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Ovarian Cancer

Archives for March 2012

interperitoneal (IP)
Has anyone else had interperitoneal treatment with ovarian cancer?
Zeolite Products anyone tried them ?
am reading alot about zeolite and I wondered if anyone here has tried it? it makes alot of sense to me but I wonder if it realy would work .
Knouse Program - has anyone tried this?
Hello, I am new to this message board. My Aunt, who is 46 years old, has been battling stage 3C ovarian for the past 3 years. She has had multiple reoccurrences, bowel obstructions, and 3 months ago we found out it has spread to her lungs. Someone has mentioned the Knouse Program to her and I'm trying to find out more…
New to this site
Hi, I am newly diagnosed with some sort of cancer (hopefully ovarian). I had a baseball size tumor removed from my right ovary last Monday. My gyn/onc also removed the other ovary and 5 lymph nodes which were all clean. My gyn/onc didn't think the tumor was cancer by looking at it but the lap report indicated otherwise so…
Ng suction
My mom was diagnosed nearly 3 years ago with stage 4 ppc. She has been on chemo ever since. Lately she has been having trouble with severe bloating and intestinal problems. Yesterday she was admitted to the hospital b/c she was vomiting every hour and was having severe pain as well. No blockage has shown up on the xrays…
Petscan
Well my petscan is scheduled for Monday after noon. I have seen the picture of the machine and holy ****!!!! I am not sure I will fit lol when I look in the mirror I still see the size 6x I was and not the size 3x, but I do have to ask has anyone ever gotten stuck in it lol. Ok now that I am done make fun of myself does…
Worried
I am almost six weeks out from my second surgery. The first was easy.....ovaries and tubes. The second, three weeks later was to take all the rest and to stage me. I was dx stage 1 but am so scared that this evil cancer will be back. I read these posts daily and I pray for all my teal sisters. I live in fear that another…
Cyberknife vs. traditional radiation
Hello all, I have on and off these boards since 2008. I have been fighting the beast since then with little break. I just had surgery to try to remove four tumors that chemo didn't get. Unfortunately one was in a life threatening place and could not be fully removed. My Doctor is suggesting radiation and chemo. I had this…
new member in remission
I am worried now about recurrance. The studies I have read said there is a 5 year survival rate. I had stage III ovarian cancer. My treatments were intravenous and intraperitoneal Cisplatin and Paclitaxil chemo.I have 2 teenagers and want to see my grandchildren some day.Any encouragement would be great. Thanks.
Helpless
Hello, Two years ago my dad passed away from a heart attack which was 2 days before my mom's 60th birthday. It was also the same day as my mother inlaws birthday. Well 9 months later my mother inlaw passed away from a heart attack as well. Now on 2-21-12 we found out that my mom has uterine and ovarian cancer that has…
taxotere and avastn
Hi ladies. I started my maintenance chemo today with taxotere and avastin. It took an hour for the taxotere and one half hour for avastin. I am doing well so far but the side effects dont usually start until about the 3rd to 4th day afte tx. I have been keeping a journal for my family since I was diagnosed in 4/11. It…
For those of you on Coumadin
I've been seeing alot of posts lately about coumadin. When I saw my oncologist in White Plains, I brought her a article I clipped out of the paper about coumadin (name brand) versus warfarin (generic). It seems from the article that it's better to take the name brand versus the generic as pharmacies usually change…
extreme fatigue
Hi There, My mom has pretty much been in chemo non-stop for 2 years. She had to take a break due to a brain met (that was successfully treated with gamma knife). During that break, she was prescribed dexamethasone, which is an immunosuppresent among other things. Her cancer went wild and dramatically spread throughout her…
hello all
my beautiful courageous bride of 40 years has muscinous adenocarcenoma. had debulking surgery feb 23, 2012, removed omentum , recovering great. had 4 carbo/taxol chemos prior, PET showed significant shrinkage. onco still cant identify source of cancer. poorly differientiated, . anyway thanks for your help and support. this…
Starting chemo
Hi, I am new to this. I will be starting chemo treatments next week. I go in tomorrow to have the port put in. Of course all I am feeling right now is scared, scared, scared. It has been such a journey this past month, I can't believe it. I have so many questions, and don't know where to begin. Guess all I am looking for…
