Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for July 2017

AI and Dexascan frequency?
To those on AI ~ I am wondering how often you are scheduled for a Dexascan. My insurance says every 2 years, but onco scheduled me one year. I do have arthritis in my neck. I told them at the center that I am on AI and that was why I was scheduled. Do you think I should call my insurance to guarantee payment? Thank you!
5 yrs post hysterectomy POST Tamoxifen
This week if 5 yrs since my hystercomtomy due to tamoxifen-Anyone else have surgery due to the same med? Denise
NO family history
I see many post NO FAMILY history-as my family-i am the first and ONLY happy to say. I am just wondering how many on here-are the first having BC/ no famiily history at all? Denise
Being a Breast Cancer Survivor without chemo/radiation
I'm 61. 15 mos ago, I discovered a lump. Ends up there was a smaller one I hadn't felt,but both were removed.I said to leave my lymph nodes alone, I wasn't doing chemo OR radiation. Take it out and let's see what happened. I did change my diet, healthier, fruits/veggies,no bread,little dairy,minimal meat. My back was…
Adriamycin and Cytoxan Side Effects
I am 43 years old and have had 3 of my 4 AC treatments. I'm concerned about chest pain/breathing difficulty and headaches that I'm experiencing. My echocardiogram before the first treatment was fine. Since starting treatment, I have had some difficulty taking deep breaths. I wouldn't really say I'm doing anything strenuous…
What to do now?
Hey Everyone, This is my first post ever. I was diagnosed with Breast Cancer last November (@ age 26). Finshed Chemo at the end of March and had a Double Masectomy May2. So I am officially cancer free, which is a HUGE blessing. I still have my reconstructive surgey planned for September and have to take tamoxifen forver…
Carol the air is cleaner at the top. I'm almost there too!
62 and over NP Pass
I recently learned that the Senior Pass for 62 and over for National Parks (and other Federal Lands) which is now $10 forever (no renewal) will go up to $80 after next month. So just thought I'd pass that on incase anyone is interested in checking it out. Got "mine last Fri but Hubby doesn't turn 62 til Sept. Oh Ha Well -…
Secretory Carcinoma of the breast
Hi, I first posted to this board a little over 5 years ago when dx with secretory carcinoma in my left breast. This is a rare cancer and still struggle to find much information regarding it. The year before my dx I was treated for anal cancer Stage 3b with surgery, chemo and radiation. It was on a 1 year follow-up PET scan…
Granuloma after Chemo, Masectomy Radiation,Stge 3 ImmflamatoryBC
After a recewnt c-scan it was discovered I had smal nodels and granuloma in the left side of my long, which is the same side that I have my radiation, I was badly burned in the process, After the scan they did a biospy and a round of test on the sample for cancer, fungus , bacyeria and infections, it was all clear of any…
Metastatic Breast cancer-- now in liver
Hi everyone, I'm new here. My mom was diagnosed with BC Jan 2016. She did a clinical trial, then chemo, then radiation. While doing radiation this spring, the found cancer had spread to hip bone. Here we are in July and they've discovered the cancer has moved to her liver. She had been having some indigestion for a couple…
High vitamin b12 and high calcium levels and breast cancer
I have high levels on both b12 and calcium witch both corralate to many cancers including breast cancer. Just wondering if any one else had high levels before their diagnosis? These can cause so many types of cancer but doctors dont know much about either. Or how they relate. Can cause multiple cancers . Please check it…
DX @ 80 and chose to do nothing
Good evening ladies and gentlemen. (I am not going to assume that only women visit this forum) I'll be honest, I really don't visit the Breast forum, I stay in the gyn cancer boards, but I come to share a different perspective. I want to tell you about my mother. Over the years my sisters and I had caught wind of "breast…
Anyone told to use coconut oil on skin during radiation?
A friend of mine is about to start radiation following her lumpectomy, and her radiation oncologist let her know that she starts her patients out using coconut oil on their skin. I've never heard of that before -- I know aloe vera gel and Aquaphor are very common, sometimes Biafine or other lotions, but have never heard of…
Herceptin and Perjeta Causing Restlessness
I'm Her2+, ER-, PR-, and on every 3-week Herceptin and Perjeta infusions. Stage 4, NED since Oct 28, 2015. Unfortunately, with previous Essential Tremor and Restless Legs, the Herceptin-Perjeta is causing chronic and increasing restlessness ("Akatesia"), funny movements with arms and legs, looks like palsy ("Dystonia"),…
Newbie seeking some advice on hair loss
