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Newly diagnosed, and scared
After having surgery on 10/17/08 (after 3 weeks of extreme abdominal pain) to remove what the doctor thought was a benign ovarian cyst, they discovered it was instead Ovarian Cancer. I went for my first visit to the gyn. oncologist at the Cancer Institute of NJ. Next week I will be having a complete hysterectomy and…
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Post Operative change
Hi Ladies, I got the results of my full body bone scan and NO cancer. But she did say that the kidney/ureter was swollen. (May be why I was having lower back pain). Anyways, I am Praising the Lord that there was no metastasis into the bones. And will make an appointment to see a urinologist. I asked my onc/gyn was it from…
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Question about Ovarin Cancer????
Next month I go to see the Ob-onconligist, I was diagnosed with breast cancer in Jan. 08 still doing reconstruction, finished 4 rounds A/C, bilateral masctomy, and 8 rounds taxol was supposted to have 12 but it hit me hard so dose 8 was 9-12 terable side effects, I am BRCA1 pos, HPV pos, and had pre-cancerous leasson…
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Lab Results and a bit of a rant :-)
God's morning to all! Sun is suppose to shine and temps are suppose to warm up today. Yesterday my labs showed my platelets are still very low, crept up to 50's, and so are the rest of my counts. Not sure what it will take to get my system working again. NOW my medicare Rant...so skip this part if you like :-) Yesterday…
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Has anyone tried or considered Acupuncture or Hypnotism?
Hello, Ladies, I'm just curious as to whether or not acupuncture or hynotism might be helpful in keeping the cancer away, and helping to control the stress and side effects. Has anyone looked into this, or tried this? Love & Prayers to all~ ~Susan xoxo
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venting I think?
before my diagnosis and surgery I boarded horses at my house for the last 9 years, and I have barn kittys that I adore, and a few pet geese and two dogs. oh yeah and the biggest gernsey steer you have ever seen in your life he is 9 and I have had him since he was 3 days old he thinks he is a horse. anyway needless to say…
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reaction to contrast dye in ct scan
I just had my ct scan today after my 6 rounds of carbo/taxol. realy hoping the tumor on the liver that they couldn,t get during the big surgery is gone or shrunk or at least not bigger. I should get results on tuesday and if everything is good I will still be in the avastin trial. anyway last ct scan I got just 1 hive on…
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CA125 Holding
God's morning to all! I just got off the phone with the clinic and they said my ca125 held. Tomorrow is my Dr appointment, chemo is scheduled for Friday but my wbc, rbc, platelets and hemoglobin are all very low so see if they rebound enough or not. May have to postpone it. In case it is postponed I called for an absentee…
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Femara
I am to start Femara, given for estrogen receptive breast cancer. Been researching the internet and it is kind of new... They did not test my cells at surgery but the hospital still has the tissue samples and i have requested the test. Don't know if I will get it or not. Anyone tried this? Is supposed to be easier than…
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Diferent subeject but would love your opinion
Hi Ladies, I¡m 3e weeks away from delivering my baby girl and I must decide between 2 names, both are french since our last name is french also (Quesnel. Please let me know your opinion on which one is nicer, sounds better with my last name, and is best pronounced in the USA. Amélie Anaïs Thank you, Liz
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Abdominal CAT Scan results
Hi all, fortunately my Mom`s back pains have calmed lately she is now 3 weeks away from her last chemo so feeling a little better. Thanks to God the Dr. sais the results were better than what he had expected. Bones look fine, and he said that he couldn`t see cancer were it was before(retroperitoneal lymph glands. What he…
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CHRISTMAS CARDS
Hello to all my Friends: For years I have been purchased Christmas cards from the ACS. However, this year I was hoping to find some that would specifically support Ovarian Cancer research, etc. Is anyone aware? I've done some Google searches and only came up with notecards, as opposed to Christmas cards. And the money…
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Could it be OC or just my imagination running wild again???
Hello, new to the OC posting but unfortunately not new to this site. I'm a 2-1/2 year breast cancer survivor. Was diagnosed with Stage 1 BC in Feb, 2006 - spent 1-1/2 years in treatment and have been doing okay except for a few scares and nervous doctor checkups, etc...the usual paranoia after anyone has been diagnosed…
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Dysgerminoma : Ovarian Cancer :Stage 1C : teenager 13 year old
My daughter has been diagnosed with Ovarian Cancer Stage 1 C. They removed the football size tumor surgically. Doctor is suggesting to undergo four rounds of BEP Chemo. Unfortunately my daughter's Pulmonary tests were not positive so Doctor decided to cancel teh Bleomycin and is now continuing with only Etopiside and…
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ca 125
Hey all! God bless you all, and may he carry us all through the good and bad times. I just called about my ca 125 and it went up, not much, from 139 to 181. I am trying not to get upset, but here I go. I know that that number is suppose to be just a poo poo number, dont take it too seriously, and God knows I try not to,…
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PICC line yes no
Hi eveyone, I had a nasty day of chemo today. Put it this way, I'm typing with just one hand, and it's not the one I write with! Anyway, I'll survive - it helps that my husband says that I type faster with my left hand than he does with both! What I was wondering about is now they're really suggesting a picc line for my…
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How does an abnormal pap test relate to previous ovarian cancer?
