Prognosis

Galrim
Galrim Member Posts: 307
in Kidney Cancer #1

Seems that I get slightly different answers depending on who I ask and what I read, so here goes to all you laymen :-)

T2N0M0

7,6 cm

Grade 2

nephrectomy August 2010

just had my fifth check/scan without any indications of a relapse or spreading

45 years old and generally very good health

 

My urologist says Im now so much below the radar for a recurrence that I might as well win the lottery

My family doctor says theres a ten percent chance of a relapse

My oncologist doesnt like numbers but just keeps repeating the risk is "low"...

 

what to think?

Comments

  • NanoSecond
    NanoSecond Member Posts: 653
    #2
    Prognosis

    I vote for your oncologist.

    Now ask him how to make that risk even lower.

  • Galrim
    Galrim Member Posts: 307
    #3
    NanoSecond said:

    Prognosis

    I vote for your oncologist.

    Now ask him how to make that risk even lower.

    My oncologist always just

    My oncologist always just turns it into the positive aspect without being precise, meaning if I say "I know theres a risk, how can we/I reduce it besides the obvious fact of leading a healthy life?". His answer is always in the line of "Well, youre only grade 2 and it was almost a T1 and youre young and yaddayaddayadda"...bottom line I wont get him to define "low" without stcking a gun to his head and I in a way dont think I can blame him. Sometimes is just calming to have a number you can hang your hopes on I guess...

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #4
    Galrim said:

    My oncologist always just

    My oncologist always just turns it into the positive aspect without being precise, meaning if I say "I know theres a risk, how can we/I reduce it besides the obvious fact of leading a healthy life?". His answer is always in the line of "Well, youre only grade 2 and it was almost a T1 and youre young and yaddayaddayadda"...bottom line I wont get him to define "low" without stcking a gun to his head and I in a way dont think I can blame him. Sometimes is just calming to have a number you can hang your hopes on I guess...

    Risk

    Galrim,

     

     

    Your family dr. is way too high.

     

     

    Icemantoo

  • Galrim
    Galrim Member Posts: 307
    #5
    icemantoo said:

    Risk

    Galrim,

     

     

    Your family dr. is way too high.

     

     

    Icemantoo

    Think youre right

    Icemantoo, from what I could dig up on the net (havent read statistics for a long time as I know they never describe ones individual situation) it looks like youre right. 

    From what I can find approx. 30 percent who didnt have spreading at nephrectomy get it later, however 80-85 percent of those get it within the first three years. Grade 3/4 has a four time higher risk. And I assume, this I oddly havent found any statistics on, that large T2 and T3 have an increased risk. I was a very small T2 (borderline T1), grade 2 and Im almost at the three year marker.  Looks like my family doctor just threw a number if you do the math on the above...

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