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Head and Neck Cancer

Archives for April 2017

any very long term survivors here of Nasopharyngeal cancer?
Hi I was wondering if there were any long term survivors here. I am 16 years post nasopharngeal cancer treatment chemo and rads from the UK. I have had countless problems from the treatment in the form of late onset comlicationsand seem to go through cyles of them appearing. I am currently ulcerating at the old tumour…
Dental Problems and Persistent Lynph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
Happy Days star Erin Moran died April 22 from throat cancer
I just came across this article which appears on MSN.com today. “Happy Days star Erin Moran died April 22 from throat cancer that had spread to other parts of her body. A few days after her death, her widower Steven Fleischmann shared an open letter detailing Moran’s diagnosis and battle with cancer, Variety reported.…
Neck dissection, dental extractions, and tongue excision coming up..what to expect?
Hello everyone! First I'll start with some basic information about my situation. I'm a29 year old female married with 3 wonderful kids ages 10,2, and 6 weeks. I did smoke and rarely drank. IN September 2016 I was diagnosed with squamous cell carcinoma which presented as a sore on the left side of my tongue. I was 4 months…
Tumor shrinking?
Phew! I've posted a lot lately. But I'm full of questions. My big one is this; does the tumor go away completely? That may sound dumb but I'm slightly worried. My husband had his right lymph node involved and i can still feel it. It's clearly not as sizable as it was at the beginning. I have to push in to feel it. Some…
Questions regarding neck dissection and dental extractions
Hello everyone, hope all is well! Anyways quick question, I'm having a bi lateral modified radical neck dissection and will need 15 teeth extracted prior to rads/chemo that are following the neck surgery. The surgery scheduler called me the other day and told me my surgery date was going to be on the 17th. I just realized…
sinus problems question
My husband had stage 4 tonsil cancer back in 2011. he completed chemo and radiation and has been ned since. Recently he has been geeting stuffed up and his sinuses have been draining. He chalked it up to allergies. I finally talked him into going to his ENT. Well the ENT put him on antibiotics - aid his sinuses were really…
Wierd Neck Feelings
Radical Neck Dissection in July of 16. 12 lymph nodes removed, one cancerous (2014 found one lymph node cancerous and it was removed with 2 lymph nodes but the cancer (squamous cell carcinoma) grew back). Was supposed to do 6 weeks, five days a week of radiation but found that I could not tolerate the side effects (for…
Growth behind tonsil
hi all, Im new and haven't been diagnosed. 6 months ago I noticed an oval growth behind my tonsil. I didn't think much of it. My tonsils are always enlarged and I get frequent tonsil stones. I noticed last night it's still there and appears a bit larger. I called the ENT but I can't get in until July 10. I'm so worried.…
trying to find the good in the "bad"
Hello Friends, I hope everyone had a good weekend and a good Monday. We are in our first week, day 2 of recovery. So far, it sucks. Not gonna lie or sugar coat it. It just stinks. The euphoria of the last days has wore off and it wore off quickly. The thick mucous is ever present, the choking and gagging is at an all time…
Questions
Had my appt with Chemo Dr today, where she told me I'm not getting enough nutrition, AND, my kidneys couldn't handle another round of Chemo. I'm sorry but I am head over heels elated that I don't get to be poisoned a 3rd time, its been brutal, One week of speeded up feeling like crap, One week of total crap, and One week…
Help Interpreting Surgical Pathology Report
Hello All, last week, I had a small mucoepidermoid Carcinoma excised from the left soft palate area. It was described as intermediate grade. The pathologist report came, and now I'm told even though surgical outcome was as clean as i could have hoped for, I'll need radiation. Here is what the surgical pathologists report…
Solicitation for opinions on probiotics
I am in the middle of a war with my Thrush/Candida on my tongue, and right now I think the Thrush is winning. I am using liquid Nystatin four times daily, applied with religous discipline, and that seems to move it around but not finish it off. I have used 48 of my 144 disposable toothbrushes, and am fanatical on limiting…
Anyone heard of John (Skiffin16)?
Last online was on November 07 2016.
ROLL CALL 2017 - UPDATED APRIL 21, 2017 CLOSED
ROLL CALL 2017 3rd Updated April 21, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
Fever
My husband has completed his first week of treatment. For the past two nights he has had a fever 99.4-100.2. He is doing well with fluid intake and eating. Is this common for the NPC patient to run a low grade fever during treatment? I know I need to be certain he is hydrated properly during the fever. Any other things I…
