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Colorectal Cancer

Archives for February 2016

Returning to previous failed treatments.
Hello...Haven't been on the board in a while. I have officially used up all the treatments available to me. Trials are out of the conversation because of chronically low platelet counts, and, recently plummetting blood counts in general during a trial of a new drug. trial stopped and counts look better. Liver is in sad…
one month post-diagnosis
Tumor very low in the rectal area, but it's a type typical of colon cancer. Mets to scrotum (!) and lymph nodes. Second chemo treatment is coming up on Thursday. Eventually surgery and a colostomy if we get that far. One month since the diagnosis, and I'm just walking through life in a daze. Everything has a surreal and…
Should I?
Hi, I'm new here. I joined this site because I recently got a boyfriend & he is going through chemo due to colon cancer 3rd stage. We just started on a relationship but at times I'm still unsure should I continue & worried if we would not have a long time together. My parents do not know about it...they might worry for me.…
The 700 Club (IV vitamin C)
My wife has had 700 infusions of IV vitamin C, a rather high cu.mulative number. The past 100 infusions have been with 30-65 grams of vitamin C (30,000-65,000mg), 3 to 7 days apart. Since her infusions are peripheral rather than port based, the nurse's insertion skill becomes more important as she climbs the accumulated…
Liver mets recurrence - Looking for help and similar experiences
Good morning to you all I’m new in the forum and decided to write looking for some support and help. Hope I can help someone else too Here my story (my moms story) My mom was diagnosed June 2014 with colon cancer with liver mets. Colon Cancer with KRAS Mutation. Same June she had a Partial colon resection and started…
Worried about my friend and just need to unload
This is the only place I can think of to talk about this. My friend of over 30 years has been having all the symptoms of colon cancer for almost a year. She's been waiting to have a colonoscopy because where she lives there's quite a backlog for these things so the wait has been over 6 months. She finally had it yesterday…
Good news from the german branch...
... of our great group. Husband had his latest checkup on tuesday... ultrasound clear... bloodcount perfect. CEA 0,9 and all other values also great. WOW... who would have expected this on Nov 9th 2011 when he was diagnosed with stage 4 CRC with 2 mets to liver and one in his peritoneum. Next step CT in August. So happy.…
How many of us previously had IBS? Or is it in your family?
I had IBS as long as I can remember. I remember reading that it would give me a 65% chance of developing colon cancer years ago. I thought I'd be much older before that was an issue. Anyway, I'm wondering who else on here had IBS before their diagnosis. I'm also wondering how many people had in in their family and it seems…
MRI scan yesterday,, Good news and bad news
Hi everybody, hope everyone is doing well, or as well as can be expected since we are here because we have or had Colon Cancer! My update: I had an MRI scan yesterday to find out if that Y-90 (SIRT) procedure (done on Nov 24, 2015) worked. There's good news and bad news: The original 7.7 cm liver tumor in the upper right…
got a hug from Radiologists
so i go to get set up for xrays to my groin and on the way out she gives me a hug and tells me i dont understand most people dignost in 2013 are no longer with us but i feel great 24 chemo treatments /stoma/ 4 surgyies to remove cancer and now goingto get 20 xray treatments and i feel fine for having stage 4 colon cancer
Cimetidine and any additional surgery
Once diagnosed and had surgery should cimetidine be taken for any additional surgery? Specifically removing the port? Thanks.
Treatment 24 of 24
This Thursday will be treatment number 24 of 24 planned Erbitux treatments. Yup. One whole year of Erbitux. One whole year of "the rash." And a whole year of NED. I managed to work through the year but I have to admit that I feel exhausted most days. And I am really hoping to recover and regain some energy. Blessings to…
The dreaded "stoma" and do I have any say
hey folks, i am at the point where surgery is friday, and the colostomy will be permanent. i met with the stoma nurse, and i was pretty much dismissed with the exact phrase of "forget about the stoma." i am finally coming to peace with the idea of this being permanent, but I don't want a protruding "spout." stoma nurse…
Journey Update
Hi All, It's been a while... Been busy. Found out I'm expecting my first child in July - so there is that excitement buzzing. Wanted to give an update on my dad. I think the last time I posted, he had a severe bleeding incident but came out of it as if nothing happened. During that incident, they stated that his thyroid…
Anyone hear from Maxicat?
Hi Team, Has anyone heard from Maxicat? I have not seen any updates in a while. I know she was 3b signet cell (like me) and then she was facing breast cancer. I don't really look at any other forums so I thought someone else may have seen something. I think of her often and hope she is doing well. Thanks
