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Head and Neck Cancer

Archives for July 2014

released by the oncologist
Happiest of news yesterday! Four years after successfully completing what the oncologist called a 'brutal treatment', Jim was released by the oncologist. For anyone starting or working their way through their cancer treatments, we are with you in thought and prayer. Remember, it can be done and we hope for good outcomes…
updates
Hello everyone, Well the brother's completed all the tx's. And the peg was pulled today. He's around a month out already. Thrush rears it's ugly head, but the drs. are staying on top of it for him. Now it's healing time. First scan will be in Sept., CT w/contrast. Then a PET/CT 6 mo's out. Wonderful ENT very experienced…
Swallowing issues
I was diagnosed with Stage 4 cancer of the larynx Jan. of '13. Did 35 rads plus 3 chemos followed by neck dissection Dec. of '13. About a week ago I noticed my right eye is droopy and speech is a bit slurred because the right side of my tongue doesn't work quite right. Have had trouble swallowing all along. Have been NED…
New jaw bone not attached
dr Garvey at md Anderson is my plastic surgeon. Heres the current problem. 3 years ago had part of mandible replaced with fibula bone And secured in place with titanium plate, Everything went fine and no cancer so far however. The new bone has not grown together with the original jaw bone. It is at 45 degree angle. It also…
IMRT Radiation Therapy
In early August, my husband will start 6 weeks of IMRT (possibly proton if the insurance company approves the appeal) of his tracheal area at MD Anderson in Houston. The on-site hotel there does not offer a monthly rate and is $120/night, so I am looking at alternative lodging with shuttle service to the hospital. My…
Lemons and Lemonade
Started the week off with feeling lonely. Then I had a major crying jag and was praying God would just take me. Then I broke my glasses, was told my closing on condo was postponed for two months and if that wasn't enough, I came home yesterday afternoon to find my house smelling like a sewer. Not just lemons, but rotten…
Squamous Cell Throat Cancer & the Elderly
Hi Folks, I'm new to this forum because my 80 year old Mom aka Best Friend was just diagnosed with SCC. She had a sore on her tongue and she had her PC look at it and he dismissed as a cankor sore. Well, it festered and she kept dismissing, because she does what most of us do ... trust the doctors and keep thinking it will…
Antidepressents/anti-anxiety meds....
Is anybody taking these post treatment? I'm almost two years out, and I'm thinking of talking to my Onc about taking something again....I took them during treatment...if they helped or not, I couldn't tell. p
Chef Daddy Mike
Mike is down and out; he got evicted from where he was living because he could not pay the rent; So on top of all his health issues he is now homeless. I can’t understand how the government can give money and housing to people who should be out working and people who are sick and in need can’t get any help. Please keep…
special care for dental work?
hi, i had 35 rad tx to my larynx which ended 10/22/09. because the larynx is farther down the throat and more away from the teeth, i'm wondering if i still need special care to have a tooth pulled? I'm getting one pulled next Tuesday but was thinking since my teeth weren't directly in the line of rads, i should be ok. what…
Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
Doctors Disagreeing
Today my husband went back to his local oncologist for round 2 of induction chemo and had an upsetting conversation with the oncologist. He made it very clear that he still believes the lungs show disease despite the biopsy done at MD Anderson saying "NO MALIGNANT CELLS IDENTIFIED". He wants to order another biopsy. WTF...…
Laryngectomees Heads Up
Hey guys (unigender) it would appear that there are a number of folks here who, like me, are laryngectomees. So, I just want to give this heads up to everyone, in case someone does not know, about the International Association of Laryngectomees (IAL) on the web; and Webwhispers, a daily e-mail forum for larys. The IAL and…
A Little Update
Hi Sorry, that i wasn't too active in the fourm these past few weeks but anyway i am here so i decided to update little bit about my dad. He is already in his 13th days of radition and he will start his second round of chemo on the 10th of this month. His mouth is starting to hurt a little and he said that his throat hurts…
Dysautonomia
