Watch & Wait for low grade?

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  • kfarley
    kfarley Member Posts: 5
    #22
    dixiegirl said:

    Amazing!
    I used acupuncture for side effects of chemo and got wonderful results too. I think I will pass on this message to my doc who does it.

    Congratulations!

    Beth

    accupuncture
    Hi
    I think I will give it a try. How did you choose an accupuncturist?
    Kathy
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #23
    kfarley said:

    Indolent B cell & accupuncture
    Accupuncture can't hurt & it seems to have helped you. How did you go about chosing an accupuncturist? I live in Hawaii & there are a lot of accupuncturists. I went to one for carpal tunnel a few years ago but I was not sure it did much & it cost $75 a session. He was from China. I've gone to a locally trained practitioner & I really didn't have any faith in her. She seemed preoccupied. Did not feel that she had a sense of how to treat illness. Any words of wisdom are appreciated.
    Kathy

    Chiropractor
    The gal who did my acupuncture is a chiropractor that I see. It's a family office. The dad does my chiropractic work and she does more of the holistic side with acupuncture, diet etc.

    Just keep searching till you find someone you like.

    good luck on the search, mine was worth it.

    Take care,
    Beth
  • Keith1961
    Keith1961 Member Posts: 10
    #24
    hilde451 said:

    Low Grade
    Hi: I have non-hodgkins follicular low grade Lymphoma since 04. I had surgery twice, the first time in 04, and 22 radiation treatments. Then I was home free for almost 5 years , where I thought I had beat it. One week from 5 years. But I knew it was back.
    Well it came back with a vengence. I had been diagnosed with stage 4. It was in my bone marrow. I did 8 chemo treatments R-Chop and then a radioimmuntherapy called Zevalin that was in O9. I just had a cat scan in December 1, it showed remission. So we will see.
    It is just funny when you have pain elsewhere you think it is back. I do have some pain in my leg muscles. Sometimes in my arms. But that is it.
    Hope you are doing ok. I really trust my dr. Hilde

    Watching
    I have follicular lymphoma in my small intestine. Stage 1 Grade 1. I was just advised by the Stanford Cancer Center to take the "watch and wait" approach.
  • millard
    millard Member Posts: 9
    #25
    COBRA666 said:

    No b-symtoms
    Kelly it is definite you need those 2nd and 3rd opinions. Make sure you have a onc you can really trust and is up on the latest treatments. You said its in your bone marrow so that does make it stage 4. Thats where I am as well. try not to get discouraged. It is rough believe me I know that. You really feel as though you are alone. I know the feeling all to well. Don't be afraid to ask questions on here. We will help you get through this thing. They have come a long way with cancer in the past 20 years. What we have is not cureable now, but it is manageable with treatment. Indolent follicular is slow growing. John

    Treatment
    OK, it is good to know it is definitely not curable. Now, is it treatable in a way that may slow it down or reduce its size?

    Mine is in my spleen. The jockers wanted my spleen out to do a biopsy. thats silly to me, they could do a biopsy, but
    cannot put it back in!!!

    I think they can diagnose it with looking at my blood under a microscope, right?

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