: Sep 2000

Hi CK. Welcome to the family. You'll find alot of support and encouragement here. I'm Jackie and I'm 42. I was diagnosed with invasive breast cancer in July. (By the way, I'm the one who wrote the message "Miserable on chemo-Just want to quit!) I'm in a clinical trial where I get all my chemo (8 courses) first, then surgery (probably lumpectomy), then radiation. Also Tamoxifen for 5 years. I finished my 4 courses of A/C, now I'm halfway thru 4 courses of Taxotere (cousin to Taxol). Yep, these 2 drugs are miserable to deal with, but I understand they are extremely effective. THe worst side effects for me have been severe musculoskeletal pain, and extremely low white count. I've been hospitalized after both my 1st two Taxotere treatments for severe neutropenia. This 2nd round caused my ANC (absolute neutrophil count to go to "0"!) What kinds of side effects have you had? My Dr. gave my Vioxx (a new arthritis drug) for the general pain. It definitely helped. I also had to have my Taxotere dosage decreased due to the severe white count. Are you married? Do you have any kids? I'm married and have a 17 year old son and a 13 year old daughter. I live in SW Penna. Do keep in touch. Tell us more about yourself. And don't hesitate to share how we can best support you. We take turns encouraging each other and we pray for one another too. So Long. Jackie

cekramer
Posts: 33
Joined: Oct 2000

Hi Jackie,

The worst so far from taxol has been the joint pain for two days. My white and red blood cell counts have been ok so far.
Had my second treatment yesterday. What causes the neutropenia I wonder?
I am single and have no children. My family has come out to visit LA where I live for each treatment, taking care of me cooking and
cleaning. Two things I hate to do! I can't wait til this is all over. Two more chemos and then six weeks of radiation.
I am working from home at least although that has been difficult. I have a demanding job. I have considered going on disability. I'm sure once
I go back I won't be able to take vacation for a long time. Last year during my vacation I was in the hospital for an appendectomy. I've had a bad
two year's healthwise.

Well, take care and I'll say a prayer for you. I had the option to do chemo first but didn't want to take the chance that it
wouldn't help.

cherdaetwyler
Posts: 165
Joined: Dec 2000

Hi, cher here,

Neutropenia is caused by the bodies inability to make new cells faster that taxol or whatever
other chemical kills them. you have to walk a fine line between keeping cell reproduction
high enough to keep you healthy and low enough to destroy the cancer.

I am glad you are doing well on the taxol because I get taxotere stating in April after
4 cycles of AC. the first cycle of AC is on 1/9/01...it seems like such a long time to wait
when they scheduled it but now its almost here. Basically went fast because they kept me running for this test and that.

prayers, hugs, to all,
cher

K2
Posts: 1
Joined: Feb 2011

Hi Jackie,

I am so sorry to hear that your body aches and I do have some suggestions that helped me tremendously when I went through chemo (finished 4 weeks ago -yea!). Don't laugh - I used a wonderful acupuncturist 1x/week for the entire time I went through chemo and I loved it - it was completely relaxing and helped alleviate any anxiety I had about doing the chemo (FYI - the needles are very thin, small and not scary - it doesn't hurt). I also went vegan for the entire treatment period (animal fats are linked to cancer) and upped my super green vegetables (at least 5 servings a day - always organic kale, spinach, blueberries, tumeric - super spice known for shrinking tumors, garlic, etc.), especially just before during and after the chemo treatment. I also did everything I could to get outside every day and at least walk. It helped to move my muscles and even if I felt a bit sluggish, it started to wear off by the time my walk ended. Now that chemo is over, I still have some sluggishness in my muscles, but it always goes away after I get a walk in.

Before you throw in the towel, try seeing if some adjustments to your diet and/or any alternative treatments might work for you (P-T, acupuncture, chirorpractor or massage therapy). I truly feel for you and hope this gets better soon!! I am routing for you!!!

BTW ladies - I KEPT MY HAIR. Penguin Cold Caps DO WORK. I can send you pix from my CaringBridge blog if you'd like.

Best of luck to you Jackie!! Please post again with how things are going!!

Kristine

kacee999
Posts: 109
Joined: Oct 2012

Been there, done that. I too had TAC chemo (all three at once though). Ask your doctor if there is a possibility of getting on Lyrica. It's for Fibromyalgia. I suffered from February through this past week (October) during and after chemo with excruciating body pains. It's caused by Levoquin (muscular pain), Neulasta (bone pain), and I think the Adriamycin and Cytoxin and Taxotere too. My oncologist shrugged his shoulders and threw pain pills at me. I was living on Norco and Vicodin. I finally went to a rheumatologist last week who put me on the Lyrica. For the first time in months I have relief. It would be a shame not to be able to start that until after chemo, but go ahead and ask. It worked better than all the pain pills (and I've been taking a LOT). It's down to a "dull roar" now and I can deal with it with one of two pain pills a day.

StrawSpinner
Posts: 2
Joined: Jan 2014

I am 48. I was diagnosed with IDC in 08/2011. 2cm tumor, ER+ PR+ HER2+. I went through 6 * (Abbraxane + carboplatin + herceptin), 1/3wks. Then I finished 12 * Herceptin. 1/3wks. and Tamoxifen.

12/2013, I found a 1cm local recurrence ER+ PR - HER 2+. My oncologist plans to give me Adriamycin + Cytoxan, and Lapatinib and pertuzumab for HER2. 

I read information on AC on the web and found information on side effects on heart several years after treatment, on the mouth, etc. Could Someone that have gone through AC long time ago, please let me know whether the medication have long term side effects on heart years afterwards?

Another oncologist suggest that I use Abbraxane again for 6 treatments, and also use herceptin + peyeta for HER2. He is also planning to put me menapause.

I am wondering which course I should go about. Any suggestions?

 

 

SIROD's picture
SIROD
Posts: 2179
Joined: Jun 2010

Bump Up

SDickerson
Posts: 44
Joined: Aug 2010

I was on Abbraxane for over a year. It is very easy to tolarate. The only side was hair loss.

 

Best wishes,

Shannon

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