Sitting here in Jim's hospital room as he begins to fall asleep. We've been here 3 days. With symptoms including dizziness, wildly erratic blood pressure, tachycardia, night sweats and fever of unknown origin the diagnosis, after many tests, is dysautonomia. The doctors suspect this may be a late effect of his cisplatin…
Low Grade Mucoepidermoid Carcinoma
Hi, I've recently been diagnosed with a low grade mucoepidermoid carcinoma on my hard palate. I had surgery to remove the tumour last week and i have just been discharged. They also use temporalis flap to cover the whole of the hard palate. Im on a soft diet atm and have lost 4kg in a week! Stiches and clips have been…
getting voice back after radiation and chemo
How long will it take to have my voice back after radiation and chemo. My radiation and chemo will be ending on July 11. The primary site was the soft pallet and before my treatments started I had surgery to remove all the lymph nodes on the left and some on the right for a total of 75. My mouth and throat is so sore that…
Welcome Ajax FC!!!!!
He's here!!! :) . Welcome brother (Ajax FC) I love you and you're gonna be ok.
NED......................however......
These "howevers" we've been seeing lately are getting old. NED on the NPC.....They did see a couple new things in my scan. She read all the medicalese and I really couldn't make much sense of it. They saw two "possible small cysts" in my submadublar salivary gland....5 milimeters or less. And then there was something about…
Neck dissection
had just talked to the doctor today and found out my scans came back and was told that I had limp nodes on both sides of my neck that were border line,The lump was the only other place that showed any signs of cancer,My neck is the only place for reoccurence and the doctor says we still don't know the primary yet,Also…
Cured
Just back from the cancer institute. Met with the ENT, he scoped the throat and said it looks awesome, and then said, "your throat cancer is now cured" good words to hear. It's been 5 years since trestment ended (last rad and cisplatin June 17th 2009). It can be done, feeling real good about this, he said to not make an…
What would you say to a billionaire
What would you say to a billionaire who just got diagnosed??? I thought about this. At first of course I would wish him health and a speedy recovery. Then what??? What would I really say after having lived with this for 15 years Would I tell him how many on this site have survived only to lose everything that they have…
The Cold Hard Facts
Had a serious conversation with my MedOnc today and it was good to finally let myself ask the hard questions. The deal is, if the spots in my lungs are infectious, the chances of my beast coming back is 60%. If one or more of the nodules in my chest are cancer, the recurring percentage is 90%. The good news is in either…
second opinion
well we went for our second opinion and this dr stopped the new chemo right away..said his scan looks good..he is concerned about the one node but said a 6 weeksscan is really early ...but he just wants my hunny to heal and get stronger and get a new scan in 6 weeks and go from there..he felt pretty confident his scan…
First Post Treatment Appt.
I saw my RAD ONC today, she said that I look great after the treatments and that there is "no evidence of disease". Of course I know that I must wait for the PET scan for a better defined diagnosis. I will take all good news I get these days. Mike
The beast came by last night...
...and whispered in my ear, "Ever dance with the devil in the pale moonlight?"...to which I answered, "Fred Astaire ain't got nuthin' on me, bring it, ****"...so we had a seven hour Cisplatin marathon today...some salsa, cha-cha, a little merengue, some languid bossa-nova, a torrid tango, and I finished with a flaming…
Mike Metzler
Has anyone heard from Mike? He has a site of his own but hasn't posted there since June 19th. Hoping to hear good news on his recovery. He had an infection but at last post was off the antibiotics and taking in soft foods. His drop foot was improving and he was hoping to be in a walk/run over the 4th so was thinking about…
Lake George
Any good restaurants heading down for the 4th of July
Skiffin 16 It is time for an up-date
Hay John it is time for an up-date on how you are doing Tim
H&N Strikes Another High Profile Person
NEW YORK (Reuters) - JPMorgan Chase & Co Chief Executive Officer Jamie Dimon said he has been diagnosed with throat cancer but that the ailment is curable and he plans to remain actively involved in the largest U.S. bank's business. In a memo to the bank's employees and shareholders on Tuesday, Dimon, 58, said the cancer…

Head and Neck Cancer

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