Blood Thinners
My onc. is keeping me on blood thinners even though my post-surgical blood clot has resolved. Apparently people on chemo are at higher risk of blood clots, so he does this routinely. At least that's what he tells me. Is anyone else on blood thinners or was while on chemo? I would really love to discontinue those daily…
Thank you everyone for you kind replies
I really means alot to have this support. Today is not such a bad day and will be seeing the oncologist. So thank you again to everyone who has responded to my posts. By the way, now I know why docs don't suggest Hexalen, the oral pill. It did absolutely nothing for me except make the cancer worse. But, what the heck, I…
Feeling lost and confused right now
Hi all well I went to the ONC today to talk about what we are going to do regarding the rising CA125 it 82 right now. When I walked into the meeting I thought we were going to talk about cat scan vs pet scan what I found out was I am being dropped from the study because my CA125 is still rising and not dropping needless to…
heard bad news today been very upset
Saw my pcp today and told him how I've been feeling all weekend, ankles swollen, and can actually feel tumor middle of my chest. Asked him if it was ascites, he said no. He was quite sad when he told me the cancer has worsened since I've been on the Hexalen pill (January). He said that what I'm feeling in my chest is most…
Recieved a nice invitation today
from a wonderful woman I met awhile ago who runs an organization that raises monies and awareness for OVCA. She lost her daughter who was 24, and she works tirelessly in her daughter's name. She invited me to be her guest at a fundraiser and is sitting me at a table with other organizers of local run/walks and other…
Chemo Over
So, my 8 courses of chemo (carbo/taxol) are over and I've had a PET scan. Apparently a couple of small tumors disappeared and there's two that are pretty small that have gotten smaller. My onc. had talked about maintenance chemo, this visit he said he was now putting me on just Avastin every three weeks. When I questioned…
Teal Warriors
In July I will celebrate 3 years Cancer Free. Since my diagnosis of Ovarian and Uterine Cancer in 2008 I find myself getting more and more angry or bitter if you will at the fact that there are hardly any organizations relating to Ovarian/Uterine Cancer. Recently my sister decided to become a co-chair for a breast cancer…
Has anyone had ascites - I think I do now
I think I have ascites, my abdomen is a little distended, I've gained some weight despite not eating anything more than usual and my ankle seems a little puffy. My cancer is getting worse. Has anyone had this? What needed to be done? If you had drainage did your gyn/onc do it in the hospital or someone else. Any…
Lulu1010 can you answer a question for me about the overnite carbo infusion - you answered my post
Thank you for letting me know you had the carbo infusion as a slow drip. Did you stay overnight in the hospital? Were you able to get all 6 cycles and was it Carboplatin alone and anything else you can share with me would be appreciated. Thanks again.
Non-chemo OVCA therapy
Here's the link to something interesting said about PARP inhibitors (still in clinical trials). The best part of this article is the part where the expert says (and I paraphrase) "patients with ovarian cancer, for various reasons, are living longer than ever before."…
Doxil
I had my first Doxil treatment this week. I know it has little side effects but I felt tired and not much appetite. Did anyone else who had this have minor side effects. I sure didnt feel like doing much. The other question is what kinds of things did you do during the time of treatment. I know we are not to use our hands…
Need some advice
I need some advice from others who know what I am talking about. I started out on dense dose taxol. We had to nix the taxol after 2 rounds and swtiched to taxotere because of severe neuropathy. I'm talking fiery razorblades in my hands and feet and fiery tingles all over my body. Started neurontin and vit b6 and the…
Stupid question
Been a member for a month and can't figure out why I don't have a little icon by my name. I know.....stupid question but still wondering.......
Today's magic number is...
12 Doing the happy NED dance one month at a time. Carlene
Got some bad news today
Went to see my onc today...for checkup & discuss chemo treatment, as current one isn't working. My hemoglobin was very low & have to get blood transfusion again. I also told the onc that the current treatment wasn't working according to latest CT scan and wanted to start on Carbo even though 2 years ago I had an allergic…

Ovarian Cancer

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