Proxy...what to do..dysfunctional family
hey everyone, i am having APR next week, and am now feeling much better about it (in case you read my previous posts of angst) and they would like a proxy just in case. i was the "person to notify" and the responsible person when my parents passed and needed someone there for them. My older sister, though we have had no…
HAI Pump Therapy. Why Isn't It Used More?
I got scan results Wednesday. Things look stable which is always great news for me. I still have two questionable spots in my lung that may or may not be something. I've been on Xeloda and Avastin for the past 2+ years and I'm continuing with that. ALWAYS get a second opinion. What was very interesting today was that my…
New member/caregiver
My dad is 66. He went into the ER two days ago with stomach pain. We were thinking it was gallstones or a kidney stone, but it turned out to be stage IV colon cancer. My family hasn't had a chance to talk to the hospital-assigned oncologist yet, so we know very little. I can't stand not knowing anything despite some things…
Janderson scan results.
It was a mixed bag that Misun and I are both pleased about. One spot shrunk. 2 other spots don't show up on the scan. The other tiny spots on my lungs and splean are all stable. There is however another fast growing spot on my chest wall just past the margains from my last survey that we have to deal. We are going to use…
A bit of good news about my lung mets
So I have the three spots in my left lung that the PET scan said were cancer mets. My radiologist called this morning to tell me that two are cancer mets and the third one is just a spot. The two that are are very close together so when I get the radiation I'll have less area damaged than anticipated previously. As far as…
Pre-op testing for APR today
well, no surprise at this point. Went for pre-op testing and had blood-pressure and heart rate, weight check. Then had a discussion with a nurse. She added to my medical record, and told me what I should and should not take for meds. Heart rate was a bit crazy at 101. Bp 139/74...very high for me. I'm just floored and…
HERNIA REPAIR AND ILEOSTOMY REVERSAL
I was diagnosed with stage IV colon cancer with mets to the liver in fall, 2013. I ended up with surgical removal of two cancerous polyps, followed by six rounds of chemo and an iliostomy when the reconnection blew (sepsis) after I got home. Emergency surgery fixed that one. A year later the larger lobe of my liver was…
Clear scan!!
Clear scan 1 and 1/2 years out from my stage 4 diagnosis! Thank you everyone for your love and support. Im posting this to give hope to all of us, stay in the fight, never give up hope. Love you all!! Easyflip/Richard
Annual Scans coming up, never seems to be any less scary
Hello ALL, Just checking in, I have my annual scans in a few weeks, got the colonoscopy next week too, oh fun fun fun. I hate to admit it but i am a little behind, was supposed to already have completed the colonoscopy. Although i dont expect any issues with either i cant help but to be scared, anxious, nerveous and…
groin xray questions
2 cancer tumors removed from my colon retacal area and then they shoved my but throught my stomic 12 rounds of chemo 3 times but i still get cancer nodes in my right groin surgy 3 times to remove 2 tumors each time in the right groin this time doc wants to try radatanion to kill every thing in groin area becuse there non…
Anyone know of a good book on meaning?
I've read a number of books on or related to, the meaning of things, of life, of purpose, many of the pop philosophy type, "Jonathon Livingstone Seagull", Leo Bugscalia books. I've also read things like Victor Frankel's "Man's Search for Meaning" and "far out there" stuff like Edgar Cayce and Carlos Castenada. I've read…
Another healthy person with a colon cancer diagnosis
I just found out that a friend of a friend has just been diagnosed with colon cancer with mets in her liver. I'm told she's very fitness conscious and eats very healthy. Really makes you wonder what exactly a person could do to prevent it, if anything. I recently read that the latest study says that eating habits is the…
Happy Valentine's Day!
Happy Valentine's Day! May life surround you with people who adore you and appreciate your love. Laz
My joke protocol at cost saving; I wouldn't mind if we got better MEDICAL care
UCSP "Universal Cost Saving Protocol" (How hospitals could cut costs without actual patient suffering) No more free meals: you came here for healthcare; we are not a five star restaurant. MP Meal Protocol: Breakfast, lunch, and dinner are a $2.00 surcharge. If you cannot pay, we will bill you to your home. If you have an…
It appears I am not the only one in my family.
I ran into my cousin Bill at the supermarket on thursday. He is my mothers brothers son. We never see much of each other mainly because of distance but we all usually keep to ourselves. Bill has had a very tough life , he spent many years in the Aust Airforce and served in Vietnam and Malaysia. During a regular medical…

Colorectal Cancer

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