Things are good but for how long!

belindahill
belindahill Member Posts: 144
in Colorectal Cancer #1
2 yrs since dx stage 3c, then secondries 10 mths later, 12 cycles of oxliplatin has had to stop NHS guidlines, on avastin and capcitabine. Things are going so well for us, my husband works part time, swimms nearly every day, and we are even going to ibiza 1st oct. I want our happiness to last, so scared when cancer takes over chemo. Just wanted to put my thoughts into a post. Love to all xx

Comments

  • steved
    steved Member Posts: 834 Member
    #2
    Just enjoy life
    I am not sure where your cancer is at- whether you are in remission or still have signs of it on scans- but either way you can do nothing except for get on with your life. Many here can provide advise about things people do in this phase you are in to help prevent recurrence but you need to find your own personal approach and balance to that, and keep the focus on enjoying each day. I found the phase after stopping active treatments very hard as it felt like I was no longer fighting the cancer and I think it is often those feelings that drive people to explore preventative measures. However, those feelings do ease and in time cancer begins to occupy less space in your life ie you think of it less and those feelings that you are always looking over your shoulder for it to come back subside.It sounds like you are daring to live again but along with that is the fear that if you start living life normally again and take your eye off the cancer you are almost tempting fate. This too is something I remeber well asa feeling but again simply getting on with life slowly gave us the confidence to build it back up again.

    You are also in a phase where perhaps you can see an occasional positive having arisen from your illness- the new level of appreciation your may have of simple things like swimming and having a holiday away.

    Enjoy and don't feel guilty for it- you have definitely earnt it.

    Steve
  • belindahill
    belindahill Member Posts: 144
    #3
    steved said:

    Just enjoy life
    I am not sure where your cancer is at- whether you are in remission or still have signs of it on scans- but either way you can do nothing except for get on with your life. Many here can provide advise about things people do in this phase you are in to help prevent recurrence but you need to find your own personal approach and balance to that, and keep the focus on enjoying each day. I found the phase after stopping active treatments very hard as it felt like I was no longer fighting the cancer and I think it is often those feelings that drive people to explore preventative measures. However, those feelings do ease and in time cancer begins to occupy less space in your life ie you think of it less and those feelings that you are always looking over your shoulder for it to come back subside.It sounds like you are daring to live again but along with that is the fear that if you start living life normally again and take your eye off the cancer you are almost tempting fate. This too is something I remeber well asa feeling but again simply getting on with life slowly gave us the confidence to build it back up again.

    You are also in a phase where perhaps you can see an occasional positive having arisen from your illness- the new level of appreciation your may have of simple things like swimming and having a holiday away.

    Enjoy and don't feel guilty for it- you have definitely earnt it.

    Steve

    Thank you
    Hello steved, for you lovely reply, you are so right in what you say. My husband has cancer in 3 places. Liver lung and peritoneum, but just able to see on ct scans. Things have stayed stable for a long time, and starting to live life normal again is just so wonderful. Thank you so much for your positive reply. Belinda. Please take care.
  • John23
    John23 Member Posts: 2,122 Member
    #4
    belindahill


    Re:
    "Things are good but for how long!"

    I have been asking myself that since 2006... just sayin'..

    Listen, we -all- continue to look over our shoulder for the
    "Grim Reaper"; that's what a diagnosis of cancer is all about!

    We all are the same in that respect; we -all- worry about a recurrence.

    Those that have never been diagnosed with cancer have
    absolutely no idea of the impact it has on one's life,

    I haven't taken my herbs for nearly three years, and since my
    operation in 2010 that left me with a "short bowel", drinking herbal
    broths may not do a blasted thing since they'll run through me
    in a heartbeat.... My attitude regarding that, is about the same
    as someone stopping chemo... we feel like we're not fighting
    hard enough; as if we should be doing something - anything,
    and not just sitting on our hands.

    I suppose we should all keep in mind, that many cancer victims
    live on for many, many years without ever doing anything beyond
    surgery, and many stop treatments against their physician's advice,
    only to live on and on quite well.

    So worry away; welcome to "the club"!

    But go ahead and enjoy what you can, while you can, otherwise
    you'll just worry away all your days until you're too old to do
    what you had once wanted to.

    "Hindsight" is something we gain from looking out of our rear-ends too long.
    (a lil' "John" philosophy)

    Best of health to you and yours!

    John
  • danker
    danker Member Posts: 1,276 Member
    #5
    belindahill
    Glad things are going well! Only God knows when are last day is, and He isn't telling. LOL I;m 80 and i think I have 10 more years. Just enjoy life while you can. Good luck.
  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    #6
    Very hard to know
    Glad things are going well. Hard not to be concerned for the future. Best to you and your husband. Art
  • Doc_Hawk
    Doc_Hawk Member Posts: 685
    #7
    danker said:

    belindahill
    Glad things are going well! Only God knows when are last day is, and He isn't telling. LOL I;m 80 and i think I have 10 more years. Just enjoy life while you can. Good luck.

    No Expiration Date
    Amen to that, Danker! My maternal grandmother was dx'd with colorectal cancer in the mid 1970s and wore a colostomy bag for the rest of her life (which she was always certain was just weeks away) and passed away in Sept 2001. After her funeral, we went to visit my paternal grandfather, who was coming up on his 92 b-day and swore that he was going to make it to 100. He passed away that very February. We just never know, so we should make the best of the time we're in now.
  • Eltina21
    Eltina21 Member Posts: 173 Member
    #8
    Life
    I agree with the previous comments. Enjoy each and everyday. We all have so much more living left to do and so much joy to spend with your friends and family.
  • menright
    menright Member Posts: 256 Member
    #9
    title
    Your title says it all.

    Mike
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #10
    Dear Belinda
    There is just no way of knowing what the future holds.

    Fear of what might be entered all our lives with the cancer diagnosis.

    The best any of us can do is to enjoy the heck out of the good days. Worry about what might happen will not change the future and will rob you of the joy you might have had.

    When the fears come to mind, acknowledge them but don't let them linger too long.

    Wishing you and hubby all the best.

    Marie who loves kitties
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #11
    Hi Belinda
    I'm very happy to hear things are going well.
    Cancer or no cancer, anything can happen to anyone at anytime.
    (it's the fine print in our Birth Agreement)
    Try not to live in fear or live as a victim. Is that really living?
    Enjoy life because we never know what lies ahead...
    -phil
  • RickMurtagh
    RickMurtagh Member Posts: 587 Member
    #12
    PhillieG said:

    Hi Belinda
    I'm very happy to hear things are going well.
    Cancer or no cancer, anything can happen to anyone at anytime.
    (it's the fine print in our Birth Agreement)
    Try not to live in fear or live as a victim. Is that really living?
    Enjoy life because we never know what lies ahead...
    -phil

    haha
    Phil - you are too funny - fine print - too bad the forums don't support mouseprint.

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