I received a call from the nurse at my doctor's office late this afternoon. I waited 16 days for the results and finally called this morning since I didn't get a postcard in the mail. There were some abnormal cells on my cervical cuff (cervix removed during surgery Jan. 2007) but she says it doesn't mean cancer. I think…
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dermoid cyst
I was diagnosed with ovarian cancer in april. they removed the tumor and my left ovary and falopian tube. When i went in for my check up a few weeks ago they said i had a dermoid cyst on the right ovary, that they are usually not cancerous, and that to remove it i will have to sign a paper saying they can take the right…
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Hexelan
I am new to this board, actually, just a few minutes ago. I did not see anything about Hexelan. Or maybe I am looking in the wrong area. But I have Ovarian Cancer Stage 3C and have completed 7 out of 9 cycles of chemo. Am going to my GYN/ONC this afternoon to see what my next step is. Was unable to complete #8 & 9 because…
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New to this board
Hi, I have been been feeling isolated and alone in fighting my battle against ovarian cancer. I live in a relatively small town and the only person I know with this disease in currently in hospice. I am 48 and survived breast cancer (stage 3) at age 40. I was diagnosed in April of this year, presenting with constipation…
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Report on CT
Well, the CT scan did not show anything, but they don't show spots or lesions less than 1 cm. The physical detected nothing either but because the CA-125 is such a good marker for me, a rise from below 10 to 50 in two months indicates that something is growing and we just can't see it yet. I have three choices (1) Continue…
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Tamoxifen and CA-125
Hello to all, As I've posted before, I've been prescribed tamoxifen because my CA-125 started rising in September last year. It peaked at 284 about two months after I started taking tamoxifen, and has been going down since. My October reading was 114, still high, but not causing me much concern. Since the CA-125 started…
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pain issues
Hi everyone - I am 9 1/2 months out of treatment and still dealing with pain issues in my lower body. A couple of weeks ago I saw that Saundra had mentioned that she also had pain issues at one point. I am scheduled to see a Rheumatologist in November (took me 6 months to get in) to see if he can come up with a 'reason'…
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Neurapathy symptoms
Hello ladies, I'm having some strange sensations lately and I was wondering if they are the beginnings of neurapathy. I have a chilly and numb feeling at my upper thigh. It tingles like I just had a cold chill..hair raising....and then I feel some kind of muscle stretching in my toes on the same left leg and feet. I'm…
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Latest Update
My Mom started having severe back pains since last Monday which don`t allow her to sleep because she can´t stand putting her spinal cord to rest not even on her pillows. She has been "sleeping" sitting on her bed for the past days and taking pain meds. This was only happing at night but yesterday it happened in the…
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Topotecan
Hello, everyone! I'm hoping to get feed-back on the Topotecan chemotherapy. I know that many of you have been on it. My doctor has suggested it for me. I would appreciate knowing how well you did, and what the side effects were. I'm pretty down in the dumps today after my appt. with my oncologist yesterday. I think I need…
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Topotecan
Hello everyone! My doctor wants me to start on Topotecan in two weeks. I know that many of you have already taken this chemo. I would appreciate it so much if I could get your feed-back about your experiences with this drug. Did it work and what were the side effects that you experienced? I guess I am feeling pretty down…
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L-Glutamine for Neuropathy
Hello again ladies, Can anyone tell me how many milligrams to take of L-Glutamine and B-6 to help neuropathy?? I tried Lyrica, and it didn't help. Thank you; and God Bless all of you!! ~Susan xoxo
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symptoms before diagnosis
This is my first time here. I was diagnosed Sept.14,2007. I had my first treatment of taxol/carboplaten on October 1st,2007. My last and sixth treatment was Jan. 21,2008. My ca125 is down to eight and I feel better than I have in years. I had my last check up Sept.8,2008. My next check up is Jan. 2009. That will be a four…
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Update
Hi ladies, It has been awhile since I have written....I'm just now beginning to feel better. I went to see my Onc last Weds and he increased my pain meds,stopped my diuretics,changed my nausea med to Zofran and gave me megace for appetite. I also needed pottasium and magnesium..so I have had 3 4 hour infusions of those…