My Tx Updates

phrannie51 said:

Oh Bob, my heart aches for you....
Can't help but think it's the 5FU that is responsible for most of your misery. I'm like the others, I do think you should keep up the fight....the first round of 5FU had me wondering if the last three treatments were necessary, too...because of the pain and misery. My Dr. cut the dose by 20% justifying because of my weight loss...the next two rounds were better...the mouth sores not so intense.

As for the nausea...I too took Emend in the mornings, and had Zophran and Compizine as backups. I had a little ritual to help keep food down. I'd take my Zophran, then 30 minutes later I'd pour a Boost down my tube (I mixed the Boost in a large paper cup with milk, so it'd go down the tube easier). The Zophran kept the food down...I'd do the same during the day with water, I'd water myself after a anti-nausea pill...in order to keep it down.

You may find yourself having to get hydrated during this time, so don't be undramatic and let that slide. You saw how much better you felt after hydration...lack of hydration makes us feel every rotten symptom except thirsty.....weak, nauseated, dizzy, and so sick we don't want to fight.

Ask about cutting the dose of 5FU a tad....and if you aren't getting the anti-nausea meds you need, ask about those too. I truly think that once you get these last 3 chemo's under your belt the Erbitux will seem like a walk in the park.

You can do this...you just need help in getting it done....

p

So...
Is the Erbitux just a shot a week and that's it? And it is not nearly as bad as this cocktail I am taking right now???
That could be a bit of a relieve for a while.

I would really like to know more about it from a personal level rather than a pamphlet.

-BB