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Head and Neck Cancer

Archives for July 2014

Good pathology results after surgery
Yah! Even though I feel like dodo, I have good results. The lymph nodes that they removed were free from cancer. The tongue tumor is a T1, which means they get to watch me for 5 years to see if I stay cancer-free... I just have to heal now and learn to eat and talk again. I'm in pain still but that should go away as I…
12 o'clock and all is clear
H&N Gang Had my 2y4m (post rad) exam today and I am relieved to report I am NED! After looking, feeling and scoping, my ENT said “everything is great”! On the side effect front, the saliva and taste continue to improve and I can stray away from my water bottle, but it would be a critical error to attempt to eat anything…
Late Onset Swallowing Disorder from Radiation to Throat
My dear husband (aged 70) was diagnosed with thyroid cancer 9 years ago. Over the next 2 years, had 3 surgeries (kept recurring), then chemo, then external radiation. He had to have a feeding tube put in after external radiation for 6 months because of the burns to his throat. Also had 2 radioactive iodine treatments along…
Prayers Requested
I am posting today requestiing prayers for my husband. I read this board daily and only post occasionally. My husband successfully fought mandibular sarcoma two and a half years ago, undergoing radiation, partial neck dissection, mandibulectomy, and fibula free flap surgeries. He goes in every three months for scans and…
who can recommend an experienced nasopharyngeal carcinoma doctor in MD Anderson Cancer Center
One month ago i found a swollen painless lymph nude on left neck while my left forehead was infected by Shingles virus. I took anti-virus medicine one week and then virus was gone. But the neck lymph nude is still there. In my family, my uncle was dead from nasopharyngeal carcinoma and his first symptom was swollen neck…
Hi & thank you!
Hi all i am 28 y/o female who has undergone treatment for esthesioneuroblastoma. I have been a (quiet) member on here since last year during treatment. I wasn't really In the right head space for posting but reading everyone's posts helped me sooo much. all the tips etc and just knowing so many others are going through…
First scan results
had my monthly check up this morning my MRI scan( first one since rads) was clear and so was my scope this morning. He said my throat looked better than last time. He talked about my throat blockage and said I could have a double endoscopy going through my PEG tube upwards that would be one team, he would be going down the…
Chef Daddy Mike Up-date
I heard from Mike he is sleeping in his car that sucks when you live in Portland Oregon. He is trying to find work but finds he no longer has the strength he once did to work very long. He said he never dreamed that at his age he would be in this predicament in life. Please continue to keep him in your prayers. Tim Hondo
Skiffin and Shelley Escape...
Still on the IV feedings, but on a 18 hour cycle... So I have six hours to escape and play for a few minutes.... Guess what I did..., LOL; Shelley and I got to get the Hewes out for a little while on a local lake today.. I sure do miss having a cold beer, LOL...even water for that matter..., soon I hope. Thanks for the…
orn
what are the symptoms of ORN. I never got my teeth removed before rads, I hear occcasionally of this gum/jaw problem how do you know if you've got it. My teeth look fine at present, I've had three check up and been told my teeth are white and healthy. Is it something that happens often in the future after rads if you don't…
blood streak phlegm after NPC treatment - common?
I was diagnosed with NPC stage 3 cancer in Mar this year. Since then, I completed 3 rds of chemo and 33 RT sessions. I am 8 weeks out of my treatment and today, I woke up with the sickening blood streaked phlegm again. Is this recurrence? Will be going to see my doctor first thing tomorrow but wanted to post here to ask…
I'm officially depressed...
I thought I'll write here today instead of keeping my sad thoughts to myself... Monday I have a 1 hours MRI for brain and neck! Wednesday I have the so called "mapping" or "simulation" session. And as already told u on the 28 I start. well..to be honest.. I'm depressed, I lost my energy, my humor, my interest in people…
I've had a 419 scam private message here!
Do we know about this? It looks extremely suspicious to me. It's much easier to simply donate money to a chosen charity than to go through all this palaver! I've got no idea who this person is. I did post the message in here, so people could see what she said, but I've been told to remove it, so I've taken it out. Sorry, I…
Hello I am new to this group
I completed radiation (no chemo) for tongue cancer on Tuesday (7/15/2014). I just found this board and appreciate it very much. Doctors can tell you a lot, but those who have expierenced it can tell you much more and in terms you can understand easier. I will be back soon. Thanks Bill
Update On My Daughter, Johnnybegood