Looks like the torch has been passed
I have not been on CSN for several months, after being a regular reader and poster for about 5 years. I signed in today, only to read about Hondo's passing--he was one of our best "citizens" and supporters for many years and will be missed. After that, my first impression was how few names I recognized, but did come across…
Last day!! Now what?
Friends, This is a HUGE day for us. My husband's last day of rads is today! At 4 p.m. he will officially be done with the 7 weeks of intense treatment. And I have no idea what to feel. Of course, I feel relief and joy. But... now what? He begins to heal and hopefully he can taste food soon... I know this sounds weird but I…
Coconut Oil - an absolute godsend !!!!
Hi there, It's been a very long time since I was here last. This is my 3rd year since treatment for base of tongue cancer. I had 7 weeks radiation and 6 weeks chemo. I have found that the last 6 months or so I have been waking in the middle of the night with my mouth absolutely bone dry, having water by my bed, drinking it…
Mmdowns, how is the hubby
Just checking in. How is he holding up since his last chemo? Oh and isn't today the LAST radiation? ? Hope all is well. Just remember, even as you celebrate the joy of finishing treatments, be prepared for there to still be rocky days ahead. It does get better but it's slow going. That said, still whoop and holler, hug and…
When reality hits
So, as I'm sitting here waiting while my husband gets his mask made, I saw the radiation machine and reality smacked my in the face and almost knocked me over. It's becoming more real. Watching it on TV or reading other people's stories is not the same. "This is stuff that happens to other people. This stuff doesn't happen…
Cancer Pain after treatment
Hey There Having gone through the chemo radiation for HPV+ tonsil cancer, I'm now in that 'limbo time' ... But not the funny dance under the stick ... The time where you are pensively waiting for your PET scan and hopefully NED outcome. (I already had my 3 month scan but it was inconclusive due to too much damage,…
Bad Weekend
So on Sunday I declared to whover could hear (son and dog) that this thing wasn't keeping me prisoner, and that I was going to Lowes, for a few brackets, hanging baskets, and flowers. Go to Lowes, saw my friend, started feeling a bit rough, then rougher, I'm not sure think I passed out on the patio furniture a few times...…
Small knot on thyroid pain to touch
Has anyone else experienced a knot on the thyroid with pain to touch? I've visited my doctor for an exam and the response was much of the same "nothing to worry about. It's all art of the healing process." I worry with the slightest change constantly wonder what's next. Any suggestions or comments? I have had radiation…
Last chemo day!!
My husband had his last chemo today!! We were still on the fence this morning And honestly, so was our oncologist but we went with an even lower dosage and fluids eveeyday for two weeks. He rang the bell today and it was more emotional than I thought. He only has 3 treatments left. we are so ready to be done!
Lymph node and Tonsil swelling
Hey all, I've read a few dated posts and everyone seems very supportive and informative on this subject so I thought I'd start a thread. I'm 24/M and feeling anxious about a few swollen glands under my jaw which have been there for close to 6 months now and my tonsils have just swollen, just enough to feel them when I…
NPC Treatment
Hello to all of you in this extremely inspirational group. My Husband will begin Chemo and Radiation tomorrow morning. I have found help and courage from all of you within this forum. We are fighting this "stuff" and your insight is priceless to me.
Scary choking
So my husband has started this new lovely form of choking. I know it's from the rads and the mucous. But it's scary. And it hits him out of the Blue. He's been drinking water but honestly it seems like the water makes it worse sometimes. Today he was so bad that he threw up. He can't help it. He says it usually happens at…
Something in my nasal-paranasal area
Hi you all I'm 16 y guy. I have been more or less sick almost a year now. I've had many right side sinusitis (not radiographed, but clinically diagnosted..) and I've had ten antibiotic courses from may 2016. On may 2016 the doctor lavated sinus because of the symptoms, but there was no pus. Sinus was only "narrow" or…
Gabapentin
What you are about to read is very true, nothing has been added or taken away. Thank you, ever so much. The information I am about to reveal is to help people handle their bout with head and neck cancer. So that no one is confused by my take on all this cancer stuff, I know absolutely nothing about any form of cancer. With…

Head and Neck Cancer

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