Hello I am new to this CANCER SCARE but I refuse to let it get to me!!! I have my good days and bad days. I'm not vocal in regards to this so that's why I am starting with this forum. I just got my PowerPort in this past Tuesday and set to start my 1st round next Tuesday so it's now hitting me. I am trying to make a…
Helping my Mom & Sister through Breast Cancer
My mother and sister are both Breast Cancer surviors, But during the begining stages they went through depression and anxiety, As a therapist in Hypnosis, I was able to relax the thoughts, which in turn, helped them believe in themselves and connect on having a future. to this day, I give mom and my sister sessions in…
Taxol stopped
My partner- TNBC- had 4 treatments of AC and then started Taxol Weekly. Scheduled for 12 but unfortunately she had a reaction after 5 of them and the Dr said "no more" due to possible risk to kidneys, liver,etc. she is very upset as she feels she did not do her part and that the cancer will be back. Dr assured us that…
Not Sure Where To Turn
Hello everyone, not even sure this is appropriate or the right thing to do but I am totally unsure what to do. I am 39 and will be 40 in about 3 1/2 weeks. Because of this mammograms are not covered and I am having a difficult time finding on in the surrounding area for a reduced cost (perhaps even free). This didn't…
Believe in Better.. Things that helped me
Life is a journey & anyone who has been through "C" treatment knows it is too. Some things that helped me: * Focus only on the step your on, don't look forward & don't look back * Find things that make you laugh, best medicine ever * Remember no matter how bad you feel physically, tell yourself it's not forever, it's just…
Let's check in
Just wondered if anyone would want to write a little peice about how you are doing today. What you been up to. How your family is doing. Any concerns or questions you may have. Where you are in your treatment. What helps you to push on. I will start. I am just coming into my 3rd week from treatment and on thursday I will…
Radiation or not and WHY? How to make this decision.
Hello Everyone. Thank you for taking the time to post in this forum. I feel that the biggest challenges with a breast cancer diagnosis--good, bad, worse--are making decisions. I am 44 years young and have no history of BC in my family. Within the past two months, I have had regular and 3D mammograms on both breasts, a…
Acupuncture help diarrhea?
Hi: I was diagnosed with Stage IV Her2+ metastastic breast cancer in my lungs in May. I started chemo of taxotere, Herceptin and Perjta in June. Am about to get my 3 cycle this week. My problem is intense, chronic diarrhea and have tried OTC meds, Prescription oral and now doing injections. I have been on the BRAT diet…
Continuing itching
Hi everyone.I have not been on here for awhile.Done with treatments and surgery.Had my yearly scans and mamo.They came back clean.Thank God.Doing good except for one issue of itching.Mostly at night.I have changed soap powder different bath soap.Tryed a lot of different lotions.Nothing helps.Dr. Said she thinks it is side…
Tissue Expanders
I'm new to this so please bear with me... I know that tissue expanders are only meant to stretch the skin/muscle and in no way touted to look like natural breast. But, with that said, will there be more projection as there are more fills? I had my BMX 2/17 and expanders placed 5/17 (200ccs at time of surgery). I've had…
Invasive Tubular Carcenoma
Anyone been diagnosed with Invasive Tubular Carcenoma? Recently found out due to biopsey. Have fatty tissue beside the mass so getting both out. Haven't had consult yet. Wondered if anyone has been diagnosed? Treatment plan? Reoccurrence or likely cancer in other breast?? thx! Melisa
Anyone have any sex issues after breast cancer?
I am a survivor. My cancer was estrogen feed so I am no longer allowed to have it. I have also had a hysterectomy. What can i do to have sex? I have been prescribed the ESTRANGED but, itso no helping, with the dryness yes but, not enough estrogen to help get the motor started, lol. Help me please. I am 46 yrs old and I…
3 years after Chemo, Hair and nail Problems
Hi, I am new here. I am three years out from Chemo praise God. When my hair grew back it grew in much thinner and not curly. I probably got half the hair I had before. Previously My hair was extremely thick. But it is hair and it covers every part of my head. My question is about hair dye and fingernails. I had taxol and…
A bit of good news!!
Sharing a bit of good news: I had a PET scan and they saw something "suspicious" on my thyroid. I prayed all weekend (others prayed for me as well) that the cancer didn't spread and it hasn't!!!! The nodules are benign. This is the happiest I've been since I was diagnosed with this nasty disease. Have a great 4th everyone.
Checking in with HapB
I haven't heard from you in a while. I am just checking to see how you are doing....

Breast Cancer

Discussion List