Cannot remember when I last posted. My girl is still in the fight, but just barely after enduring 6 very hard years. Twice in the last week, she has defied a 24 hour prognosis. I know in my heart that there will not be another rally, as she simply has nothing left in reserve. I have been here in Kentucky for over a month &…
Dry Mouth and Cavities.
Had a good talk with my dental hygenist yesterday about preventing cavities after receiving radiation. I had assumed it was because of the rads that the teeth start to get them and that is why we use flouride trays. She told me it was due to having a dry mouth and that your saliva does a great job at protecting the teeth.…
Hospitalized for cellulitus in cheek
Went in Sunday and got home at 9pm last night. I got so anxious waiting for release but he had two emergency trachs so they needed him more than I did. Hoping under control now. Lots going on. Good news is that bone scan a week ago indicates fibula used to reconstruct jaw in 2012 is still viable. There is an exposed spot…
treatments postponed till August 4.. i think im ready :)
Hello guys, yesterday I had my first appointment with the radio oncologist. the mapping and simulation meeting in next Wednesday. and the first session is July 28. I'm gona be having 28 sessions of "MIRT" I'm not sure if I spelled it right, its the localized radio. the area treated will be my sinus area. That is around my…
Well, this sucks (literally)...
...12 rads in and I can barely chew any solids without exquisite pain from under the sides of my tongue. Throw in the taste buds just about shot and eating has already become a chore. Have the magic mouthwash, the xylitol pills, the pain pills but not helping much on the eating front. Swallowing doesn't hurt (yet) but…
New :) Oral tongue SCC. T2N2BMX England.
Hiyah, I was diagnosed with tongue cancer on 6th November 2013. T2N2BMX, poorly differentiated. On 27 December I had a hemiglossectomy, radial forearm flap and abdo graft, modified radical neck dissection, temporary tracheotomy. I had a PEG tube put in, then 30 sessions of radiotherapy February/March 2014. I had got over…
First Check Up
And Doctor says all is well so far. YIPPEE! G.
Post surgery sloughing in the mouth
Well my tongue surger went well. The took part of my tongue and had clear margins. I also had the neck disection to remove some lymph nodes. This happened on Friday July 11. I am having to learn how to swallow all over again. So I feel weak, puny and beat up. I am also suffering from post surgery sloughing in my mouth to…
Hi, I'm new
Hello to all, I have looked around here from time to time over the past couple years. My father was diagnosed two years ago with squamous cell carcinoma on the base of his tongue (5/2012). He lived through a whole summer of rad and chemo, and he just celebrated his 60th birthday last week. What I am seeking from all of you…
TREND SETTERS AT LAST
Well, it has finally happened, we tube feeders in the network have finally become trend setters in the world of weight management! Last night I was sock knocked off while watching the news on WPLG Channel 10 here in sunny/rainy tropical South Florida, when they aired a story about a doc in town who has brought from…
post surgery , radio , and work ?!
Hello guys, hope all is going at its best. As you know I'm recovering from the craniofacial surgery that I had on June 17. My surgeons said I can go back to work next week. and my appointment with the radio-oncologist is next week. so I wanted to ask you guys, if I started radio and went back to work is it ok? Or I should…
Brother
Need some prayers for my older brother Roy in England, afraid he's getting to the final stages of his fight with stomach cancer. Denis
Head and chin wrapped
Just wondering if anyone has had this done.My chin and along sides of chin where swollen.Made me look like Fred Flitstone.Was told it was lliquid that forms there and since the lymph nodes would help move it along to other parts of the body.While going to the speach specialist also started to go to a guy and he would…
Checking In
Hi all: Back from NC. I had a good time in spite of the snakes, my mother-in-law getting a bad case of the shingles and having to watch out for the neighbor's dog that has taken to biting if anyone gets too close to her puppies; but other than that it was grand time! As I have mentioned before my mother-in-law does have…
Skiff ~ Home at Last...
Now to stay here..., LOL Well, I really appreciate all of the thoughts, concerns and prayers.., along with a few visits and phone calls... I got to come home Friday, with strings attached..., well actually a tube a and a pump. I am on nutrients, antibiotics through a PICC line (catheter inside my left arm).. No food or…
wondering about the return to work
Well been feeling really good and my short term disablitly is running out so looking forward to going back to work.Will need my doctor to sign a release form which hoping he will but he does everything in baby steps leaving trache tube in longer then normal things like that.I would like to have the peg tube removed also .I…

Head and Neck Cancer

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